Author Topic: Brief poll on conditions post-treatment  (Read 18251 times)

Maverell

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    • Acoustic Neuroma and Me
Re: Brief poll on conditions post-treatment
« Reply #60 on: June 08, 2009, 05:37:43 am »
1. size of tumor pre-treatment - not known
2. treatment type (radio-surgery or surgery) surgery
3. delivery method or surgical approach taken    retrosigmoid

4. balance pre-treatment (1-10) 10
5. balance post-treatment short term (3 months) (1-10) 1
6. balance post-treatment long term (1-10) 8

7. hearing pre-treatment (1-10) 4
8. hearing post-treatment short term (3 months) (1-10) 1
9. hearing post-treatment long term (1-10) 1

10. headache pre-treatment (1-10) 10
11. headache post-treatment short term (3 months) (1-10) 10
12. headache post-treatment long term (1-10) 10

13. Facial pre-treatment (1-10) 10
14. facial post-treatment short term (3 months) (1-10) 1
15. facial post-treatment long term (1-10) 1

16. cognitive pre-treatment (1-10) 10
17. cognitive post-treatment short term (3 months) (1-10) 7
18. cognitive post-treatment long term (1-10) 10

19. would you deem your treatment a success (1-10) 10 is very successful 1 not successful 6
20. Comments - clarifications - tumour was removed but the lasting side effects are bad
21. where was your treatment performed, Drs? United Kingdom in 1988

Keri

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Re: Brief poll on conditions post-treatment
« Reply #61 on: June 08, 2009, 10:00:44 am »
Bob,
Don't worry about compiling all this now - just wait till after your surgery and you can add your answers to the poll!

Keri
1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

tenai98

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Re: Brief poll on conditions post-treatment
« Reply #62 on: June 08, 2009, 11:45:51 am »
1. size of tumor pre-treatment...1.4cm
2. treatment type (radio-surgery or surgery)surgery
3. delivery method or surgical approach taken translab

4. balance pre-treatment (1-10)9
5. balance post-treatment short term (3 months) (1-10)8
6. balance post-treatment long term (1-10)

7. hearing pre-treatment (1-10)3
8. hearing post-treatment short term (3 months) (1-10)0SSD
9. hearing post-treatment long term (1-10)

10. headache pre-treatment (1-10)0
11. headache post-treatment short term (3 months) (1-10)0
12. headache post-treatment long term (1-10)

13. Facial pre-treatment (1-10)0
14. facial post-treatment short term (3 months) (1-10)1
15. facial post-treatment long term (1-10)

16. cognitive pre-treatment (1-10)2
17. cognitive post-treatment short term (3 months) (1-10)3
18. cognitive post-treatment long term (1-10)

19. would you deem your treatment a success (1-10) 10 is very successful 1 not successful 10
20. Comments - clarifications -
21. where was your treatment performed, Drs? Ottawa Civc Hospital, Ontario
Drs Schramm and Benoit

JO ;D
 
 
14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

wcrimi

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Re: Brief poll on conditions post-treatment
« Reply #63 on: June 13, 2009, 08:09:00 am »
1. size of tumor pre-treatment    1cm
2. treatment type (radio-surgery or surgery)  SURGERY
3. delivery method or surgical approach taken  RETRO

4. balance pre-treatment (1-10)    10
5. balance post-treatment short term (3 months) (1-10)   6.5
6. balance post-treatment long term (1-10)   8  (at seven months now)

7. hearing pre-treatment (1-10)   9.75
8. hearing post-treatment short term (3 months) (1-10)   6
9. hearing post-treatment long term (1-10)   8.75

10. headache pre-treatment (1-10)     10
11. headache post-treatment short term (3 months) (1-10)   8.5
12. headache post-treatment long term (1-10)   8.5

13. Facial pre-treatment (1-10)   10
14. facial post-treatment short term (3 months) (1-10)  10
15. facial post-treatment long term (1-10)  10

16. cognitive pre-treatment (1-10)   10
17. cognitive post-treatment short term (3 months) (1-10)   8
18. cognitive post-treatment long term (1-10)  9

19. would you deem your treatment a success (1-10) 10 is very successful 1 not successful    8.5

20. Comments - clarifications -  I get very mild headaches from time to time, but I am not really sure how much is related to surgery  because I've also had some sinus issues that may be totally unrelated.

I see that many people rated their surgery a 10.  Mine was clearly a 10 in terms of successfully removing the tumor without complications. But I'd like to rate myself now overall relative the guy before the surgey. I would rate my surgery higher than an 8.5 if I didn't still have dizziness/wonky headedness/waviness in my head when I walk or are more active than that.  However, I am only 7 months post op. I am still improving. In another 4-5 months I may be able to rate the result higher if that waviness in my head subsides some more. Other than that, I would easily rate my result 10 because my hearing loss is barely noticeable, headaches are rare and very mild, I had no facial problems at all, my mental stamina is improving, and my tinnitus is basically the same as pre op (very mild) except on rare days etc...   I guess I am one of the very lucky ones.

21. where was your treatment performed, Drs?   Mt Sinai by Dr. Post and Dr Smouha (can't recommend enough)
« Last Edit: June 13, 2009, 08:19:59 am by wcrimi »
1 cm, 6mm, 4mm on Left side. Surgery performed 11/6/2008 by Dr. Kalmon Post and Eric Smouha at Mt. Sinai Hospital in NYC.
Normal hearing before, 85%-90% now, dizziness when walking or turning head, annoying hissing and high pitched tinnitus on and off, eyes have trouble adjusting to rapid head move