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Author Topic: Got a date - August 17  (Read 7321 times)

Tumbleweed

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Re: Got a date - August 17
« Reply #15 on: August 03, 2009, 08:58:28 pm »
Wanda, my AN was also 2.1 cm and on my left side at the time of treatment (at Stanford, with doctors Chang and Gibbs). I've lost about 20 dB of hearing in my midrange frequencies since treatment, but that's all (low and high frequencies weren't affected). I agree with Steve that you are really placing your best bet. CK, as you know, offers the best chance for hearing preservation and Stanford doctors have the most experience with the procedure. So I am pretty darn confident that, as long as you still have pretty good hearing in your left ear, you will still have serviceable hearing long after CK treatment. You'll be in terrific hands.

You'll be in our prayers.

Best wishes,
TW
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

bubbles

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Re: Got a date - August 17
« Reply #16 on: August 04, 2009, 08:49:06 pm »
 Sunday I had a very bad relapes. My hearing took a big hit. They are saying form an infection from the oxygen tube  (My heart rate went to 166 bpm) and my immune system being soooo low from having to take so much prednisone. I must say as hard as life has been on prednisone I am so thankful that once again my voice recognition is back to 95%, for that I am happy.I thank you for all of the encouragement that this forum has given because I  can't count the days I have gotten on to ask questions and was sooo weak (don't know why hoping it is just from ALL the steroids) and finding I couldn't even type (unbelieveable). But one thing that did happen I went away feeling encouraged. Once again Thank you ALL.I can't wait till August 17th to start my treatments.
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Tumbleweed

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Re: Got a date - August 17
« Reply #17 on: August 04, 2009, 10:11:27 pm »
Less than 2 weeks to go, Wanda, and then you'll be on the road to healing.  :)

Best wishes,
TW
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

ppearl214

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Re: Got a date - August 17
« Reply #18 on: August 05, 2009, 08:57:06 am »
wanda, sending you wellness wishes as well! CK and Stanford are great and cheering you on!

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

foodsmarts

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Re: Got a date - August 17
« Reply #19 on: August 05, 2009, 10:22:47 am »
Hi. I missed the note about fractionated margaritas. Fabulous Rx. Now I've got even more to look forward to in Stanford!!

Helen
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5.4mm X 3.2mm X 3.88 mm at diagnosis 8/28/08; 1.1 cm X .5 cm 6/16/09; CK Stanford Drs. Chang and Soltys 8/19/09
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