Author Topic: The comical world of having an AN  (Read 11349 times)

ppearl214

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The comical world of having an AN
« on: July 10, 2009, 05:08:19 am »
Every now and then, my AN reminds me that it has affected my life and something silly or such will occur due to it..... like....

when my balance is off.. and I'm at home, walking ... and bump into the wall... and.... I end up apologizing to the wall... I look at the wall and say "Oh, I'm sorry....".... like it really cares. :)

Anything comical in life happen to you due to you having an AN?

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Debbi

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Re: The comical world of having an AN
« Reply #1 on: July 10, 2009, 05:47:52 am »
Good idea, Phyl!  I still have challenges keeping food in my mouth which turns out to be hilarious sometimes.  Recently, I had lunch with a friend and somehow a piece of squash just came flying out of my mouth, hit my chest and bounced to the floor.  After a moment of stunned silence, we both doubled over with laughter. That same night, an edamame bean came flying out of my mouth and nearly took out Willie's eye!  And, I have to admit, these are really funny moments. 

And recently, I went to hug someone and lost my balance and ended up clinging to the other person trying desperately not to land both of us on the floor.   :D

None of this stuff is serious or life-threatening and, let's be honest, it IS really pretty comical!

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

stoneaxe

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Re: The comical world of having an AN
« Reply #2 on: July 10, 2009, 08:28:13 am »
Sue and I were laughing the other night. I said I can't feel my face...only it came out like Robin Williams in his standup routine..."I can peel my pace". If you've seen the routine you'll understand why we started laughing so hard... ;) ::)
Bob - Official Member of the Postie/Toasty Club
6mm AN treated with Proton Beam Radiosurgery in March 2004
at Mass General Hospital, Dr's Loeffler and Chapman
Cut the little bugger out the second time around in 2009..translab at MGH with Dr's McKenna and Barker.
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grega

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Re: The comical world of having an AN
« Reply #3 on: July 10, 2009, 09:35:54 am »
Thanks Phly for thinking of all of us!

As an offshoot to once having an AN, I'm ssd.  I'll share this baha tester true-story, one which I promised Jan, Lori & Mike I'd get a round tuit  ;)  sooner or later.

Couple months ago, I had the baha testers for a couple weeks in succession.  One night Suzanne and I had dinner with friends at a great Irish restaurant near Annapolis.  As the friends had not yet seen or heard of the baha, I was showing and explaining the what, when and how of the tester, since I had just gotten it from the audiologist that morning.  But before the baha lesson, we all ordered drinks.  So I ordered what many guys get at an Irish restaurant .... a nice tall glass of Irish beer .... the first couple swigs were delish, and I was looking forward to finishing it! 

Well, the drinks came before the baha lesson .... and as I was un-snapping the tester from the band to show it more closely, it flew outta my hand and .... yep .... right into my beer glass .... still probably 90% full!!

My mind went wild .... thinking OMG ....I drowned it!  Will my insurance cover it?  Will my audiologist banish me for life?!?!   What to do ?!?!?!  I shot up and ran for a sink ..... any sink where I could pour out the beer.  I frantically asked a waiter to pour it out but be sure to save the electronic device at the bottom!!!   With quizzical looks from him and others, he disappeared for ten seconds and returned and handed me the wet baha ..... I immediately started blowing on it, as if that might help .... HA!  More quizzical looks!  ::)

I got back to the table and, still a bit frantic, tried to think straight .... while continuing to blow on it!  How stupid I must have looked, huh!

In hindsight, I should have fished it out with a fork or spoon right then and there for two reasons .... it was already wet and time was not on my side at all (DUH!) .... and, perhaps the worst part, I wasted damn good beer!!!

Well, sad stories sometimes have good endings .... and this one is very good!  Even though I had to pay for another beer, later that night I realized that, lo and behold, the baha tester was still working ..... OMG again!   :o

WOW .... did I sleep good that night!

Warning .... don't try this at home ..... drowning your baha, that is!

Keep   ;D-ing .... Greg
1.5 cm AN retrosig 11/04.
Drs. Henry Brem & Michael Holliday @ Johns Hopkins, Baltimore
SSD right. Tinnitus big-time, only when thinking of it.
BAHA since 7/20/10 ... really helps w/ hearing, specially after programming in subliminal message: "Hey, don't listen to your tinnitus!"

moe

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Re: The comical world of having an AN
« Reply #4 on: July 10, 2009, 09:44:48 am »
Funny story, Greg, and Debbi and great idea for a thread Phyl. ;)

We all need a good laugh :D

Being SSD, I've started actually writing down the funnies about what I hear vs. what was actually said! Tinnitus distorts too.

The only one I recall is:
 Husband "It has helped me with a lot of childhood memories." (can't remember what he was referring to).
What I heard "It has helped me with a lot of pornography."  Good to know honey!
Guys will be guys. Oh yea, but that's not what he said......
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

lori67

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Re: The comical world of having an AN
« Reply #5 on: July 10, 2009, 10:16:40 am »
Greg,

That's definitely a tough call.....beer or the BAHA.....I'm not sure which one I would have attempted to save!   :D

Phyl, I apologize to walls too.  Sad part is, it's always the same wall - still in the same place it's always been, but I still manage to walk into it on a daily basis.   ???

Every day I find something AN related to laugh at - dropping my BAHA into the bottom of the freezer and having to climb in to save it...knocking my two little ones over like dominoes when I start to fall over sideways...the nice dinners with my husband and me with a straw in my wine...the random words that pop out of my mouth that have nothing to do with what I'm trying to say...hanging up on people who call because I put the phone to my deaf ear and figure there's no one on the other end...the list goes on.

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

CHD63

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Re: The comical world of having an AN
« Reply #6 on: July 10, 2009, 10:28:23 am »
Good thread ...... if we can't laugh at ourselves .......

Somewhat related ..... when I was diagnosed and the surgery scheduled, our son was trying to explain to his then three-year-old daughter what was going on with Grandma.  He told her Grandma had something growing in her head that didn't belong there and the doctors were going to take it out.  Her response was "Well, we can just plant it in the garden then!"  Needless to say that gave us all a good laugh.

I also have a favorite wall that I regularly say, "I'm sorry ......" to.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Jim Scott

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Re: The comical world of having an AN
« Reply #7 on: July 10, 2009, 01:15:08 pm »
"Humor is mankind's greatest blessing" - Mark Twain 

One of the slightly humorous aspects to having had an acoustic neuroma is in the effects of being SSD.  In this case, the inability to determine the directionality of sound.  I first started encountering this some time ago, when, while shopping in a mall or inside any large store, I would inevitably become separated from my wife.  Eventually, we would seek each other out.  She would usually find me first, often some distance from her.  Naturally, she would call my name.  I would hear her call but have absolutely no idea where she was.  This would usually have me executing a flat-footed pirouette as I searched for my wife.  I would usually spot her somewhere through my second turn.  She has told me that it was very amusing (for her) to watch me do this 360 degree turn with a strained look on my face as I searched for her.  I had to admit that it was funny and we both got a few laughs out of it. 

Lately, we've decided to bring our respective cell phones with us in these big stores or malls and when she finishes her shopping, she calls me and tells me where to meet her.  This eliminates the calling and searching routine.  However, I don't always hear my cell phone ring (I have it on the maximum volume) but I've gotten better at keeping it in a shirt pocket where I can hear it.  I think this will be another effective workaround...the kind some of us SSD folks routinely do.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

leapyrtwins

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Re: The comical world of having an AN
« Reply #8 on: July 12, 2009, 10:54:19 am »
OMG, Greg!

The BAHA/beer story is a howler!   :D

I can't believe the demo still worked after getting soaked  :o   The AN angels must have been looking out for you that day!

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Debbi

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Re: The comical world of having an AN
« Reply #9 on: July 12, 2009, 03:15:28 pm »
Great stories!  And, Jim, I'm totally with you on the flow pirouette!  And, why is it that the person who's voice you are hearing is never visible until you've done nearly the entire 360 d of the pirouette?  LOL.
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

sgerrard

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Re: The comical world of having an AN
« Reply #10 on: July 12, 2009, 04:14:51 pm »
And, why is it that the person who's voice you are hearing is never visible until you've done nearly the entire 360 d of the pirouette?

Corollary 3 of Murphy's Law.  ;D

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

LisaP

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Re: The comical world of having an AN
« Reply #11 on: July 12, 2009, 05:20:21 pm »
Hi All,

I would have to say that my chest (without getting into too much detail) save me the other day.  My balance of course is off and I have an island in the middle of my kitchen and yes use your imagination, yep that's right BANG!! right smack into it.  Anyways all's I can say is thank god I'm big there, yes it did hurt, but I think I would have broken something if they were not. 

After the pain went away, I thanked them!!!


LisaP ::)
LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

ppearl214

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Re: The comical world of having an AN
« Reply #12 on: July 13, 2009, 01:04:50 pm »
um, Lisa... as long as "they" helped ease you from further injury....

  ::)

LOL! :)

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

cin605

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Re: The comical world of having an AN
« Reply #13 on: July 13, 2009, 02:06:44 pm »
just acouple months ago i went into the bathroom instead of my bedroom it was dark so i could not see anything i was looking on the wrong wall even for the light switch....then i discovered the bath tub..ooops......then there was when i am on the phone discussing forgetfullnee w/ sis n sat the phone down mid convo......emptied the garbadge took it out n came back in only to remeber i was on the phone....sis was still there babbleing about memory loss!
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

foodsmarts

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Re: The comical world of having an AN
« Reply #14 on: July 17, 2009, 05:16:49 pm »
The other day I got out of the car at the hardware store and walked toward the door. Somehow I started listing to the left which
has become fairly predictable. This time however I couldn't get straightened out and ended up making a huge circle in the parking lot, fighting with myself to get straight. I was laughing so hard at myself I was crying!

Once I got back to where I started, no problem and I walked straight in. Fortunately nobody else was in the parking lot. Nothing that exreme has ever happened before nor since.

Something I think is fascinating...maybe not "ha ha" funny is that I drive up a very winding road to get to my home. When I first
started experiencing dizziness, I thought I would never be able to drive again. Now, I am actually more comfortable in the car on the curves than I am when walking around. I feel "normal" while on that road....is this the brain compensating to the max because I'm terrorizing it by continuing to drive? Who knows? 

You just gotta keep laughing.

Helen
5.4mm X 3.2mm X 3.88 mm at diagnosis 8/28/08; 1.1 cm X .5 cm 6/16/09; CK Stanford Drs. Chang and Soltys 8/19/09