Author Topic: this week (7/19) in the valorous world of AN  (Read 5827 times)

Keri

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this week (7/19) in the valorous world of AN
« on: July 19, 2009, 09:58:54 pm »
I wanted a word that was synonymous with courageous. I feel like we're all (not necessarily by choice) courageous in our AN journey. We're having or have had surgery or radiation, or are watching and waiting and researching our options. Many here have had difficult challenges and are coping, sharing and hanging in there. All I've met on this forum are very helpful and encouraging to others. I would put all this in the 'courageous' category.

Here's a great quote I found when we were visiting the USAF Memorial:
“Courage is doing what you are afraid to do.” Captain Eddie Rickenbacken; airman WWI; from the United Stated Air Force Memorial, Arlington, VA
It made me realize we can be courageous even when we feel nervous and are doubting at times.

I guess that's enough rambling.. onto the calendar:

July 24th - TxNurseNoelle will be having translab somewhere in Texas? Noelle, if you read this, do you mind sharing where you're having your surgery? You mentioned you lived in a small town. I hope and pray all goes well with the surgery and NONE of the cardio stuff you've been dealing with is a hindrance in any way. I hope you can get the support and help you need post op. I hope someone can post for you and you can let us know how you're doing. All the best to you, Noelle.

There is nothing else listed on the calendar. Does anyone know if there's any other procedures, doc appts, etc? If so, please share.

From last week, I believe Helga has a postie update, and Donnalynn has shared about her MRA, and LADavid about his balance treatments.

The NYC people had a reunion luncheon (pictures available!) and the AN book club has started analyzing Henry's time travels.

There; done by midnight!
Have a good week,
Keri



1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

LADavid

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Re: this week (7/19) in the valorous world of AN
« Reply #1 on: July 19, 2009, 10:15:37 pm »
Tres Bon, Keri.  I like your headline.  It says a lot.  It is what we face before and endure everyday after and it is what sees us through.  As for me, I am finished with my in-clinic training -- now just dealing with the in-home regime for the next seven weeks.  Check the Balance Topic for updates.  And best wishes for a successful surgery, TxNurseNoelle -- you have a lot of Texas company --especially around Houston.


David
Right ear tinnitus w/80% hearing loss 1985.
Left ear 40% hearing loss 8/07.
1.5 CM Translab Rt ear.
Sort of quiet around here.
http://my.calendars.net/AN_Treatments

wendysig

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Re: this week (7/19) in the valorous world of AN
« Reply #2 on: July 19, 2009, 11:43:41 pm »
Keri,

Thanks as always for the update. 

David == Good to see you back == I hope your balance is improving!

Good luck Noelle== wishing you smooth sailing as possible and no complications

Keri -- I also realized I forgot to put my one year ANniversary  -- July 25,on the calendar thanks to your update and have added it to the calendar. It's hard to believe it's been almost a year. 

Wendy

1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

tenai98

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Re: this week (7/19) in the valorous world of AN
« Reply #3 on: July 20, 2009, 08:31:02 am »
Great job Keri  ;D

Welcome back LADavid...hope all goes well

good luck to Noelle....let us know how u are doing.

JO ;D
14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

NancyMc

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Re: this week (7/19) in the valorous world of AN
« Reply #4 on: July 20, 2009, 08:36:57 am »
Bon chance, Noelle!

I was supposed to have my neurotologist follow-up today, but as usual, I got bumped.  I've brushed it off til fall since we're finally having summer up here and I don't want to miss a day of it driving to Boston.
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

Kaybo

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Re: this week (7/19) in the valorous world of AN
« Reply #5 on: July 20, 2009, 08:57:14 am »
I think that Noelle is having surgery in San Antonio, but I could be wrong...Good luck and prayers for you & your family and the surgeons, Noelle.  Again, feel free to call me if you'd like...

K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

ppearl214

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Re: this week (7/19) in the valorous world of AN
« Reply #6 on: July 20, 2009, 12:03:26 pm »
good job Keri! you've been doing great! :)

sending noelle wellness wishes for this week... and for all those that may be having follow ups, just a bad day... or a good day......  :)

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

CHD63

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Re: this week (7/19) in the valorous world of AN
« Reply #7 on: July 20, 2009, 01:23:55 pm »
Keri .....

Thanks again for your well thought out words of encouragement to all!!

Noelle, my thoughts and prayers for a textbook surgery and quick recovery!

David, keep us up to date on how you are progressing with the balance study ..... alas, none of the study program sites were close enough to me to be practical to try to participate.  Not sure I was up to the task anyway ...... so glad you are able to do it!

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Jim Scott

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Re: this week (7/19) in the valorous world of AN
« Reply #8 on: July 20, 2009, 02:58:13 pm »
Keri ~

Thanks and appreciation for the weekly update, complete with a convoluted yet significant title. 

I join many others in wishing 'Nurse Noelle' a very successful and uncomplicated Translab surgery on Friday (24th). 

Happy 1-year ANniversary to Wendy.   

It's not on the calendar - but Happy Birthday to my lovely and gracious wife, Tina, on Tuesday (21st).  :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Keri

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Re: this week (7/19) in the valorous world of AN
« Reply #9 on: July 20, 2009, 07:49:47 pm »
Happy Birthday, Tina! Thanks for taking care of Jim so he can do a great job of helping us.

Keri
1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

wendysig

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Re: this week (7/19) in the valorous world of AN
« Reply #10 on: July 20, 2009, 11:40:14 pm »
Jim
Thanks for your happy anniversary wishes.  Please tell your wife I send my best wishes for a very Happy Birthday with many more to follow!   ;D

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

ppearl214

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Re: this week (7/19) in the valorous world of AN
« Reply #11 on: July 21, 2009, 06:18:06 am »
Jim, pls give that darling wife of your's a BIG hugglez (but, not quite a bear hug.... ;) ) with happy burpday wishes, filled with joy and love! :) 

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

leapyrtwins

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Re: this week (7/19) in the valorous world of AN
« Reply #12 on: July 21, 2009, 06:24:04 am »
Good luck, Noelle - hope all goes well.

Happy Annniversary, Wendy - hard to believe it's been a year already.

Jim, best wishes to Tina on her birthday.

Thanks for the great adjective, Keri - and the weekly update.  Good job.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

CHD63

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Re: this week (7/19) in the valorous world of AN
« Reply #13 on: July 21, 2009, 08:02:28 am »
                                 Birth-
                                             Hap-py
                                    day            Birth-
                        to                              to
         to                  you,            Dear            day      you!
            you,                              Tin-
   Birth-               Birth-                           a
Hap-py   day         Hap-py   day         Hap-py

Hope it is a good one!  Clarice

(formatting is messed up but the message is the same .....  ;D)
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

wendysig

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Re: this week (7/19) in the valorous world of AN
« Reply #14 on: July 21, 2009, 11:30:37 pm »
Hi Jan,

I hope you're well!  It is very hard believe almost a year has gone by in most ways, yet in others it seem longer.  This summer is a lot more fun than last summer was!   ;D

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!