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Author Topic: One-year MRI results  (Read 5345 times)

MAlegant

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One-year MRI results
« on: July 22, 2009, 11:02:47 am »
Hi all,
Sorry it's been a while--I've been out of the country but now am back. Yesterday had my one year MRI and the results were great.  Not even a shadow of a tumor left. Thank God.  I cried throughout the MRI (not good when you are laying on your back and can't move your head), which I guess means that I was pretty worried, even if I didn't acknowledge it.  Anyway, it's good news all the way around and I hope it gives all the newbies hope.  Last year to the day, I was under the knife.  Today, I am fine.  Some issues to deal with, but otherwise just fine.  I'm now training for a half-marathon in October if that gives you any indication of my physical recovery.  Of course I am turning 50 so that might be a mid-life crisis kind of thing.
Be well all,
Marci
« Last Edit: July 22, 2009, 01:28:08 pm by MAlegant »
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3cmx4cm trigeminal neuroma, involved all the facial nerves, dx July 8, 2008, tx July 22, 2008, home on July 24, 2008. Amazing care at University Hospitals in Cleveland.

cin605

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Re: One-year MRI results
« Reply #1 on: July 22, 2009, 12:17:26 pm »
Awsum news Marci!Congrats!
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Jim Scott

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Re: One-year MRI results
« Reply #2 on: July 22, 2009, 01:35:00 pm »
Hi, Marci - and welcome back!  I'll assume your time in Italy was well-spent and enjoyable.  :)

Congratulations on your 'clear' MRI scan.  These are always stress-inducing but you can now relax and celebrate.  Time pases quickly and we do heal and move forward.  I'm glad to learn that you've healed and certainly moved on with your life. As for turning 50, wait until you're my age (66).  From that vantage point, fifty will seem like it was your adolescence.  ;) 

Jim

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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Brendalu

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Re: One-year MRI results
« Reply #3 on: July 22, 2009, 01:59:53 pm »
Marci!

Great, great news!  Like my Momma used to say, "Fifty is nifty".  She also said that, "Sixty is sexty."  So I am looking forward to that nice number!  So congratulations on your MRI results and good luck in your marathon!  I don't see anything halfway at 13 miles!!
Brenda
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Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

sgerrard

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Re: One-year MRI results
« Reply #4 on: July 22, 2009, 02:05:36 pm »
Hey stranger,

Nice to see you back, and with good 1 year news to boot. The beach in Italy looks great, though I still like the hat picture best. :)

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

CHD63

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Re: One-year MRI results
« Reply #5 on: July 22, 2009, 02:37:50 pm »
Marci .....

Great news about the clean MRI!  .... and I agree, in the picture on the beach in Italy you look carefree and terrific!!

So sorry you will not be in Chicago ..... I really am looking forward to meeting my new friends on this ANA Forum.

Have to tell a fun story about turning 50.  On my 50th, my youngest son was a senior in high school and thought my turning 50 was hilarious.  I was the organist in a significantly large church at the time.  At the very end of the service he wheeled the church wheelchair down the aisle with a prominent sign on the back "Be sure to wish Clarice a Happy 50th Birthday!"  What a fun time afterwards.

Congrats on reaching a major milestone birthday!!!

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Syl

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Re: One-year MRI results
« Reply #6 on: July 22, 2009, 04:12:34 pm »
Marci:

Congrats on your 1 year anniversary and on the clean MRI results.

Syl
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1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

wendysig

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Re: One-year MRI results
« Reply #7 on: July 23, 2009, 07:25:11 am »
Hi Marci!

Welcome back and congratulations on your great news!!  I was just thinking about you the other day and wondering how you were and how your trip to Italy was.

Fifty is nifty!!!
Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Kathy M

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Re: One-year MRI results
« Reply #8 on: July 23, 2009, 04:45:13 pm »
Marci, that is fabulous news.  Go into your 50s with guns blazing!!!  Sounds like you've got plans to make them the best ever. 

Kathy
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AN diagnosed 11/14/08, 3+cm, Retrosigmoid 1/13/09, Univ. Hosp., Cincinnati, Drs. Tew and Pensak
no facial nerve or eye issues!
3 more surgeries related to staph infections & osteomylitis over next 13 months.  New diagnosis of breast cancer.  Treatment completed 08/27/10.  Moving on!!!

suboo73

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Re: One-year MRI results
« Reply #9 on: July 24, 2009, 04:22:46 am »
Marci,  OH HAPPY DAY - GREAT RESULTS ON THE MRI - CONGRATS!  ;D
I am SO happy for you!
All the best and yes - 50 IS NIFTY! 
Welcome back and show us more Italy pics when you have time.

Sincerely
Sue
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

Tumbleweed

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Re: One-year MRI results
« Reply #10 on: July 25, 2009, 12:25:47 am »
Great news, Marci! Congratulations!

Best wishes,
TW
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

NancyMc

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Re: One-year MRI results
« Reply #11 on: July 25, 2009, 06:05:09 am »
Hey, Marci!  I've been wondering if you'd made it back yet.  The photo is grand! 
Sometimes tears are the outlet for a flood of emotions, memories of a year ago when your nerves were exposed, literally as well as figuratively.  They are a great release.  Now you can move forward with the happy, healthy, new you.
Good luck with your training, and welcome back.
Nancy
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

cindyj

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Re: One-year MRI results
« Reply #12 on: July 28, 2009, 02:48:51 pm »
Hey, Marci!  Welcome back and great news on the clean MRI - can't believe it's been a year for you!

Happy soon-to-be 50 - I'm there with you in just a few weeks :D

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

jerseygirl

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Re: One-year MRI results
« Reply #13 on: July 28, 2009, 05:11:02 pm »
Congratulations, Marci! Hope your MRIs are forever clean!

           Eve
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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

satman

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Re: One-year MRI results
« Reply #14 on: August 03, 2009, 10:18:30 am »
awesome marci,nothing beats a clean MRI ,ok maybe a few things.
so glad to hear the great news.
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kicked my little 8cm buddy to the curb-c ya !
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