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Author Topic: Symposium Arrivals into Chicago - dinner Thurs Aug 13  (Read 54235 times)

ppearl214

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Re: Symposium Arrivals into Chicago - dinner Thurs Aug 13
« Reply #45 on: August 07, 2009, 06:03:06 am »
Hi all,
Pls note I walk with a cane and cannot walk distances. I may have to taxi if Gino's is determined for dinner. I can make do off their kids menu.

Updated List:


Captn Deb
Phyl
Kaybo/Dave
Saralynn and 2 girlies
CherylR
Sgerrard/Steve
DHM
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4cm in Pacific Northwest

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Re: Symposium Arrivals into Chicago - dinner Thurs Aug 13
« Reply #46 on: August 07, 2009, 08:31:18 am »
We need 5 more people if we want to reserve plus a taxi for those who need to ride there... or back to the drawing board with finding another restaurant :-\

Are there any other lurkers  ;) who are thinking about coming?

DHM
« Last Edit: August 07, 2009, 08:50:13 am by 4cm in Pacific Northwest »
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Cheryl R

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Re: Symposium Arrivals into Chicago - dinner Thurs Aug 13
« Reply #47 on: August 07, 2009, 08:49:06 am »
I bet there will be if keep mentioning it off and on.         I know some aren't arriving till Fri but there are alot of interneters compared to last symposium.                             Cheryl R
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  left tumor found 5-03,so have NF2
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   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

saralynn143

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Re: Symposium Arrivals into Chicago - dinner Thurs Aug 13
« Reply #48 on: August 07, 2009, 08:57:43 am »
Can we let symposium organizers know about the dinner? Maybe they'd like to come. For instance, wouldn't it be great if Jackie Diehls could do our very own private round table?

Just a thought . . .

Sara
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Kaybo

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Re: Symposium Arrivals into Chicago - dinner Thurs Aug 13
« Reply #49 on: August 07, 2009, 08:59:40 am »
Don't we already have at least 5 CONFIRMED?
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saralynn143

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Re: Symposium Arrivals into Chicago - dinner Thurs Aug 13
« Reply #50 on: August 07, 2009, 09:44:39 am »
We have 10 confirmed . . . need 5 more to book a party room.

sara
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
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salamander

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Re: Symposium Arrivals into Chicago - dinner Thurs Aug 13
« Reply #51 on: August 07, 2009, 09:49:14 am »
I'm lurking out here to see what the final decision is.  I will check with my daughter who is coming with me.  She's a vegetarian, so I'll have her look at the Gino's menu and then we'll decide.  I can let you know within a couple days.

In Lurk mode,

Samantha
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Kaybo

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Re: Symposium Arrivals into Chicago - dinner Thurs Aug 13
« Reply #52 on: August 07, 2009, 10:02:58 am »
my bad...I thought it only said we had to have 5 - that's what I get for checking on the fly while trying to pack 3 girlies for camp!

K
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

4cm in Pacific Northwest

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Re: Symposium Arrivals into Chicago - dinner Thurs Aug 13
« Reply #53 on: August 07, 2009, 10:11:02 am »
Quote from: saralynn143 on August 07, 2009, 08:57:43 am
Can we let symposium organizers know about the dinner? Maybe they'd like to come. For instance, wouldn't it be great if Jackie Diehls could do our very own private round table?

Just a thought . . .
Hey I would be just thrilled if Jackie Diels came for our Thursday informal dinner! Who can put the bug-in-her-ear so she will want to join us?  ;D

I personally need to thank her profusely for putting me in contact with my neuromuscular facial retraining therapist- Wanda Crook. (Wanda and Dr Ng, my Oculofacial Plastic Surgery, Ophthalmologist, have been the shining lights in this post op recovery journey when other medical practioners said little could be done or outright refused to help me. Because of these two - we are hopefully going to have a Portland Oregon neuroma muscular facial re-education clinic up and running at OHSU in the next few months here. Finally!!) Jackie was a catalyst there…

Back on thread here (sorry tangent overcame me)….

I am confident some lurkers will come forward to join us for Thursday’s supper and we will have at least 15 to book our own room for dinner… (And a taxi can be ordered for those who are not up to walking from the hotel to the restaurant.) We still have a few days to pull this together… I am confident it WILL come together.

Ok you lurkers it is time to come out now… Who else is joining us for Thursday’s supper?  ;D

Daisy Head Mazy (DHM) :)

« Last Edit: August 07, 2009, 10:39:16 am by 4cm in Pacific Northwest »
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4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

saralynn143

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Re: Symposium Arrivals into Chicago - dinner Thurs Aug 13
« Reply #54 on: August 07, 2009, 10:14:04 am »
Well, I have great news. One of Elbee's friends is coming along too. So that's ELEVEN and counting . . .

Sara
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

salamander

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Re: Symposium Arrivals into Chicago - dinner Thurs Aug 13
« Reply #55 on: August 07, 2009, 10:19:08 am »
Gee, I heard back from my daughter faster than I thought.  She must have been at her computer!

You can put me down for TWO for dinner at Gino's, extra napkins and straws.  

Samantha

p.s.  Since I don't know anyone, let me know when and where we should meet.  In the Lobby of the Drake?  At the restaurant?  If it is only a few blocks we can walk.
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2.9 cm right side AN;
Retrosigmoid/Sub-occipital surgery 11/08;
SSD(w/tinnitus), facial weakness, dry eye, eye weight, headaches.
Some movement of face at 7 months

saralynn143

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Re: Symposium Arrivals into Chicago - dinner Thurs Aug 13
« Reply #56 on: August 07, 2009, 10:21:33 am »
Samantha, will you and your daughter be going to the Field Museum as well?

Either way, that's THIRTEEN now for dinner.

Sara

insert subliminal message here: pink pink pink pink pink pink pink pink pink pink
Logged
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

salamander

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Re: Symposium Arrivals into Chicago - dinner Thurs Aug 13
« Reply #57 on: August 07, 2009, 10:24:55 am »
No, we are not going to the Field Museum.  I need to rest up for dinner after the drive to Chicago!!

Samantha
Logged
2.9 cm right side AN;
Retrosigmoid/Sub-occipital surgery 11/08;
SSD(w/tinnitus), facial weakness, dry eye, eye weight, headaches.
Some movement of face at 7 months

saralynn143

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Re: Symposium Arrivals into Chicago - dinner Thurs Aug 13
« Reply #58 on: August 07, 2009, 10:58:58 am »
Do we need to get advance tickets to the Pirate exhibit? If so, have we determined a time?

Sara
Logged
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Cheryl R

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Re: Symposium Arrivals into Chicago - dinner Thurs Aug 13
« Reply #59 on: August 07, 2009, 11:08:17 am »
Plus my husband wasn't on the list either as he will be with me for some events but not at the actual symposium.  I will pay extra for him to come to the banquet though.                    He gets to sightsee Sat.     
You can buy your tickets ahead online if know you are going to the museum for sure.      Otherwise just stand in line there at the ticket counter.                                             
Jackie is very friendly but think it would be hard at a restaurant for us all to hear her talk.         Alot of what she will tell you at the symposium is what is on her info on the bellspalsy website.
                                              Cheryl R
Logged
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care
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