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Author Topic: This Week 9/13 in the AN World  (Read 7056 times)

Rich56

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This Week 9/13 in the AN World
« on: September 13, 2009, 04:03:40 pm »
The leaves have begun to turn color here in Central New England, my favorite time of year.  The beautiful colors, cooler temperatures, and no bugs make for a very enjoyable season.

We have another fairly quiet week for procedures.

Sunday, Monday, Wednesday, and Friday are all open days on the AN Calendar.

Tuesday Steve will be celebrating his two year CK anniversary.  Steve, besides being one of our esteemed Global Moderators, you have been a lifeline to so many of us, HAPPY ANNIVERSARY

Thursday Vivian will be having her first W&W MRI follow-up.  We will keep you in our thoughts and prayers that the results show no further action needs to be taken.

Saturday is Rosh Hashanah.

For those that are recovering, prayers and good thoughts are sent your way.

Rich & Scarlett
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SML (Scarlett's) other half, she had - 1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid on 3/18/09 at MGH in Boston, MA. Dr. Barker & Dr. Lee of MGH/MEEI
no facial issues, SSD right side, balance issues to work on.
The AN Calendar is here: http://www.my.calendars.net/AN_Treatments

NancyMc

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Re: This Week 9/13 in the AN World
« Reply #1 on: September 13, 2009, 04:12:39 pm »
We're in denial about any leaves changing color up here, Rich.  Had a very pleasant summer day with a paddle out to an island for picnic lunch today.  So there!
Happy Anniversary, Steve!  Do you have annual MRIs, too?
Good luck, Vivian.  I remember those days.  Me, too, always in September since the very first (I'm sure you don't have this.  It's very rare.  I just have to check since it would be unethical not to.) was 9/19/01.  So many years I was granted a leap for joy when the results showed no growth.  Hope the same for you.
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

Jim Scott

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Re: This Week 9/13 in the AN World
« Reply #2 on: September 13, 2009, 04:31:45 pm »
Rich ~

Thanks for the AN Treatment Calendar synopsis.  You're right, it's an 'easy' week in AN-land.  I agree, the New England weather is gorgeous.  Too bad,winter follows. 

I wish Vivian a good MRI follow-up and a rousing happy 2nd CK anniversary cheer to my fellow moderator, Steve. 

Well, that was easy!

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

nancyann

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Re: This Week 9/13 in the AN World
« Reply #3 on: September 13, 2009, 05:03:50 pm »
Palm trees are still green in Miami !(had to throw it in !)
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

cindyj

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Re: This Week 9/13 in the AN World
« Reply #4 on: September 13, 2009, 05:38:44 pm »
Happy 2nd, Steve!  You are just a model CK patient!

Hope you hear good news, Vivian.  Let us know how it goes!

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

wendysig

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Re: This Week 9/13 in the AN World
« Reply #5 on: September 13, 2009, 07:13:37 pm »
Steve -- Congratulations on your upcoming two year CK anniversary.  Time flies when you're having fun, doesn't it?

Vivian -- I hope your visit to the TOG is uneventful and shows a stable tumor.  Wishing you good luck and no new growth.

Rich thanks as always  forthe update

Wendy

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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

suboo73

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Re: This Week 9/13 in the AN World
« Reply #6 on: September 14, 2009, 04:39:49 am »
Rich,

Thank you for the update!
Steve - best wishes on your 2nd year anniversary - awesome!

Vivian - My thoughts & prayers for an uneventful trip thru the TOG - keep us posted, ok?

----------------
I also read that Carrie is having an MRI today for returning symptoms - prayers all around that you find some answers and relief.
----------------------

No leaves 'officially' turning here in Virginia. However, the cooler days, and cool nights reminds us that Fall is here!

Sincerely,
Sue
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

Vivian B.

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Re: This Week 9/13 in the AN World
« Reply #7 on: September 14, 2009, 05:17:32 am »
Hi Everybody,

Thank you all for your good wishes. It means a lot. Steve, congratulations on your anniverssary. Carrie, hope everything is o.k.

Oh, here in Toronto, believe it or not, the weather is still warm. No leaf changes yet, but very cool breeze in the mornings and evenings.

Vivian
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CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.

tenai98

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Re: This Week 9/13 in the AN World
« Reply #8 on: September 14, 2009, 05:47:21 am »
Oh how I miss travelling from Ontario to Maine in the fall....(late hubby lived in Maine)....the trip was awesome with all the fall colors....many stops at roadside rest areas just to take in the beauty and pics.
congrats Steve.   wtg
good luck VIvian...my tub of gloom in next month for sixx month flollow up
Best wishes for all others going thru any treatments or follow ups...
Jo
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

leapyrtwins

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Re: This Week 9/13 in the AN World
« Reply #9 on: September 14, 2009, 06:26:12 am »
No leaves changing here yet.  In fact, summer seems to have finally found it's way to Chicago.  Yesterday the temps were in the high 70s - I actually got a sunburn at a Cubs' game - and today promises to be a steamy 86.

Happy Anniversary Steve.  Thanks for ALL you do here on the forum - you are a man who has a great way with words and with a knitting needle  ;D

Good luck in the tube of gloom Vivian and Carrie - I'm hoping the news is good for both of you.

Best,

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

sgerrard

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Re: This Week 9/13 in the AN World
« Reply #10 on: September 14, 2009, 09:12:36 am »
Thanks for the well wishes. I have celebrated this weekend by rebuilding my home computer, thanks to the invasion of a dreaded root kit. I am mainly posting so I can get my favorite links saved again. :)

Best wishes to Vivian. Nancy my last MRI was in March, and the next one is a year from now, an 18 month interval.

The fall forecast for Portland OR is cloudy with scattered sun breaks.  8)

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

4cm in Pacific Northwest

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Re: This Week 9/13 in the AN World
« Reply #11 on: September 14, 2009, 10:10:34 pm »
Happy 2nd Anniversary
Post treatment
STEVE!

Thanks for all that you do for others!

Here are some photos of Steve presenting to the Oregon PDX ANA support group where he did a presentation at Intel, in June, on
"How to use the ANA On-line discussion Forum"








... plus a small group shot of when some of his ANA buddies went out to lunch afterwards




Public speaker, poet, knitter , moderator, puppeteer ...  Yes he is a man of many hats  ;) ...and now drum roll please...

NEW PDX ANA Support Group CO-LEADER!!! (his training starts this Saturday  ;D )

Way to go Steve! You Rock!


Best wishes!

Signed Your PDX ANA buddy,

Daisy Head Mazy  ;D

I'll bet you are cursing yourself for teaching me how to use photobucket NOW ;) :D




« Last Edit: September 14, 2009, 10:18:32 pm by 4cm in Pacific Northwest »
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4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

ppearl214

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Re: This Week 9/13 in the AN World
« Reply #12 on: September 15, 2009, 08:05:41 am »
great Pics my Dazy Hazy Mazy! Thanks for sharing them! :)


First, for me to congratulate one of my moderating co-horts in crime for his 2nd year ANniversary..... well, "Nimble Fingers" Steve.... all I can say is WELL DONE!!!!!!!! Congrats on 2 yrs post CK!  A lovely feeling, isn't it? :)

Vivian, please keep us updated on the ToG visit this week. I KNOW you are going to do just fine!!!!! :)

...and as Rich noted, for those celebrating Rosh Hashana this week, I extend a very warm, hearty Shana Tova to you all! Happy New year... may it be filled with goodness, joy, terrific health and prosperity!

Ok, I'm done.
Phyl :D
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Kaybo

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Re: This Week 9/13 in the AN World
« Reply #13 on: September 15, 2009, 09:42:49 am »
I was watching something on the Disney channel with the Curly Girlies the other night and the mom and dad were sitting on the sofa - the mom was reading the paper and the dad was KNITTING!!!  I thought of you Steve!!

Love ya!
K  ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

yardtick

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Re: This Week 9/13 in the AN World
« Reply #14 on: September 15, 2009, 04:40:40 pm »
Happy Anniversary Steve  :-*

Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games
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