Author Topic: “6172 POST by Sept 24/09 (7.620 per day!!!)” HAPPY BIRTHDAY JAN AKA leapyrtwins  (Read 14830 times)

sgerrard

  • Hero Member
  • *****
  • Posts: 3475
Happy Birthday, Jan. ;)

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Jim Scott

  • Hero Member
  • *****
  • Posts: 7241
  • 1943-2020 Please keep Jim's family in your hearts
Jan ~

 No cute graphics or offers of food but I wanted to add to this thread by wishing you a sincere Happy Birthday

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Pooter

  • Hero Member
  • *****
  • Posts: 1291
  • The Official Breeze Conjurer - PBW
    • Blog Website
Happy Birthday, Jan!  Here's some birthday cake with candles on it for you... I had some left over.  ;)

Hope  you had a great day!

Regards,
Brian
Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

4cm in Pacific Northwest

  • Hero Member
  • *****
  • Posts: 1324
Gasp! Jan has not logged on since yesterday.... She is missing out on her party :-\   ;) ... and has not even logged in yet.

Where is Jan???

Jan? Jan? ... Are you there?

DHM  ;D
4cm Left, 08/22/07 R/S 11+ hr surgery Stanford U, Dr. Robert Jackler, Dr. Griffith Harsh, Canadian fellow Assist. Dr. Sumit Agrawal. SSD, 3/6 on HB facial scale, stick-on-eyeweight worked, 95% eye function@ 6 months. In neuromuscular facial retraining. Balance regained! Recent MRI -tumor receded!

nancyann

  • Hero Member
  • *****
  • Posts: 2251
  • carpe diem
Jan:  HAPPY BIRTHDAY to a much admired, much loved woman.
You are a special lady,  hope your MIA is due to fun times ! !

Wishing you much happiness ! !   Always good thoughts, Nancy
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

saralynn143

  • Hero Member
  • *****
  • Posts: 1822
  • Sarey Sarey Quite Contrary
    • MVD diary
Gasp! Jan has not logged on since yesterday.... She is missing out on her party :-\   ;) ... and has not even logged in yet.

Where is Jan???

Jan? Jan? ... Are you there?

DHM  ;D

I think she may have had one too many slices of my chocolate cake with spiked frosting.
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Thanks guys - you're the best!  ;D

I really appreciate the well wishes, the PMs, the emails - and the virtual party.  Although I might want a BAHA in my beer (my doc tells me that the new BP100 is waterproof - and I'd like one of those)  :D 

We'll have to plan a birthday party in honor of everyone at the the next ANA Symposium.  Can you even imagine how great that would be??

I was MIA because I was out shopping for my birthday present!  No, not that Jaguar I've always wanted.  No, not a Land Rover - or even a Range Rover  ;)  But a brand, spanking new dryer!!!  Not the birthday gift I was planning on, but at least it will match the washer I had to buy last month.

Jan

Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
My day was great - even though I would have preferred diamonds or pearls  ;D

There's definitely something to be said for clean, dry clothes though!
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

saralynn143

  • Hero Member
  • *****
  • Posts: 1822
  • Sarey Sarey Quite Contrary
    • MVD diary
"Foo foo la la" present? I've never heard that expression before.

I picked out my birthday present this year at the Chicago MicroCenter just before the symposium . . . a new Mac mini! The monitor on my beloved old igloo iMac was about to give out. I already had a keyboard, mouse and monitor, and the Mac mini was on clearance. Perfect solution.

My husband is terrible about picking out presents, which doesn't bother me a whole lot, because this way I always know I will like what I get. Hmmm, my fifteenth wedding anniversary is coming up in November. What shall I pick out then?

Sara

« Last Edit: September 26, 2009, 07:41:16 pm by saralynn143 »
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

saralynn143

  • Hero Member
  • *****
  • Posts: 1822
  • Sarey Sarey Quite Contrary
    • MVD diary
Jan! It just occurred to me that I should have brought potato peel pie to your party. Maybe next year?

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Potato peel pie doesn't sound very appetizing  :P   Think I'll stick to chocolate cake  ;D
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

tenai98

  • Hero Member
  • *****
  • Posts: 916
Sara
What the heck is potato peel pie????? Please send recipe....
JO
14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

saralynn143

  • Hero Member
  • *****
  • Posts: 1822
  • Sarey Sarey Quite Contrary
    • MVD diary
Jo - The book club is currently discussing The Guernsey Literary and Potato Peel Pie Society. It is a story, told in a series of letters and telegrams, about the German occupation of the Island of Guernsey during WWII. The residents of the island had very little to eat, both due to its isolation and because some of the German soldiers appropriated much of the locals' food for their use. The residents of the island had to become very resourceful and one of the dishes they invented during the occupation was potato peel pie.

My offer to Jan was tongue-in-cheek; I have never actually made a potato peel pie. But since I ought not to have put a private joke into another thread without explanation, I searched for a potato peel pie recipe for you and found this one:

Beat 2 egg whites until soft peaks form, fold in 2 cups grated and well drained potato peel(about 3 large potatoes). Add 1 teaspoon of dill weed. Press into greased pie plate leaving a deep impression in the middle. Bake at 400 for 25 minutes. Meanwhile boil the potatoes and one or two carrots or beets until soft in a small amount (1 cup or less) of salted water(sea water?). Mash well without draining adding 3 tablespoons sour cream and more dill and garlic if you have it. Mound in cooked pie shell, bake an additional 10 minutes. Top with a small handful of grated cheese. Can be served hot or cold.

Doesn't sound too yummy, and I imagine the islanders' version would have been simpler yet. I imagine the dairy products would have been scarce.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

lori67

  • Hero Member
  • *****
  • Posts: 3113
Jan,

I wish I had read this post sooner.  I just shipped you a dog for your birthday present.  I thought you said you wanted a Rover.   ???  I guess you can send him back and I'll send you a box of dryer sheets instead - then you'll have clean, dry AND static free clothes.  ;D

Sounds like you have enough virtual food sent your way - so I'll just help you virtually eat it all.  Except maybe the potato peel pie... :P

Hope you had a great birthday!
Lori, your partner in crime.....
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Lori -

please send the dryer sheets - I'm all out and could use some (would save me a trip to Walmart)  ;)

As for the "Rover", I'm still waiting for that pic-a-weiner that Kaybo promised me a few years ago.  I don't think the cats would like it, but it might stop the kids from whining about why I won't get a dog.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways