Author Topic: Another AN celebrity  (Read 15312 times)

ppearl214

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Re: Another AN celebrity
« Reply #30 on: October 08, 2009, 05:49:35 am »
we have heard many on these forums not note the actual size of their AN but will do comparison size of "it's pea size" or "it's the size of a golf ball", etc.   For publication purpose, its doubtful she is going to say "oh, mine was 6cm x 4cm", etc (not actual size for her's).    Regardless of what item she used to compare in size (and since none of us know what exact size it was), the publication used her quote of noting "grapefruit" size (we know how the press can be) and from what it sounds like..... it was deemed "large".... it was treatable (as best as it could be)...... it left her with residual issues (may they heal soon) and honestly, IMO, I embrace her for noting it.

doesn't matter what size it was (large or small).... she is now 3 yrs post treatment, still dealing with after affects and I send her healing hugglez for wellness. She now walks in our shoes and I commend her for publically noting her AN journey.

Just my 2 cents.
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

lori67

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Re: Another AN celebrity
« Reply #31 on: October 08, 2009, 11:21:14 am »
I totally agree with your 2 cents, Phyl.  We just like to keep our fruits in line.  There will be no grapefruits allowed inside of heads!  Grapes?  Yes.  Tangerines?  Perhaps.  Grapefruits and watermelons?  NO!     :D

Sorry, I think I've had too much coffee today!   :D

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

leapyrtwins

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Re: Another AN celebrity
« Reply #32 on: October 08, 2009, 09:49:13 pm »
Pssssssst.  Hey, Lori.  Halo's slipping again!  :D
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

TaylorsMom

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Re: Another AN celebrity
« Reply #33 on: October 08, 2009, 11:42:19 pm »
I wondered if anyone else saw it.  I was reading it at work and saw "brain tumor" and had to keep reading to see if it was an AN.  Sure enough.  If you wait till the next issue comes out, you can read it (I think) at people.com.  Taylor is doing well by the way.  Stressed out over Chemistry, but I would be, too.

ppearl214

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Re: Another AN celebrity
« Reply #34 on: October 09, 2009, 05:31:33 am »
continued wellness wishes to Tionne (T-Boz) and hope her concert (I think its this weekend) will be a happy moment for her.

As for Taylor's Chemistry class.... you can do it, m'dear! ;)

As for halo's slipping, I think putting velcro on Lori's head to keep it in place it the next step!  ;D

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

leapyrtwins

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Re: Another AN celebrity
« Reply #35 on: October 09, 2009, 05:58:47 am »
Perhaps we could attach Lori's halo to her BAHA abutment  8)

Taylor -  good luck in Chemistry!  You can do it - you're a very smart girl!

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

saralynn143

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Re: Another AN celebrity
« Reply #36 on: October 09, 2009, 06:15:30 am »
Perhaps we could attach Lori's halo to her BAHA abutment  8)

Or find a neurosurgeon willing to staple it in place.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

lori67

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Re: Another AN celebrity
« Reply #37 on: October 09, 2009, 11:21:29 am »
Ah, who needs a neurosurgeon?  We have a staple gun!!   :D
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

saralynn143

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Re: Another AN celebrity
« Reply #38 on: October 09, 2009, 02:28:47 pm »
Then I do not understand why your halo keeps falling off. Grab that staple gun, girl!

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

lori67

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Re: Another AN celebrity
« Reply #39 on: October 09, 2009, 04:15:52 pm »
I haven't stapled it on yet - I had no idea it would fall off so frequently! I guess you guys just bring out the best in me!   :D

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

leapyrtwins

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Re: Another AN celebrity
« Reply #40 on: October 09, 2009, 11:07:10 pm »
Don't worry about the halo, Lori.  You love ya just the way you are  ;D
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

salamander

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Re: Another AN celebrity
« Reply #41 on: October 10, 2009, 01:39:46 pm »
I found these out on the web.  They don't refer to fruit, but tell you a bit of her story:

http://www.digitalspy.com/music/a180419/tlcs-t-boz-talks-brain-tumour-diagnosis.html

http://tvoneblogs.com/thespin/?p=4781

Samantha
2.9 cm right side AN;
Retrosigmoid/Sub-occipital surgery 11/08;
SSD(w/tinnitus), facial weakness, dry eye, eye weight, headaches.
Some movement of face at 7 months

SML

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Re: Another AN celebrity
« Reply #42 on: November 02, 2009, 10:17:51 am »
T-Boz is interviewed about her AN and a new song... "Stronger than you know".
I don't know when it will be released, but I LOVE the title and I just may have to adopt this as my new theme song!

http://www.comcast.net/video/t-boz-s-brain-tumor-battle/1313634743/Comcast/1313496770/

Scarlett
SML(Scarlett)-Massachusetts
1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid 3/18/09 at MGH in Boston,MA.
Dr. Barker - Neurosurgeon, MGH - Dr. Lee - Neuro-Otology, MEEI
no facial issues, SSD right side, balance issues to work on.
Outstanding Surgeons, I'm very happy with the results.

lawmama

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Re: Another AN celebrity
« Reply #43 on: November 02, 2009, 12:54:59 pm »
I was a huge fan of TLC in middle/high school.  Her story was interesting and inspiring.  Thanks for the post!

Lyn
9mm X 7mm tumor (left side), diagnosed 10-15-09
Retrosigmoid on 12-14-09 by Drs. Antonelli and Lewis (my heroes!)
Shands in Gainesville, FL
SSD, but no facial issues.  Mild tinnitus.

ppearl214

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Re: Another AN celebrity
« Reply #44 on: November 02, 2009, 08:16:14 pm »
T-Boz is interviewed about her AN and a new song... "Stronger than you know".
I don't know when it will be released, but I LOVE the title and I just may have to adopt this as my new theme song!

http://www.comcast.net/video/t-boz-s-brain-tumor-battle/1313634743/Comcast/1313496770/

Scarlett

Hey Scarlett,

thanks for sharing this link. It was great to see Tionne (TBoz) and she's how she is doing now.. and her brief discussion re: her AN although they never mentioned it as an AN.  Thanks for sharing this and will continue to watch her come-back.

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"