Author Topic: My journal online - surgery Oct 28 at House and into recovery...  (Read 6391 times)

newmommyLA

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I wanted to invite all of you to read my story on caringbridge.com and to keep an eye on me as I go through what is certainly the scariest thing I've experienced so far in my life.  Feel free to sign my guest book which I'll be reading in the hospital and at home during recovery.  My plan is to update the journal often so that I can keep a record of this adventure hoping it will help me to acknowledge the progress I'm making.   I followed Cheryl's (Another NY Postie) journal as she went through the same procedure and it really did help me knowing what to expect.  Cheryl continues to be a source of constant support and full disclosure.  Thank you Cheryl!  I hope I can have a similar, positive effect on other AN patients here who are anticipating their own surgery or still considering treatment options. 

So please do not hesitate to send me a little message (or a big one if you prefer), to tell me a joke or any story that might take my mind off of myself for awhile, and especially don't be afraid to give me a swift kick in the pants if you notice that I'm getting discouraged.  I'm asking for it.  I know that I am stronger than I think I am most of the time.

Much love to you all,
Amy
http://www.caringbridge.org/visit/amycatherwood/guestbook
6mmx8mm AN rt side.  Mid-fossa surgery HEI House/Schwartz 10/28/09.  Temp facial paralysis (8 weeks), SSD, severe tinnitus & hyperacusis, tumor all gone.  12/23/09 cochlear nerve section (trying to reduce tinnitus) no major improvement on tinnitus. Trying biofeedback/neurofeedback for tinnitus.

Denise S

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Re: My journal online - surgery Oct 28 at House and into recovery...
« Reply #1 on: October 23, 2009, 12:48:09 pm »
 ;D
I know you already know this, but I for 1 GREATLY appreciate it.

You have a BEAUTIFUL family by the way!!
W&W 2 yrs. (due to watching other brain tumor: it's stable)
Left AN:  1.2 cm (kept growing during 2 yr.)MIDDLE FOSSA  11/9/09;  Michigan Ear Institute Dr. Zappia & Pieper
SSD, mild tinnitus, delayed onset of facial paralysis lasting 3-4 weeks, no tears AN side
BAHA surgery 10/2/12 Dr Daniels G.R.,MI

ppearl214

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Re: My journal online - surgery Oct 28 at House and into recovery...
« Reply #2 on: October 23, 2009, 02:14:04 pm »
Amy

will be following along and sending those healing hugglez right to you!  Thanks for sharing this with us (great pics!) and will be cheering you on!
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

another NY postie

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Re: My journal online - surgery Oct 28 at House and into recovery...
« Reply #3 on: October 23, 2009, 03:09:01 pm »
Go, Amy!!!! You know I am with you every step of the way...rest, rest, rest and stay tough!!
Cheryl
5 mm lateral IAC (impacted?) diagnosed 6-09-09
middle fosa 9/23 HEI - Brackmann/Schwartz
all tumor gone, facial perfect, no ringing
SSD on right side - Rockin' and Rollin'

Sue

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Re: My journal online - surgery Oct 28 at House and into recovery...
« Reply #4 on: October 23, 2009, 04:18:45 pm »
Best of luck to you on your surgery and your road to recovery. 

Sue in Vancouver, USA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Keri

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Re: My journal online - surgery Oct 28 at House and into recovery...
« Reply #5 on: October 23, 2009, 09:00:34 pm »
Best to you , Amy. Many here will be praying for you!
We look forward to hearing of your progress.
Take care,
Keri
1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

cindyj

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Re: My journal online - surgery Oct 28 at House and into recovery...
« Reply #6 on: October 24, 2009, 07:46:13 am »
Good vibes heading to LA for Wed, Amy!  It's a great place to be - you are in good hands.  When you are being wheeled down the hall with all the windows, remember that there are many here on the forum who've rolled down that same hall (you'll know the hall I'm referring to, especially if your surgery is in the afternoon).  I heard about it prior to my surgery, and it gave me an odd sense of confidence and calm knowing that many forum friends had been on that same hall and were all doing well...

I see from your Caring Bridge page that you have family/friends in Atlanta.  I'm just north of Atl, so if you ever get down this way, be sure to let me know.  We'll have a get together...there are a few of us here on the forum in Atl.  We won't expect you for a few weeks or so, though...take a little time to recover first ;)

Hoping for a speedy recovery for you,

Cindy
rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

moe

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Re: My journal online - surgery Oct 28 at House and into recovery...
« Reply #7 on: October 24, 2009, 11:35:49 am »
Will follow along and give you good vibes along the way.
Everything will turn out OK, you'll see :)
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

sgerrard

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Re: My journal online - surgery Oct 28 at House and into recovery...
« Reply #8 on: October 27, 2009, 01:41:19 am »
Best wishes, Amy. Don't worry if you don't feel so good on Thursday, it will take a few days to get back on your feet. You will do fine.

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

msmaggie

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Re: My journal online - surgery Oct 28 at House and into recovery...
« Reply #9 on: October 27, 2009, 05:19:34 am »
Good luck!  You are almost a postie, so hang in there and let the experts do their thing.

Priscilla
Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

newmommyLA

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Re: My journal online - surgery Oct 28 at House and into recovery...
« Reply #10 on: October 27, 2009, 08:55:00 am »
Thanks to everyone here for your constant support and encouragement!  It's hard to believe that only 6 weeks ago, I just found out I had an AN and what the heck it was.  I spent TONS of time on this site learning from other peoples experiences and finding the confidence I needed to confront this bugger once and for all.  I feel very lucky to have met a few of you in person, chatted with many of you online, and received messages of encouragement from many of you I've never had contact with.  This site rules and I couldn't have faced this surgery tomorrow without it!  I'm feeling pretty good about everything right now.  Very anxious to get the show on the road and to wake up a Postie!

Much love and thanks to all you great people!

Amy
6mmx8mm AN rt side.  Mid-fossa surgery HEI House/Schwartz 10/28/09.  Temp facial paralysis (8 weeks), SSD, severe tinnitus & hyperacusis, tumor all gone.  12/23/09 cochlear nerve section (trying to reduce tinnitus) no major improvement on tinnitus. Trying biofeedback/neurofeedback for tinnitus.

SML

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Re: My journal online - surgery Oct 28 at House and into recovery...
« Reply #11 on: October 27, 2009, 09:20:30 am »
Amy,

We're sending good wishes and prayers your way. Don't forget you need to take it nice and easy after surgery. We will be following your progress and cheering you on. Great pics! The magic scarf looks fab on you.. 8)

Scarlett and Rich
SML(Scarlett)-Massachusetts
1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid 3/18/09 at MGH in Boston,MA.
Dr. Barker - Neurosurgeon, MGH - Dr. Lee - Neuro-Otology, MEEI
no facial issues, SSD right side, balance issues to work on.
Outstanding Surgeons, I'm very happy with the results.

NancyMc

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Re: My journal online - surgery Oct 28 at House and into recovery...
« Reply #12 on: October 27, 2009, 11:02:54 am »
Best of luck, Amy.  Sorry I've been away and haven't chimed in before now.  With that teeny, weeny AN, it'll be a breeze.
Keep us posted.
Nancy
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

b91221b

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Re: My journal online - surgery Oct 28 at House and into recovery...
« Reply #13 on: October 27, 2009, 12:03:22 pm »
Prayers are with you...Looking forward to the good news in your next journal entry!
Barbara

nteeman

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Re: My journal online - surgery Oct 28 at House and into recovery...
« Reply #14 on: October 27, 2009, 01:27:18 pm »
Sending my best thoughts and wishes. I hope all goes smooth and you have an easy recovery.

Cheers,
Neal
Diagnosed 12/16/2008
AN 2.4 X 2.0 X 1.6 CM
surgery performed on 1/27/2009 Mt. Sinai Hospital, NYC
Dr.Bederson & Dr. Smouha
9:30am thru 5:50pm
http://www.facebook.com/neal.teeman