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Author Topic: More prayers needed  (Read 5879 times)

wendysig

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More prayers needed
« on: November 19, 2009, 12:58:43 pm »
Hi everyone,

My great  niece was born (in April) with a rare eye problem called aniridia -- she was born without irises.  There are two types of aniridia, one that affects only the eyes and another that affects the eyes and other organs.  Through genetic testing, it's been determined that luckily, the type she has only affects her eyes, but that is bad enough.  Although she has some vision, we're not sure how good it is since she's just a baby and she has high pressure in her eyes which can destroy her vision.  She has had several operations to relieve the pressure in her eyes and to put drains in them to keep the pressure down.  Things tend to stay under control for a while and they she needs more surgery.  You are all so good at pulling the power of prayer together, I hope you'll pray for my great niece that she's seen the last of an operating room for a good long time.  I saw a news piece about a doctor in California (Dr. Assill) who recently performed an operation on a young woman with this condition and we are trying to get in touch with him to see if he thinks he can help her.

Thanks,
Wendy
« Last Edit: November 19, 2009, 01:39:29 pm by Jim Scott »
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saralynn143

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Re: Morte prayers needed
« Reply #1 on: November 19, 2009, 01:17:37 pm »
Absolutely, Wendy - both requests for healing and prayers of thanksgiving, that she has the less severe condition.

Sara
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Jim Scott

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Re: More prayers needed
« Reply #2 on: November 19, 2009, 01:43:16 pm »
Wendy ~

I'm sorry to learn about your young niece and her struggle with aniridia.  Definitely a tough situation and worthy of prayer.  She'll certainly be in mine. 

Jim
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Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

wendysig

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Re: More prayers needed
« Reply #3 on: November 19, 2009, 02:02:37 pm »
Thanks Sara and Jim for your prayers.  Every prayer said for Lauren helps (Lauren Marie,, born 4/9/09).  She i s so adorable in every other way.  I'll post a picture when I find them (somewhere in my e-mail.).

Wendy
« Last Edit: November 19, 2009, 02:05:04 pm by Jim Scott »
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

ppearl214

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Re: More prayers needed
« Reply #4 on: November 19, 2009, 03:41:13 pm »
wendy,

MANY thoughts/prayers for little Lauren Marie. For such a tiny thing to endure such issues..... MAJOR good vibes her way for wellness. Please give her a BIG healing hugglez from me.

Phyl
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CHD63

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Re: More prayers needed
« Reply #5 on: November 19, 2009, 04:25:53 pm »
Wendy .....

It always wrenches my heart when I read of babies having such major health issues ..... just not fair.

My prayers for not only your sweet little great niece, but also for you, her parents, and her extended family, as well.  Tough time for everyone!

Clarice
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another NY postie

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Re: More prayers needed
« Reply #6 on: November 19, 2009, 05:17:24 pm »
Wendy, so sorry Lauren Marie has had to go through so much already.  I will definitely start praying for her.
CHeryl
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mandy721

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Re: More prayers needed
« Reply #7 on: November 19, 2009, 05:23:37 pm »
Wendy,
Lots of prayers and healing thoughts for your niece.  One of our neighbors in California was a lovely young woman who was also born without irises.  She moved to our neighborhood when she was in middle school and thrived in all the things she did.  I remember when she was young she always wore sunglasses and had vision coach.  Over the past few years, she had surgery on her eyes that improved her vision.  We haven't kept in touch with her family since we moved, but if Lauren Marie's parents would like to get in touch with her, I would be happy to  make that connection.
Mandy
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Kaybo

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Re: More prayers needed
« Reply #8 on: November 19, 2009, 10:55:48 pm »
Definitely praying for Lauren and all her family (you too) - thank you for letting us know about this so that we CAN pray!!

K
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Debbi

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Re: More prayers needed
« Reply #9 on: November 20, 2009, 07:51:07 am »
Adding my prayers, too.

hugs,
Debbi
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jerseyboy

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Re: More prayers needed
« Reply #10 on: November 20, 2009, 08:15:42 am »
Wendy,
Your great niece is in my prayers also.
Jeff
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JerseyGirl2

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Re: More prayers needed
« Reply #11 on: November 20, 2009, 08:47:30 am »
Wendy,

Your little great-niece and her/your family are in my thoughts and prayers. Sounds as though you're putting your thorough medical research skills to good use here, and I certainly hope that everything turns out well.

Catherine (JerseyGirl 2)
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Mickey

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Re: More prayers needed
« Reply #12 on: November 20, 2009, 08:58:22 am »
Hi Wendy! Many prayers coming your way. God Bless, Mickey + Pat
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pjb

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Re: More prayers needed
« Reply #13 on: November 20, 2009, 12:07:52 pm »
My prayers to your great niece and to you and your family..
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Keri

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Re: More prayers needed
« Reply #14 on: November 20, 2009, 02:22:52 pm »
It is so hard to see a little one suffer. Hope you're able to connect with the doctor and thanks for keeping us up to date. It's nce that we can share all types of concerns on here. and it's great that we support and pray for each other.

keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!
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