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Author Topic: Newbie from the UK  (Read 5996 times)

shabuck

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Newbie from the UK
« on: November 24, 2009, 03:21:49 pm »
Hi everyone, as you can see from my subject i'm from England and just happened to find this board... its amazing that there are so many of us when the odds in the uk are 13 in a million...
My AN was diagnosed 4 weeks ago, 2cm on my left side... I never knew I could have so many emotions in turmoil all at once and like all of you devastation was the first, but gradually you accept and do lots of research.
It didn't take me long to make my decision I just couldn't live with this invader in my head so my surgery is on the 3rd Dec at St Georges hospital in London.
I cant wait for the date to come but at the same time I am scared beyone recognition.... positive thoughts I know will keep me strong.
I have just started reading all your posts and the support from you guys to each other is fantastic.
I'm pleased to be part of your family... fingers crossed for the 3rd.
Sharon
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2cm left side.. surgery booked for 3rd dec 09. St Georges London - Professor Bell.

Jim Scott

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Re: Newbie from the UK
« Reply #1 on: November 24, 2009, 03:54:51 pm »
Hi, Sharon, - and welcome ~

I'm sorry you're the recipient of an acoustic neuroma diagnosis but glad you found this website, decided to register and post.   You're certainly among friends and definitely part of the family!

Your pre-op emotions are typical but your realization that thinking positive is helpful is wise and will help you through this situation, right along with our hopes and prayers for you on December 3rd.

I've taken the liberty of adding your surgery date to our AN Treatment Calendar  http://my.calendars.net/an_treatments/d03/12/2009?authenticate=&display=M&style=B

Please feel free to add anything pertinent.

Jim 
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

epc1970

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Re: Newbie from the UK
« Reply #2 on: November 24, 2009, 05:06:17 pm »
Hi Sharon
It's a little weird in this situation to say that I'm happy that you found us but under the circumstances I am happy that you found us. I hope that when you read about all of us post surgical patients that it will reassure you that your surgery will go great and that you will do well. My surgeon told me after I confessed that I was terrified of my surgery that he would be worried if I wasn't worried. It is so normal to be scared silly but there are many of us here who have gone thru what you are about to and have done just fine. I wish you the best of luck on December 3rd Sharon. Please let us know how you are doing when you are up to it.
Erin
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NancyMc

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Re: Newbie from the UK
« Reply #3 on: November 24, 2009, 05:56:48 pm »
Good luck on the 3rd, Sharon.
I emailed a postie who lives in London and asked her to PM you for encouragement.  I met her in Edinburgh in October, and if anybody can give you reassurance, she can.
I know she's really busy right now and hasn't been on the forum much lately from what I can tell, but she was an active regular for a good long time and very knowledgeable.
Nancy
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

nteeman

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Re: Newbie from the UK
« Reply #4 on: November 24, 2009, 07:03:08 pm »
Hey Sharon,

Been there and know exactly how you feel.  Best thoughts and wishes for you on December 3rd.  Look forward to reading happy posts once you are a postie. 
Good luck,

Neal
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Diagnosed 12/16/2008
AN 2.4 X 2.0 X 1.6 CM
surgery performed on 1/27/2009 Mt. Sinai Hospital, NYC
Dr.Bederson & Dr. Smouha
9:30am thru 5:50pm
http://www.facebook.com/neal.teeman

leapyrtwins

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Re: Newbie from the UK
« Reply #5 on: November 25, 2009, 02:36:33 pm »
Hi, Sharon.  Welcome to the Forum  ;D

You've come to a great place. 

Good luck with your surgery.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kiwi Don

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Re: Newbie from the UK
« Reply #6 on: November 25, 2009, 03:30:47 pm »
Hi Sharon,

Welcome the forum and the ANer's club.
We all know where you are at and wish you well for the upcoming surgery
Take Care.

Don
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24July09 Diagnoised with Left AN 2.0cm x 1.9cm
Translab Scheduled 7April10

"Received the Ticket, Boarded the Train, and now the Journey has begun??"

Mickey

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Re: Newbie from the UK
« Reply #7 on: November 25, 2009, 04:20:24 pm »
Best wishes for a speedy recovery on your surgery. Mickey
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shabuck

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Re: Newbie from the UK
« Reply #8 on: November 26, 2009, 07:12:57 am »
Thank you to everyone for their good wishes... today is 1 week and counting down..I cant imagine how i'm going to feel the day before the op, if anyone has any good ideas for remaining calm.. lets hear them..lol
Take care
Sharon x
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2cm left side.. surgery booked for 3rd dec 09. St Georges London - Professor Bell.

NancyMc

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Re: Newbie from the UK
« Reply #9 on: November 26, 2009, 08:24:44 am »
I cleaned the house like crazy, and I was very glad to have it to come home to post-op.  Also, I got out and did many of the things I knew I wouldn't be able to do post-op.  Enjoy yourself, most of all.  Don't sit around and worry.  Best of luck.
Nancy
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Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

suboo73

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Re: Newbie from the UK
« Reply #10 on: November 29, 2009, 06:31:45 am »
Sharon,

Another welcome to the Forum - but sorry you have to join this crazy club!   ???
As you are finding out, the folks here are FANTASTIC!

Prayers all around for a uneventful and successful surgery.
In the meantime, go have some fun and enjoy the moment!

Sincerely,
Sue


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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

moe

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Re: Newbie from the UK
« Reply #11 on: November 29, 2009, 10:29:24 am »
Hi Sharon,
Well wishes for a successful surgery and speedy recovery.
Will keep you in thought and prayer on the 3rd. Are you cleaning like mad?  ;) or shopping/wrapping like mad?
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

shabuck

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Re: Newbie from the UK
« Reply #12 on: November 29, 2009, 11:21:55 am »
 ;) deff not cleaning.. i'm lucky enough to have a wonderful daughter who insisted on coming over yesterday to do it all for me.. bless her. And I just cant get any enthusium for xmas shopping so will do it on line after the op.
Thanks for all your good wishes and prayers.
Love
Sharon x
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2cm left side.. surgery booked for 3rd dec 09. St Georges London - Professor Bell.

cherrypiper

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Re: Newbie from the UK
« Reply #13 on: December 04, 2009, 09:43:21 pm »
welcome in . ask away any questions you may have. there are a bunch of folks who know every thing about An, nad then some of us newer folks that can tell you how it has been the last year or two for us.

welcome in
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10 mm x 2.4mm surgery date 12/03/07

glad to be here

shabuck

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Re: Newbie from the UK
« Reply #14 on: January 09, 2010, 09:19:21 am »
Well 4 weeks after surgery.... cant say its been easy, quite a few complications but at least they got it all out. I was in hospital for 2 weeks.. great diet..lol
Any suggestions on eye problems and i'd love to hear them.
Any now the damn snow.... would love to get  out in the fresh air.
Had an amazing birthday thanks to all the nursing staff and my amazing family
Me thinks this is going to be a slow road to recovery.
Thanks for all your support
Sharon xx
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2cm left side.. surgery booked for 3rd dec 09. St Georges London - Professor Bell.
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