« previous next »
Pages: [1] 2

Author Topic: verdict is in!!!!! and so is Steve's hat!!!  (Read 5607 times)

tenai98

  • Hero Member
  • *****
  • Posts: 916
verdict is in!!!!! and so is Steve's hat!!!
« on: November 30, 2009, 12:16:01 pm »
Well then neurosurgeon doesnt believe the tumor has grown.  He said it was the way the radiologist read it...He also stated that he was very conservative going in to protect my facial nerve...The tumor is definitely a different shape..going from looking like a button mushroom to a football....He said he could have taken more of tumor out but didnt want to chance the facial nerve. And knowing that we had already discussed the radiation after surgery type thingy.  So we are going ahead with the radiation but not til after my trips and anothe MRI in May.  He said 'our' hospital has been approved for a cyberknife machine and that they just need the funding now...so hopefully in six months Ottawa will be the second Canadian city to have one.  He also said if it were his nuggin, he would go gammaknife or cyberknife...not LINAC.....and cyber over gamma...
So now, I put this all behind me until next MRI and then on to radiation....and all I know is that the transcript  (surgical) stated tumor size around 1.8-2.0cm...and until I get the reading from the next MRI, really wont know if it has grown...So on with life
JO
« Last Edit: November 30, 2009, 06:11:54 pm by tenai98 »
Logged
14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

Keri

  • Hero Member
  • *****
  • Posts: 1025
Re: verdict is in!!!!!
« Reply #1 on: November 30, 2009, 12:38:30 pm »
i was looking for you 'verdict' on the other post - glad i saw this one!
well, i wish you didn't have to gave any more treatment, but i'm glad it hasn't grown, and you can wait, and while you're waiting you may get the type of treatment you want there in Canada.
i'm glad you're relieved. and also so glad it didn't grow!
keri
Logged
1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

loose screws (tightened)

  • Jr. Member
  • **
  • Posts: 82
Re: verdict is in!!!!!
« Reply #2 on: November 30, 2009, 12:47:39 pm »
Some great news for a change. Congrats.
Mike
Logged
47 Y/O. diagnosed AN After MRI. 4X5X7mm within the right auditory canal. Slight hearing loss, ringing in ear, vertigo. Middle fossa with House Ear Clinics Dr Brackmann and Dr. Schwartz on 11-16-09. 6 new tightened titanium screws but no more hearing.
http://mikessurgery.blogspot.com/

yardtick

  • Hero Member
  • *****
  • Posts: 1321
  • I have to keep smiling, or else I WILL cry.
Re: verdict is in!!!!!
« Reply #3 on: November 30, 2009, 12:53:48 pm »
What a sigh of relief, breathe deep and enjoy your trips!

Anne Marie  :-*
Logged
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

lori67

  • Hero Member
  • *****
  • Posts: 3113
Re: verdict is in!!!!!
« Reply #4 on: November 30, 2009, 01:10:17 pm »
Great verdict!  Hope the wait didn't cause too much gray hair!

At least now you can relax a bit and enjoy your trips and your holidays!

I think you should start celebrating now!
Logged
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

CHD63

  • Hero Member
  • *****
  • Posts: 3235
  • Life is good again!!
Re: verdict is in!!!!!
« Reply #5 on: November 30, 2009, 01:43:29 pm »
JO .....

Big exhale .......  The doctor's explanation makes good sense and so glad you have the go ahead to take your trips!  Thanks for letting us know.

Clarice
Logged
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Jim Scott

  • Hero Member
  • *****
  • Posts: 7241
  • 1943-2020 Please keep Jim's family in your hearts
Re: verdict is in!!!!!
« Reply #6 on: November 30, 2009, 02:33:02 pm »
Jo ~

All I can do is extend my congratulations on the very good news!  I'm sure the relief you're feeling is like an early Christmas present.  Enjoy the next 6 months!.  :)

Jim
Logged
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

NancyMc

  • Hero Member
  • *****
  • Posts: 857
  • One year and all is well, almost.
Re: verdict is in!!!!!
« Reply #7 on: November 30, 2009, 03:14:35 pm »
Phew!
I was checking the other thread, too!
Go play now.
Logged
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

Debbi

  • Hero Member
  • *****
  • Posts: 1921
  • Originator of the Magic Scarf
    • Debbi's AN Blog
Re: verdict is in!!!!!
« Reply #8 on: November 30, 2009, 03:16:00 pm »
Good news!  You can officially enjoy the holidays now!
Logged
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

tenai98

  • Hero Member
  • *****
  • Posts: 916
Re: verdict is in!!!!! and so is Steve's hat!!!
« Reply #9 on: November 30, 2009, 06:13:59 pm »
Just arrived home and voila...A hat from Steve was in the mail....it is so soft and an awesome color...Thank you Steve...a great end to a great day.
JO ;D
Logged
14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

Kathy M

  • Sr. Member
  • ****
  • Posts: 317
  • Kathy
Re: verdict is in!!!!! and so is Steve's hat!!!
« Reply #10 on: November 30, 2009, 06:15:09 pm »
What a relief!  Couldn't come at a better time - holidays are here, trips in your future - live it up!!!!
Logged
AN diagnosed 11/14/08, 3+cm, Retrosigmoid 1/13/09, Univ. Hosp., Cincinnati, Drs. Tew and Pensak
no facial nerve or eye issues!
3 more surgeries related to staph infections & osteomylitis over next 13 months.  New diagnosis of breast cancer.  Treatment completed 08/27/10.  Moving on!!!

wcrimi

  • Sr. Member
  • ****
  • Posts: 331
Re: verdict is in!!!!! and so is Steve's hat!!!
« Reply #11 on: November 30, 2009, 07:06:33 pm »
Jo,

I'm very happy about this news, but it doesn't sound like the surgeon did a very good job of communicating to you initially after the surgery. 

Anyway, enjoy the holidays and you vacations. It sounds like everything is back under control.  ;D

Wayne 

Logged
1 cm, 6mm, 4mm on Left side. Surgery performed 11/6/2008 by Dr. Kalmon Post and Eric Smouha at Mt. Sinai Hospital in NYC.
Normal hearing before, 85%-90% now, dizziness when walking or turning head, annoying hissing and high pitched tinnitus on and off, eyes have trouble adjusting to rapid head move

anissa

  • Sr. Member
  • ****
  • Posts: 326
    • My Journey
Re: verdict is in!!!!! and so is Steve's hat!!!
« Reply #12 on: November 30, 2009, 07:32:30 pm »
Fabulous news!!!  Enjoy your trips and the holidays :)
Logged
Anissa
2/11/09 Diagnosed AN 2.1cm
2/26/09 Consult with Dr. Clough Shelton, U of Utah
4/1/09 Translab with Shelton & Couldwell
--little teensy bit of tumor or cells on facial nerve, stuck! No facial weakness, Rt side SSD
4/8/10 1-yr MRI, "Looks great!"

Adrienne

  • Full Member
  • ***
  • Posts: 199
  • I'm a postie now, and it feels so much better!
Re: verdict is in!!!!! and so is Steve's hat!!!
« Reply #13 on: November 30, 2009, 07:49:30 pm »
Well, I'm not so sure the news is 'fabulous', but it seems way less scary anyway.  I'm sorry you were mislead with how much was left behind.  How frustrating.

I AM glad and relieved that it's not how it appeared for a bit there......rapid growth. 

You have a great attitude!

(hugs)

Adrienne
Logged
3.0 x 3.0 x 2.5 cm AN, left side.  Diagnosed Feb. 19th,2009
Retro Sig surgery with Dr. Akagami and Dr. Westerberg on May 26/09 at Vancouver General Hospital
SUCCESS! Completely removed tumor, preserved facial nerve, and retained a lot of hearing. Colour me HAPPY!

Kate B

  • Hero Member
  • *****
  • Posts: 743
    • AN World
Re: verdict is in!!!!! and so is Steve's hat!!!
« Reply #14 on: November 30, 2009, 09:38:59 pm »
A Two-fer day:-)

Two good things in one day.
Logged
Kate
Middle Fossa Surgery
@ House Ear Institute with
Dr. Brackmann, Dr. Hitselberger
November 2001
1.5 right sided AN

Please visit http://anworld.com/
Pages: [1] 2
« previous next »