Author Topic: Infection is back - I am weary  (Read 30312 times)

nteeman

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Re: Infection is back - I am weary
« Reply #75 on: January 05, 2010, 09:49:10 am »
Kathy,

Some more good thoughts and best wishes.

Good luck,

Neal
Diagnosed 12/16/2008
AN 2.4 X 2.0 X 1.6 CM
surgery performed on 1/27/2009 Mt. Sinai Hospital, NYC
Dr.Bederson & Dr. Smouha
9:30am thru 5:50pm
http://www.facebook.com/neal.teeman

Sue

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Re: Infection is back - I am weary
« Reply #76 on: January 05, 2010, 11:23:01 am »
My positive energy is being sent your way also. 

Sue in Vancouver, USA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

lori67

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Re: Infection is back - I am weary
« Reply #77 on: January 05, 2010, 02:55:30 pm »
Hope to hear some good news!

We're all thinking of you today.

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

cyrmom2

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Re: Infection is back - I am weary
« Reply #78 on: January 05, 2010, 03:14:49 pm »
Hi Kathy.

Sending up lots of prayers for you today!  If you need anything prior to your stay in Columbus, just let me know.

Hugs,
Cyndi
diagnosed 7-27-09 4 cm CPA
12 hr translab 8-25-09
Dr Chicooca & Dr Welling at OSU/The James
sliver of tumor remains on brain stem
left SSD & facial paralysis (was 6/6, 2-3/6 at 9 weeks, 1/6 within 4 months) 6 month MRI on 3-17-10.

Debbi

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Re: Infection is back - I am weary
« Reply #79 on: January 05, 2010, 04:01:02 pm »
Hi Kathy-

Just wanted to add my well-wishes to everyone else's.  I hope that all goes well today.  You've certainly got a plateful of stuff to deal with - seems like you are way overdue for a break.

sending hugs and prayers,
Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Keri

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Re: Infection is back - I am weary
« Reply #80 on: January 05, 2010, 09:54:43 pm »
Kathy,
I add my well wishes and prayers to everyone elses.

Keri
1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

Kathy M

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Re: Infection is back - I am weary
« Reply #81 on: January 08, 2010, 08:28:03 pm »
Hello to all of you!  The first surgery of 2010 is now behind me.  Phew.   They kept me overnight (the last 2 were same day surgeries) this time.  My neurosurgeon removed all hardware - the plate, the screws, and mesh and did all he could do to clean things up.  They attempted to put in a PICC line in my right arm during surgery - but failed.  Since my PICC line was in that arm last Feb., they wanted the left arm, but can't go there because of the left side mastectomy on Jan 14th.  So, I came out of surgery with my head shaved in the back for the 4th time, lots of sutures and ugliness, and my right arn is unbelievably black and blue - the doctor who attempted (multiple times) for the PICC line apologized over and over to my husband afterwards and said that my veins kept collapsing and clotting.  Of course!

So, the next day, they took me to radiology to do a central line guided by ultrasound.  It is in the upper part of my chest on the right side and looks rather wicked.  But, the IV antibiotics are in my system 24/7 and if it gets rid of this infernal infection, I guess it will be well worth it.  The infectious disease specialist has spoken with my neurosurgeon's office several times over the past few days and he called me today to check on me.  He said after dealing with this infection for a year, he was going to be extremely & overly aggressive, making every effort to eradicate the infection once and for all.  In his heart of hearts, he said he thinks the infection must have been in the bone, although at a level that is not detected through blood cultures or sight.  He said that he wants the line in for 6-8 weeks and not to let anyone remove it without talking with him first!  I love his insistance and I am more than willing to adhere to his rules.

So, I am trying to rebound from this one and get ready for next Thursday.  My appetite is not great and my system has not fully gotten back into rhythm, but I feel better today than yesterday, so that is something.  Trying to keep my chin up and your posts and prayers are really helping.  My husband has been trained again by home health care to change iv bags and flush my central line.  He cleans my wound/incision 2 times a day, and this time we have to keep it wrapped for one week.  I'm telling you, he is quite the man.

I report to the oncology surgeon on Tuesday to be cleared for surgery on Thursday.  Assuming that I pass this assessment, I'll go in at 7:00am Thursday morning with surgery around 11:30.   

Well, that's the next passage for my AN/BC novel.  Thanks, again, for your presence in my life!  Not everyone would have hung on this long!!

Love,

Kathy
AN diagnosed 11/14/08, 3+cm, Retrosigmoid 1/13/09, Univ. Hosp., Cincinnati, Drs. Tew and Pensak
no facial nerve or eye issues!
3 more surgeries related to staph infections & osteomylitis over next 13 months.  New diagnosis of breast cancer.  Treatment completed 08/27/10.  Moving on!!!

pjb

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Re: Infection is back - I am weary
« Reply #82 on: January 08, 2010, 08:51:37 pm »
It is so good to hear from you my prayers and thoughts are constantly with you, you are truly an amazing woman and are so lucky to have a wonderful family. Could you please show your wonderful husband if possible I know he will have a million other things on his mind.  But if he can write to us on this site and keep us posted next week I am sure others as well as myself will be sitting here waiting on pins and needles as to how you are doing.

My thoughts and prayers are with you,

Pat
Diagnosed with a 1 cm. AN had Retrosigmoid
Approach surgery July of 2009, several problems after surgery.

Jackie

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Re: Infection is back - I am weary
« Reply #83 on: January 08, 2010, 08:57:42 pm »
Oh Hello Dearest Kathy,

You sure have a cheerful heart and I know with your spirit, you're going to make a full recovery soon! My prayers continue for you and your sweet wonderful hubby! Life is so much better with a loving caring devoted husband and I am so glad that you have that too! Bless you and your loved ones, may you sail right through surgery, and feel better soon! Looking forward to your having this all behind you and getting on with life and the fun that awaits you! Thinking and praying for you Kathy,
Jackie (in Oregon)
9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

texsooner

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Re: Infection is back - I am weary
« Reply #84 on: January 08, 2010, 08:58:18 pm »
Kathy, thanks for the update. Sorry to hear about the trouble with the PICC line, but otherwise sounds like you're doing well. I'll say it again...you are one strong lady. I'm sure in a few weeks, you'll be as good as new. We wish you good luck on the surgery for next week. Still pulling and praying for you.

Patrick
3.5cm left side AN; 11 hour retrosigmoid surgery 8/11/08 @ Memorial Hermann, Houston - Texas Medical Center with Drs. Chang and Vollmer; home on 8/13/08;
SSD(w/tinnitus); dry eye; Happy to be here and feeling good.

Kaybo

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Re: Infection is back - I am weary
« Reply #85 on: January 08, 2010, 08:59:18 pm »
Kathy~
SO glad to hear from you - I have been wondering!  My whole Wednesday Morning Ladies Bible Class is praying for you - feel the strength!

K   ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

leapyrtwins

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Re: Infection is back - I am weary
« Reply #86 on: January 08, 2010, 09:07:24 pm »
Kathy -

thank you so much for taking the time to update us.  We really appreciate it - especially in light of all you are going through.

Sounds like the infectious disease doctor is the right one to have in your corner.

My thoughts and prayers continue to be with you, your husband, and your daughter.  As Kay said, prayer is very powerful.

Best,

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

lori67

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Re: Infection is back - I am weary
« Reply #87 on: January 08, 2010, 09:09:20 pm »
Kathy,

You couldn't get rid of us if you tried!   :-*

I'm glad you made it through Round 1 of the adventures of 2010.  Hopefully you'll get lots of rest to get ready for Round 2.

I've never personally had a PICC or central line, but in my experience with patients with them,  I think you'll actually prefer the central line.  You'll have to let me know for future patients.

Thanks for keeping us in the loop.   Give that sweet husband of yours a big hug from the AN family!

Take care of yourself!  The prayers and good thoughts will continue!
Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

yardtick

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Re: Infection is back - I am weary
« Reply #88 on: January 08, 2010, 09:28:35 pm »
Kathy,

Sending lots of hugs and :-* :-* :-* :-*   A few for tour hubby too  :-* :-* :-* :-*


Anne Marie

PS I praying also for a success recovery!
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

cyrmom2

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Re: Infection is back - I am weary
« Reply #89 on: January 08, 2010, 10:42:37 pm »
It is so great to hear from you Kathy!  It sounds like things went well - other than your poor arm!  Try to eat more this week before you check in at the James.  The staff is AWESOME but I can't say the same for the food.  I'm close by and willing to make food runs for you and your family at any time.

We'll continue to pray for a successful surgery on the 14th and an easy recovery.

Hugs,
Cyndi
diagnosed 7-27-09 4 cm CPA
12 hr translab 8-25-09
Dr Chicooca & Dr Welling at OSU/The James
sliver of tumor remains on brain stem
left SSD & facial paralysis (was 6/6, 2-3/6 at 9 weeks, 1/6 within 4 months) 6 month MRI on 3-17-10.