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Author Topic: I did a no-no!  (Read 14765 times)

elliemae

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Re: I did a no-no!
« Reply #30 on: January 22, 2010, 02:35:52 pm »
Also late to this party!  Add my congrats to everyone else's, Phyl!
Let's have some chocolate to celebrate!! (oh, I started already...  ;D )

Elaine
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gingerbread6

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Re: I did a no-no!
« Reply #31 on: January 24, 2010, 05:18:28 am »
You go girl!!! That's great news Phyl.

Marie
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DR

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Re: I did a no-no!
« Reply #32 on: January 24, 2010, 03:32:01 pm »
Like many others I'm anxiously awaiting the news!
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AN right side 12mm x 9mm x 9mm
Middle fossa surgery 11/4/09 at House (Dr. Brackmann/Dr. Schwartz)
Tumor removed, no facial issues, hearing intact!
http://denvstumor.blogspot.com/

"The greatest trick the devil ever pulled was convincing the world he did not exist."

ppearl214

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Re: I did a no-no!
« Reply #33 on: March 13, 2010, 07:01:42 am »
UPDATE


Well, I promised you all the update... so... here goes.

1.  Hearing test.... still at 96% word recognition (what it was at time of CK). :)  Hearing remains the same... me likes that.
2.  Dr. Claus (my back up NS at Brigham/Woman's), once again, walked in, beaming ear to ear after reviewing my films and hearing test results....... well, what could she say?  AN "brain booger" is done.  She was VERY pleased to see that the CK worked for me.
3.  Chairi 1 Malformation remains stable.... no intervention needed at this time (w00t!).....
4.  She left it up to me as to when I should see her next.  Told her that since my 4 yr AN CK is upcoming, I wanted to do one more at the "yearly" schedule so, I wanted to do hearing test and follow up with her next year (for 5 yr ANniversary), then spread out from there.  She looked at her nurse, told her "Phyl is the boss, book accordingly".... and left, still grinning from ear to ear.

In 2 wks is the AN CK ANiversary, will see Beth Israel CK radio-onc in a few wks, to get his final impressions as well.... (which he already noted I'm a "done deal").... and will put this portion of my AN journey to bed.  

Me very happy! So, I thank you all for the love and support..... time to "rawk" :)

Phyl

« Last Edit: March 15, 2010, 05:44:00 am by ppearl214 »
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

sues1953

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Re: I did a no-no!
« Reply #34 on: March 13, 2010, 07:25:36 am »
AMEN  ;)

Sue in Michigan
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3.2 cm AN Right side diagnosed 12/4/09
Translab surgery May 2010 with Dr. Jack Kartush and Daniel Pieper at Michigan Ear Institute.
Successful surgery .5mm left on facial nerve.  Full facial movement. SSD, Tinnitis, tongue and lip numbness.  No headaches.  Back to living life.

Tod

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Re: I did a no-no!
« Reply #35 on: March 13, 2010, 07:29:34 am »
Rawk on! Great news to celebrate!

Tod
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Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

yardtick

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Re: I did a no-no!
« Reply #36 on: March 13, 2010, 12:25:47 pm »
Very good news.....time for chocolate cake!!!

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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Jim Scott

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Re: I did a no-no!
« Reply #37 on: March 13, 2010, 12:53:20 pm »
Phyl ~

Me very happy - for you!  ;)  Congratulations on the excellent test results.  You're good to go, now!  See you next month at Maxwell's in Worcester. 

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

nancyann

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Re: I did a no-no!
« Reply #38 on: March 13, 2010, 01:03:22 pm »
Go on with your bad self Phyl ! !   Great news,  couldn't have happened to a more wonderful woman ! !
Always good thoughts,  Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Cheryl R

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Re: I did a no-no!
« Reply #39 on: March 13, 2010, 02:04:15 pm »
Phyl, Super to see your update and the good news with it!     That news is what keeps us going and hope it keeps on!
                                                     Cheryl R
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Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

Kiwi Don

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Re: I did a no-no!
« Reply #40 on: March 14, 2010, 04:44:34 pm »
Hey Phyl,

Great news, it just goes to show you don't always get told off for doin something you shouldn't ;).
Enjoy the celebrations.
Always well wishes from the South Pacific

Don
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24July09 Diagnoised with Left AN 2.0cm x 1.9cm
Translab Scheduled 7April10

"Received the Ticket, Boarded the Train, and now the Journey has begun??"

Larry

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Re: I did a no-no!
« Reply #41 on: March 14, 2010, 07:51:19 pm »
Fantabulous news girly.

Laz
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2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
Chronologer of the PBW
http://www.frappr.com/laz

ppearl214

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Re: I did a no-no!
« Reply #42 on: March 15, 2010, 05:48:41 am »
Thanks all for the kind words and the cheering on... I really appreciate it.  Bloke came with me since it was a long day, knew I didn't want to cook dinner (I'm the only one in this house that cooks), so after the appt, he took me out for dinner and to my fave local ice cream shoppe, which had our fave flavor (Rock n Roll stew... chocolate ice cream base with anything thrown in ie: white and choc chips, mini marshmellows, gummy bears, pecans, etc... whatever the shoppe keeper has in the kitchen, different each time he makes it).

I shared the news with my mom and dad... needless to say, they were tickled pink.  They wanted me to have surgery.... I went with my gut (CK).... for me, my gut paid off.  I'm a very happy camper.

Thanks again all! Continued wellness wishes to you all!
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Mei Mei

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Re: I did a no-no!
« Reply #43 on: March 17, 2010, 08:27:23 am »
Congratulations, Phyl...You're an AN graduate and can party from now on.   May we call you Dr. Phyl?

Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

ppearl214

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Re: I did a no-no!
« Reply #44 on: March 17, 2010, 08:43:24 am »
Quote from: Mei Mei on March 17, 2010, 08:27:23 am
Congratulations, Phyl...You're an AN graduate and can party from now on.   May we call you Dr. Phyl?

Mei Mei

Ya know, Mei Mei... some folks here have already been using the term for my name... yet.... I'd like to remind everyone that I only play a dr on tv and did not sleep at a Holiday Inn Express last night! :)

Thanks for the congrats! The party continues :)  Although head MRI's will continue (as we all know) for the rest of my life to make sure no regrowths.... for this part of my AN journey, I am so dang thrilled its done.

Thanks again,
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"
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