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Author Topic: A MIRACLE!!!!  (Read 4794 times)

lauralynn

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A MIRACLE!!!!
« on: January 21, 2010, 04:56:36 pm »
Hello my AN friends,


Well those of you that read my post last week know that I've been feeling horrible since my surgery 4/14/09.  I could not say since that time had I had a day that I felt "good".  Well a miracle has happened and i am sooooooooo excited!  The day after I posted,  I actually felt good for the first time in 9 months!  I was apprehensive as to whether this was going to continue or not....but it's been a week and I feel the best I have since my surgery!  I'm so excited!!!  What has improved for me is that I have noticed a boost in my energy level.  It's not back to what it was of course but what a difference!  I saw my neurologist in late December and he told me it would be AT LEAST 6 months before i would notice a change in my energy level.  So all of those of you who have been and are praying for me.....Thank you!!!!  Now we just have to work on the numbness going away.  But for now I'm thrilled w/ the improvement of my energy.  Thank you all for your kind words and encouragement.  I'd be lost w/out this forum.

Your AN friend,

Laura Lynn Magin
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4 cm left AN/diagnosed 1/23/09
Translab 4/14/09
Cyberknife 7/09
Gold weight implant 8/09
Barrow Neurological Institute, Phoenix
Dr. Syms and Dr. Porter
Balance issues, 100% hearingl loss (left ear), tinnitus, facial numbness/pain,
chronic fatigue, weakness, eye issues

God Bless everyone

Jim Scott

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Re: A MIRACLE!!!!
« Reply #1 on: January 21, 2010, 05:14:03 pm »
Laura Lynn ~

Miracles do happen and of course, prayers are answered.  Congratulations!  Your news made my day!  :)

Jim

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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

tenai98

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Re: A MIRACLE!!!!
« Reply #2 on: January 21, 2010, 05:36:25 pm »
AWESOME!!!!!
JO
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

epc1970

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Re: A MIRACLE!!!!
« Reply #3 on: January 21, 2010, 05:52:41 pm »
Yay! See?? It just  does take time. You will soon get to a point where the "good days" start to outweigh the "bad days" and then the "bad days" are the exception not the norm. You are on your way Laura Lynn! This news made my day as well.
Erin
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lori67

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Re: A MIRACLE!!!!
« Reply #4 on: January 21, 2010, 06:17:57 pm »
Laura,

I'm so happy to hear you had a good week!  I hope it continues!

I think maybe it was a combination of the numerous prayers said for you and maybe you just needed to vent a little to people who know exactly how you feel.  Whatever did the trick, I'm glad it did.

It's sure been a long road for you, but sounds like some of the potholes are filling in nicely!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Jackie

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Re: A MIRACLE!!!!
« Reply #5 on: January 21, 2010, 06:21:40 pm »
Lauralynn,

We love to hear about ANSWERED prayer! Good news, that you are feeling better! i am very happy for you and hope that the feeling good gets even better!
Blessings,
Jackie in oregon
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

moe

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Re: A MIRACLE!!!!
« Reply #6 on: January 21, 2010, 07:24:54 pm »
Lauralynn,
So happy for you! The AN journey is interesting, isn't it? Hope this trend continues.
Still get your needed rest, okay? ;)
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

knakag01

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Re: A MIRACLE!!!!
« Reply #7 on: January 21, 2010, 07:28:04 pm »
Laura,
This is wonderful!!! Congrats!

Kim
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Kim
1.9cm x 1.2cm AN Right side
Diagnosed 11/09
Translab with Dr. Jackler @ Stanford on 5/20/10
Facial Paralysis (temp) & SSD Right side, some balance issues but not as bad as I thought :)

jaylogs

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Re: A MIRACLE!!!!
« Reply #8 on: January 21, 2010, 09:38:51 pm »
Great news indeed Laura!!! This should help give all us newbies and future newbies hope in cases like yours...this is why I am so thankful for this forum!
Jay
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8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

Wwoodian

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Re: A MIRACLE!!!!
« Reply #9 on: January 22, 2010, 12:34:47 am »
Yay!  So happy for your!  Also, you do give those of us still struggling hope-- you are an inspiration. 
Jill
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Diagnosed with 1 cm AN on 10-28-09
Middle Fossa surgery on left side 11-20-09
Dr. Friedman and Dr. Schwartz at House Clinic in LA.
No hearing loss or facial nerve problems
Severe double vision and bouncy vision
Yahoo!  Double Vision gone after 3 months!
Did a full marathon 1 1/2 yrs after surgery!

msmaggie

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Re: A MIRACLE!!!!
« Reply #10 on: January 22, 2010, 06:31:36 am »
So glad you are able to rejoice in what feels like a perfectly "normal" day!  We who have endured the not so normal days know how amazing it is to feel like we are up to snuff again.  Congrats!

Priscilla
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Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

ppearl214

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Re: A MIRACLE!!!!
« Reply #11 on: January 22, 2010, 06:39:13 am »
LauraLynn.....

 :)  :)  :)  :)  :)

You KNOW my mantra.... "day by day, inch by inch....."...... wishes that this continues and that today is a good day! Well done!

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

wendysig

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Re: A MIRACLE!!!!
« Reply #12 on: January 23, 2010, 11:19:46 am »
LauraLynn,

Great news! I'm glad to hear that you've turned that corner and are starting to truly feel better.  I hope things continue to improve more quickly but don't forget to listen to your body and take care of yourself.  The healing process requires PATIENCE!  Recovery from this surgery is truly a lesson in patience.

Best wishes,
Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

pjb

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Re: A MIRACLE!!!!
« Reply #13 on: January 23, 2010, 03:40:38 pm »
So glad to hear and promising for me I am at 6 months after my surgery and I now feel confident that by 9 months I feel that you have given me hope... thank you

Best Wishes,

Pat
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Diagnosed with a 1 cm. AN had Retrosigmoid
Approach surgery July of 2009, several problems after surgery.

gingerbread6

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Re: A MIRACLE!!!!
« Reply #14 on: January 24, 2010, 05:22:07 am »
That's great news Laura Lynn. I hope and pray that each day you feel better and better.

Gingerbread 6
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