Author Topic: NY/NJ Area ANers - Mark Your Calendars!  (Read 9890 times)

Debbi

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #15 on: February 09, 2010, 01:09:56 pm »
G-man - great!  You'll get to meet some great people and we'd all love to meet you.  Hopefully Mickey will be there.  He's another W & W like you.  As we get closer, I'll PM everyone with my cell phone (except JTD who's already got it!  ;D)  And, Joe, Willie said he's totally in for the beer!
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

jtd71465

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #16 on: February 09, 2010, 06:06:01 pm »
NJ Transit here I come....
Right side AN removed 1/10/07 @ NYU Medical Center
Dr's Roland and Golfinos

Debbi

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #17 on: February 23, 2010, 07:59:31 am »
Okay, just a quick head count.  So far, here’s the roster…

Debbi and Willie
Wcrimi (Wayne) and Patty
JerseyGirl (Eve)
Ombrerose4 (Lauren)
Nteeman (Neal)
Mickey (Mike) and Pat
Jdt71465 (Joe)
Another NY Postie (Cheryl)
G Man (Glen)
Wendysig (Wendy) and Rob
Ken and Miranda
Kevin and Carol

If I've missed anyone, please shout out.  And, if you haven't replied or are "on the fence" - what are you waiting for??  All are welcome.

Debbi
« Last Edit: April 09, 2010, 12:04:45 pm by Debbi »
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

saralynn143

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #18 on: February 23, 2010, 11:03:00 am »
Wow, sounds like a great time and I would love to fly in, but with a college graduation May 8, confirmation May 9 and middle-school graduation May 16 I don't think I can fit in a trip to New York. So sad. Hope you all have fun.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

wcrimi

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #19 on: March 05, 2010, 01:03:11 pm »
Debbi,

My girlfriend Patty is likely to come also.  So you can add her to the list.

Wayne
1 cm, 6mm, 4mm on Left side. Surgery performed 11/6/2008 by Dr. Kalmon Post and Eric Smouha at Mt. Sinai Hospital in NYC.
Normal hearing before, 85%-90% now, dizziness when walking or turning head, annoying hissing and high pitched tinnitus on and off, eyes have trouble adjusting to rapid head move

Debbi

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #20 on: March 10, 2010, 06:50:35 pm »
She is added and I am looking forward to meeting you both! 

We have several anniversaries to celebrate (mine included, come to think of it - f/up MRI on Apr 27). 

Let's get the party hats out!  I hear Joe D is bringing the tee-shirts and buying beer for everyone (just checking to see if you are reading this, Joe...)

Debbi ;)
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

jtd71465

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #21 on: March 11, 2010, 09:08:10 am »
If everyone is me and Willie then yes....everyone!!!
Right side AN removed 1/10/07 @ NYU Medical Center
Dr's Roland and Golfinos

a.m.

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #22 on: March 13, 2010, 06:22:43 pm »
i'd love to meet everyone! i may be getting surgery around that time but if all is going well i'd love to come ;)
diagnosed feb. 6, 2009

retrolab april 2, 2009
new york eye and ear / st vincent's
dr. linstrom and dr. murali
ssd, no tears

translab may 5, 2010
nyu medical center
dr. lalwani and dr. parker

doing great!

Debbi

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #23 on: March 16, 2010, 08:17:30 am »
A.M. - hope you can join us on the 2nd.  You may also want to consider attending the ANANJ mini-symposium on April 18 - details here:  http://www.ananj.org/Acoustic_Neuroma_Meetings.shtm  It's at Summit Medical Group in Berkley Hts, NJ.

Look forward to meeting you.

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

mandy721

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #24 on: March 16, 2010, 08:42:05 am »
Debbi,
Please add Ken and me to the list.
Miranda
Husband diagnosed 5/30/09 with 3.2cm right AN
Surgery at  Columbia Presbyterian 8/4/09
Platinum eye weight implant - 8/17/09
17 days in hospital and rehab
SSD, facial weakness, some tinnitus, headaches , balance and eye problems

Debbi

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #25 on: March 16, 2010, 03:44:30 pm »
Okay, with Ken and Miranda, we're at 17. 

Miranda, I'm so glad you and Ken are coming - it will be good to see you both again.

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

leapyrtwins

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #26 on: March 18, 2010, 09:08:59 pm »
A.M. - hope you can join us on the 2nd.  You may also want to consider attending the ANANJ mini-symposium on April 18 - details here:  http://www.ananj.org/Acoustic_Neuroma_Meetings.shtm  It's at Summit Medical Group in Berkley Hts, NJ.

New Jersey has their own Acoustic Neuroma Association.  How cool is that?

Clicked on the link and there is lots of informative stuff - for example, the info on the BAHA.

Now, I'm not only jealous that you guys get together for parties, but that you have your very own association.

Jan - crushed in Illinois
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kaybo

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #27 on: March 18, 2010, 09:12:06 pm »
don't feel too bad Jan - I'm out here all by myself too.../

K   :-\
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

jtd71465

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #28 on: April 02, 2010, 04:10:18 pm »
one month and counting....
Right side AN removed 1/10/07 @ NYU Medical Center
Dr's Roland and Golfinos

JerseyGirl2

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Re: NY/NJ Area ANers - Mark Your Calendars!
« Reply #29 on: April 06, 2010, 08:59:48 am »
Debbi and Wendy,

I've just learned that I'm not going to be able to attend on May 2 -- will be in Nashville with my Mother, who's having some health issues.

I'll miss seeing all of you and catching up on everyone's progress, but will look forward to joining you next time (sometime in the Fall?).

Thanks, as always, to Debbi and Wendy for all the organizing. Be sure to take lots of pictures!

I know that a good time will be had by all, and sincerely hope that any newcomers will be encouraged by all the good cheer that this group provides!

Take care,

Catherine (Jersey Girl 2)
Translab surgery and BAHA implant: House Ear Institute, Los Angeles, 1/2008
Drs. J. House, Schwartz, Wilkinson, and Stefan
BAHA Intenso, 6/2008
no facial, balance, or vision problems either before or after surgery ... just hearing loss
Monmouth County, NJ