Author Topic: Did SSD Hearing Device help with Tinnitus???  (Read 13842 times)

Denise S

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Did SSD Hearing Device help with Tinnitus???
« on: February 06, 2010, 12:49:00 pm »
This question is more aimed towards those post surgery that had SSD and tinnitus.

If you have had both and got a Hearing Device, have you noticed it helping decrease the tinnitus??

I ask this after reading something on a website www.askdocweb.com/tinnitus.html


W&W 2 yrs. (due to watching other brain tumor: it's stable)
Left AN:  1.2 cm (kept growing during 2 yr.)MIDDLE FOSSA  11/9/09;  Michigan Ear Institute Dr. Zappia & Pieper
SSD, mild tinnitus, delayed onset of facial paralysis lasting 3-4 weeks, no tears AN side
BAHA surgery 10/2/12 Dr Daniels G.R.,MI

leapyrtwins

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Re: Did SSD Hearing Device help with Tinnitus???
« Reply #1 on: February 06, 2010, 01:40:52 pm »
I am SSD and have a BAHA.  Fortunately, I don't suffer from tinnitus - didn't prior to my surgery either.

My doc told me that a BAHA wouldn't affect tinnitus either way.  Wouldn't cause it, wouldn't eliminate it, wouldn't make it worse.

But that was just a BAHA.  I don't know about conventional hearing aids.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

JerseyGirl2

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Re: Did SSD Hearing Device help with Tinnitus???
« Reply #2 on: February 07, 2010, 11:29:07 pm »
This question is more aimed towards those post surgery that had SSD and tinnitus.

If you have had both and got a Hearing Device, have you noticed it helping decrease the tinnitus??


I am SSD and had tinnitus before and after surgery. I wear a BAHA and it has no effect whatsoever on tinnitus. I understand that many doctors want to make sure that patients who are considering BAHAs, TransEars, etc. fully understand that these devices will not "cure" their tinnitus issues. On the other hand, they don't make the tinnitus any worse!

Catherine (JerseyGirl 2)
Translab surgery and BAHA implant: House Ear Institute, Los Angeles, 1/2008
Drs. J. House, Schwartz, Wilkinson, and Stefan
BAHA Intenso, 6/2008
no facial, balance, or vision problems either before or after surgery ... just hearing loss
Monmouth County, NJ

Shelley G

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Re: Did SSD Hearing Device help with Tinnitus???
« Reply #3 on: February 08, 2010, 12:30:54 am »
I am trying out a conventional hearing aid- had it about 2 weeks now-  I have about 25% hearing in my right ear. I now have tinnitus after having gamma knife- but did not before. I was afraid the hearing aid would make the noise worse, but it doesn't- the noise gets louder as the day goes on- some nights just feels like its screaming, which makes hearing more difficult because of the distraction it causes, but overall doesn't appear to be interfering with the sounds and speech I now realize I was missing.
2.9cm
Gamma Ray Knife Surgery April 2009
25% hearing in right ear- conventional hearing aid Jan/10
balance issues- but getting better

sunfish

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Re: Did SSD Hearing Device help with Tinnitus???
« Reply #4 on: February 22, 2010, 12:20:15 pm »
I'm still "pre-treatment."  But I've had a hearing aid for six months, and it gets rid of my mild tinnitus completely.  The only time I have tinnitus is at night, when I take the hearing aid off.
Rt. side 14mm x 11mm near brain stem
Severe higher frequency hearing loss
I use a hearing aid (Dot 20 by Resound)
Balance issues improving!!!!
Cyberknife March17, 2010
Roper Hospital Cancer Center, Charleston, SC

Mei Mei

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Re: Did SSD Hearing Device help with Tinnitus???
« Reply #5 on: February 24, 2010, 11:44:04 am »
What hearing aid is this that gets rid of the tinnitus?   This is very interesting?

Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

moe

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Re: Did SSD Hearing Device help with Tinnitus???
« Reply #6 on: February 24, 2010, 11:59:25 am »
I wish there was a hearing aid that gets rid of tinnitus!
I had the BAHA put in with the surgery, because I knew I would lose my hearing. Tinnitus before surgery worsened after surgery with the SSD.
I don't think the BAHA made the tinnitus worse. It was already pretty screamy.
SO I have the BAHA on hold right now. Abutment unscrewed, but can be activated again when I feel up to it.

So my answer Denise is- I was just more keenly aware of my severe tinnitus with my BAHA after surgery! :o I'm willing to try it again tho some day.
Maureen :)
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Mei Mei

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Re: Did SSD Hearing Device help with Tinnitus???
« Reply #7 on: February 24, 2010, 02:29:10 pm »
Yes, I agree, Moe, that tinnitus gets worse after the AN surgery.  My tinnitus was mild before the surgery, but now that I am deaf in the AN ear it got much louder.  Sunfish said that she got a hearing aid that makes the tinnitus softer which is the first I've ever heard anyone on this site ever mention this happen.  I'd love this to happen but know for sure it won't happen with the BAHA.
I guess you can't wear them in combo, can you?

Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

JerseyGirl2

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Re: Did SSD Hearing Device help with Tinnitus???
« Reply #8 on: February 24, 2010, 05:19:34 pm »
Yes, I agree, Moe, that tinnitus gets worse after the AN surgery.  

I think this must be very individualized. My tinnitus was mild pre-surgery and has remained mild two years after my translab surgery.

Catherine (JerseyGirl 2)
Translab surgery and BAHA implant: House Ear Institute, Los Angeles, 1/2008
Drs. J. House, Schwartz, Wilkinson, and Stefan
BAHA Intenso, 6/2008
no facial, balance, or vision problems either before or after surgery ... just hearing loss
Monmouth County, NJ

Pooter

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Re: Did SSD Hearing Device help with Tinnitus???
« Reply #9 on: February 24, 2010, 05:37:44 pm »
Definitely individualized because I had moderate before surgery and I hardly notice it now..  It's louder to me at bedtime and there are no other sounds..

Regards,
Brian
Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

Denise S

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Re: Did SSD Hearing Device help with Tinnitus???
« Reply #10 on: February 24, 2010, 07:59:33 pm »
When I have read on tinnitus, I seen where sometmes Hearing aids or devices may help with it.  That's why I ended up posting it here to see if anyone has noticed that.   Looks like really only 1 has had that.   Just found it interesting  ;)
W&W 2 yrs. (due to watching other brain tumor: it's stable)
Left AN:  1.2 cm (kept growing during 2 yr.)MIDDLE FOSSA  11/9/09;  Michigan Ear Institute Dr. Zappia & Pieper
SSD, mild tinnitus, delayed onset of facial paralysis lasting 3-4 weeks, no tears AN side
BAHA surgery 10/2/12 Dr Daniels G.R.,MI

sunfish

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Re: Did SSD Hearing Device help with Tinnitus???
« Reply #11 on: February 26, 2010, 05:34:32 pm »
I don't think my situation can be compared to yours all that well.  I still have plenty hearing in that ear - mixed hearing loss.  I have moderate conductive loss due to injury or otosclerosis, as well as sensory-neural loss from the AN.  I use the new Dot(squared) 20 by ReSound, which helps overcome the conductive loss, but won't do a darn thing for the loss from the AN.

I have regular tinnitus, as well as a weird, whistling noise when I shake my head, which no one can seem to explain.
Rt. side 14mm x 11mm near brain stem
Severe higher frequency hearing loss
I use a hearing aid (Dot 20 by Resound)
Balance issues improving!!!!
Cyberknife March17, 2010
Roper Hospital Cancer Center, Charleston, SC

mellowrama

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Re: Did SSD Hearing Device help with Tinnitus???
« Reply #12 on: February 27, 2010, 02:45:04 pm »
I'm SSD with both tinnitus and hyperacussis since translab surgery Sept 09. 

Had my full hearing with no tinnitus prior to surgery...both the tinnitus and hypercussis has about driven me nuts over the last few months.
Since I've started wearing the BAHA in Jan the sound issues are not as noticeable, however, I doubt that it has to do with the baha as much as healing and getting used to it.  My doc (Dr. Friedman) said he thought the tinnitus and hypercussis would ease up over time.
22mm x 19mm x 12mm CyberKnife  9/25/2006 BNI Dr. Daspit/Dr. Smith/Dr. Brachman
Failed radiation - regrowth to 2.6cm 
Translab Surgery w/ House Docs 8/26/2009 Dr. Friedman, Dr. Schwartz, SSD, tinnitus. 
Baha surgery with Dr. Baker in OKC nov 2009
Baha revision surgery by Dr. Horn in ABQ 8/2011

Denise S

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Re: Did SSD Hearing Device help with Tinnitus???
« Reply #13 on: February 28, 2010, 12:16:40 pm »
http://www.ata.org/for-patients/treatment#Amplification

http://www.askdocweb.com/tinnitus.html

Here are 2 of the multiple sites that mentioned hearing aids "possibly" helping with tinnitus.   Seems like all say about the same thing and not positive if it would be referring to the bone conduction aids too.  It mentions something about the frequency of the tinnitus, not sure how that is measured...??????   

So, that is why I threw this question out there to check peoples history and thoughts to the subject.

Thanks for the replies!   ;)

Denise
W&W 2 yrs. (due to watching other brain tumor: it's stable)
Left AN:  1.2 cm (kept growing during 2 yr.)MIDDLE FOSSA  11/9/09;  Michigan Ear Institute Dr. Zappia & Pieper
SSD, mild tinnitus, delayed onset of facial paralysis lasting 3-4 weeks, no tears AN side
BAHA surgery 10/2/12 Dr Daniels G.R.,MI

Mei Mei

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Re: Did SSD Hearing Device help with Tinnitus???
« Reply #14 on: March 02, 2010, 08:13:54 am »
Dear Denise,
I just read with interest what you sent us.   I happen to have TMJ and have been wondering if others in our group also have it because they don't mention it.   I've been wondering if it has a relationship to the headaches I've been having, but on this link it makes a suggestion that there is a cause for the tinnitus!   I never would have guessed this and will contact my dentist about this.

Thanks, Denise.

Sincerely,
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh