Author Topic: GK on 2/10/10  (Read 6126 times)

rupert

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GK on 2/10/10
« on: February 08, 2010, 09:23:08 pm »

  Hello everyone,

             I know I have been posting a little bit lately, throwing out my opinions now and then   but I haven't really mentioned my course of action.

   I will be having GK  at  the University of Pittsburgh Medical Center on Wed.   I feel confident in their facility and their track record.   If any of you remember some of my first posts,  I was going to have surgery at the same facility.   However  once I found out I would be a good candidate for GK,  I decided that was the way to go for me.

This forum is a wealth of information and has helped me a lot.    I will be off the air so to speak for the next two days, but I will post back after I get home.   I don't think it will be too eventful.

  The hospital called today and said they were buried under two feet of snow and a lot of the city was immobilized.  They actually asked me if I had a four wheel drive!
I told them I come from a place where we don't even blink about  that amount and I will make it down with no problems.  If everyone stays out of my way. LOL!

                Bryan

sgerrard

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Re: GK on 2/10/10
« Reply #1 on: February 09, 2010, 12:46:49 am »
PMC is top of the line for GK. I would definitely be more worried about driving in 2 feet of snow than the actual treatment.  ;D

Best wishes for a good GK day.

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

leapyrtwins

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Re: GK on 2/10/10
« Reply #2 on: February 09, 2010, 07:02:58 am »
Good luck, Bryan.

Looking forward to hearing about your experience  :)

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

GRACE1

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Re: GK on 2/10/10
« Reply #3 on: February 09, 2010, 08:44:36 am »
Best of luck to you! 

Grace
Diagnosed 7/06: AN - right side: 1.3cm in transverse dimension, 6mm in AP dimension, and 6mm in cephalocaudal dimension.
GK 12/06- Wake Forest Univ Baptist Med Ctr
MRI 5/07- Some necrosis;  Now SSD
MRI 12/08- AN size has reduced 50%
MRI 12/11- AN stable (unchanged from 12/08)
Next MRI: 12/16

GM

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Re: GK on 2/10/10
« Reply #4 on: February 09, 2010, 03:14:51 pm »
Best of luck with your GK treatment!   4WD's Rule!!
Originally 1.8cm (left ear)...Swelled to 2.1 cm...and holding after GK treatment (Nov 2003)
Gamma Knife University of Virginia  http://www.medicine.virginia.edu/clinical/departments/neurosurgery/gammaknife/home-page
Note: Riverside Hospital in Newport News Virginia now has GK!!

petgroomer

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Re: GK on 2/10/10
« Reply #5 on: February 09, 2010, 03:20:01 pm »
Best wishes on your treatment on Wednesday! 
Rhonda
JULY 2009 found 5.6 cm X 4 cm vagal schwan on the 10th cranial nerve and by MAY 2010 it grew to 7.1 cm X 4 cm X 4.1 cm  Nov 2010 it has grown another 10%... time for C.K.! :)
I love life but I'm finding it harder to do .. one millimetre at a time.
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gordy

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Re: GK on 2/10/10
« Reply #6 on: February 09, 2010, 06:35:09 pm »
best wishes im sure it will go just great.

rupert

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Re: GK on 2/10/10
« Reply #7 on: February 10, 2010, 04:36:42 pm »

  I'm allready home!

    Can't believe it's over all ready.

 He res a quick run down.    First,    anything involving Pittsburgh requires either up hill or down hill navigation.  Then, they obviously  have zero snow plow equipment.    It reminded me of those amusement park cars that just ride around in a track ( rut ).  No steering required.

   I have to agree with Steve,   UPMC is the place for GK.   They have done over 10,000 procedures with 1400 being AN's .   Dr.  Kondziolka and all the staff were exceptional in every way.

  As for the procedure.  First it was a long day,  starting at 4:00 AM from the hotel,   but I was out of the hospital by 12:30 and because of the continued snow,  got home at 4:30PM.   The installation and removal of the guiding device were uneventful.   I could feel it , but it did not hurt.   I was in the GK unit area for an hour and a half.   One hour was actual in the machine and the rest was to change out the inserts.   I did not realize that they weighed almost 500lbs each.  There was some bleeding after removal and some pain from the holes in my head ,  but two Tylenol fixed that.   I did have some brief periods of nausea.  One after the MRI and one after the device was removed.   I have no answer for this except that I hadn't had anything to eat or drink for 24 hrs.   I'm  fine now, so that's what I will go with.  I don't think it had anything to do with the procedure.

   If anyone  wants  more in depth detail I would be happy to provide them about my experience.    Bryan

GM

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Re: GK on 2/10/10
« Reply #8 on: February 10, 2010, 05:06:47 pm »
Congrats fellow "Zapper"    Time to relax for today and then to get on with your life!!

Gary
Originally 1.8cm (left ear)...Swelled to 2.1 cm...and holding after GK treatment (Nov 2003)
Gamma Knife University of Virginia  http://www.medicine.virginia.edu/clinical/departments/neurosurgery/gammaknife/home-page
Note: Riverside Hospital in Newport News Virginia now has GK!!

rupert

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Re: GK on 2/10/10
« Reply #9 on: February 10, 2010, 05:31:16 pm »

   I'd like to thank everyone for the good wishes,  and yes I'm going to take a few days off.   Not because I need to,  but this thing has caused me enough stress.  That ought to be worth a few days!

Vivian B.

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Re: GK on 2/10/10
« Reply #10 on: February 10, 2010, 09:40:08 pm »
I caught this thread a liittle late, but I see that your treatment is over. That's great. You definitely deserve a few days off. Wishing you a good recovery.

Vivian
CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.

Tumbleweed

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Re: GK on 2/10/10
« Reply #11 on: February 10, 2010, 10:45:32 pm »
I, too, just now noticed this thread. Congratulations, Bryan, on becoming a "toasty postie"!

You can't beat UPMC for GK. You chose the cadillac of medical facilities and doctors for your treatment. Congrats on doing your research so well and choosing the best for your care.

It sounds like you've got a very positive, can-do attitude. You should make it through the recovery phase with flying colors, even if there is a small bump or two in the road ahead. Who knows, it might be smooth sailing from here. We'll all be rooting for you.

Best wishes,
TW
L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

ppearl214

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Re: GK on 2/10/10
« Reply #12 on: February 11, 2010, 06:43:29 am »
Bryan,

congrats on being a "toastie Postie!" :) Well done!  Sending wellness wishes your way as its starts to do its thang!  Enjoy your time off!

Congrats!
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

GRACE1

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Re: GK on 2/10/10
« Reply #13 on: February 11, 2010, 09:20:16 am »
Congratulations!!

Grace
Diagnosed 7/06: AN - right side: 1.3cm in transverse dimension, 6mm in AP dimension, and 6mm in cephalocaudal dimension.
GK 12/06- Wake Forest Univ Baptist Med Ctr
MRI 5/07- Some necrosis;  Now SSD
MRI 12/08- AN size has reduced 50%
MRI 12/11- AN stable (unchanged from 12/08)
Next MRI: 12/16

Jim Scott

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Re: GK on 2/10/10
« Reply #14 on: February 11, 2010, 02:49:15 pm »
Brian ~

It appears as if you had a very positive (i.e. complication-free) GK experience and are doing well.  I'm always pleased to see this kind of report and of course, I wish you continued success as you recover.  Thanks for posting.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.