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Author Topic: Phyl.... Live on YouTube  (Read 11997 times)

Omaschwannoma

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Re: Phyl.... Live on YouTube
« Reply #15 on: February 14, 2010, 10:12:02 am »
What can I say that hasn't already been said without repeating?.....

 :-* to you my dear! 

I look back on my days of discovery and education regarding treatment with amazement at how far I've come with all the obstacles.  Although my choice was surgery I too felt, in the pit of my soul, the same--I made the right choice. 

Love and Gratitude,
Karen
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1/05 Retrosigmoid 1.5cm AN left ear, SSD
2/08 Labyrinthectomy left ear 
Dr. Patrick Antonelli Shands at University of Florida, Gainesville, FL
12/09 diagnosis of semicircular canal dehiscence right ear

nancyann

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Re: Phyl.... Live on YouTube
« Reply #16 on: February 14, 2010, 06:51:21 pm »
Loved it Phyl ! !  Wish I had done my homework.....  I never knew you had a beautiful dimple on your right side !  Always good thoughts, Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

pjb

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Re: Phyl.... Live on YouTube
« Reply #17 on: February 14, 2010, 08:15:52 pm »
Loved it I wish I could have seen this before my decision to have surgery I definitely would have chosen the Cyberknife.

Best Wishes,

Pat
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Diagnosed with a 1 cm. AN had Retrosigmoid
Approach surgery July of 2009, several problems after surgery.

sgerrard

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Re: Phyl.... Live on YouTube
« Reply #18 on: February 14, 2010, 08:55:56 pm »
Nicely done, Phyl. You come across as personable and genuine, yet earnest and serious, all at the same time.

Plus you kept the bullwhip hidden.  :D

Steve

PS: Happy Birthday!
« Last Edit: February 14, 2010, 08:59:12 pm by sgerrard »
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

lori67

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Re: Phyl.... Live on YouTube
« Reply #19 on: February 15, 2010, 08:49:42 am »
Another celebrity in our midst!   ;D

Phyl, you look stunning, beautiful, awesome...all those good things and more!

Your hard work and dedication is truly appreciated by so many and now it will be able to benefit so many more.

And Steve is right...you can't see the bullwhip or the cattle prod at all!  Of course, I didn't notice a halo either.   :D

Thanks for all you do!
Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Cheryl R

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Re: Phyl.... Live on YouTube
« Reply #20 on: February 15, 2010, 10:17:59 am »
Phyl,    I hope you had a wonderful birthday!            You looked super on the video.     I could not hear it as my sound is not working since I got a new computer monitor even though all is plugged in right.    No one  with computer knowledge has been here to check it out yet so hope will know in time.      But you looked darn good anyway!
                                                       Cheryl R
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Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

jcinma

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Re: Phyl.... Live on YouTube
« Reply #21 on: February 15, 2010, 11:29:56 am »
A belated valentine birthday wish to our celebrity!! You were informative, sincere, dedicated. (I don't expect anything less from you)

Keep up the amazing work you do, you have touched so many people and now even more so with your beautiful debut on youtube.  Thank you!

Love to you and the bloke,

Jane
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1cm AN removed (lost hearing) 11/96
3cm reccurrence debulked to preserve facial function 2/05
FSR 4/05
Mass General Hosp. Boston MA

Brendalu

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Re: Phyl.... Live on YouTube
« Reply #22 on: February 15, 2010, 03:29:36 pm »
Happy Birthday, Phyl....I'm always a day late and a dollar short!  I hope it was a great one filled with sunshine and rainbows and warmer weather!  I'm waiting for your talk show...after your youtube performance I'm sure a smart station will give you a contract......soon.
Huggles,
Brenda
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Brenda Oberholtzer
AN surgery 7/28/05
Peyman Pakzaban, NS
Chester Strunk, ENT

Sue

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Re: Phyl.... Live on YouTube
« Reply #23 on: February 15, 2010, 06:59:38 pm »
And the  Oscar goes to........the envelope please............

PHYL!! 

Great job.

Sue in Vancouver, USA
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Larry

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Re: Phyl.... Live on YouTube
« Reply #24 on: February 15, 2010, 08:28:30 pm »
On ya Phyl,

This link should be compulsory for all newbies and wait and watchers to watch.

Well done as always. As i have told you before, I'm richer for knowing you.

cheers


Laz
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2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
Chronologer of the PBW
http://www.frappr.com/laz

Derek

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Re: Phyl.... Live on YouTube
« Reply #25 on: February 16, 2010, 05:53:50 am »
Hiya Phyl...

Congrats from your old pal in the UK...your video presentation was very professional and delivered with the warmth, sincerety and compassion for which you are rightly renowned and revered by all those, including me, who have benefitted from your wisdom, knowledge and humour in furtherance of our individual battles with the AN condition. You are truly inspirational and your video should  be mandatory viewing by all those anxious folk who are newly diagnosed and who are in desperate need of impartial  reassurance and guidance from someone who has successfully completed the full AN journey from A to Z.

Well done girl!

Derek
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Residing UK. In 'watch & wait' since diagnosis in March 2002 with right side AN. Initially sized at 2.5cm and now self reduced to 1.3cm.
All symptoms have abated except impaired hearing on affected side which is not a problem for me.

CHD63

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Re: Phyl.... Live on YouTube
« Reply #26 on: February 16, 2010, 10:28:57 am »
Phyl .....

You were wonderful on the video.  All the right things said and well done.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Captain Deb

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  • Phearless Phyll and Captain Deb!
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Re: Phyl.... Live on YouTube
« Reply #27 on: February 16, 2010, 11:37:44 am »
Great job, m'dear Phyllis!!  But as your captain, I have to say you were woefully out of uniform!! No pirate hat?  At least the Jolly Roger eyepatch?? I guess the Cyberknife people would not want to know that their gizmo makes you think you are an 18th century swashbucklin' wench!!

As others have said,  this is going to be soooo beneficial to newly diagnosed people with small tumors.  Wish I had had that info before I let 'em at me with the melon-baller which has screwed up my head for life.  However 7 years ago Cyberknife was not that well known--amazing the progress that has been made in such a short time. Mazel Tov!!

Hugglezzzzzzz

Capt Deb
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

ppearl214

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Re: Phyl.... Live on YouTube
« Reply #28 on: February 17, 2010, 07:10:16 am »
thanks all for the kind words.... I still think I need a facelift and should have been in my PBW garb to give the full affect of my role around here (as the Cursed Cruise Director of the PBW), but...... had to look the part! ;)  Hoping the video does help shed light on AN journeys and I appreciate all the kind words (and the bday wishes....).

Thanks again all!
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Joef

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Re: Phyl.... Live on YouTube
« Reply #29 on: February 17, 2010, 01:33:03 pm »
YOU GO GIRL !!  8)
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4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital
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