Author Topic: Tumor growing on the hearing nerve  (Read 8094 times)

Jenn15b

  • New Member
  • *
  • Posts: 17
Tumor growing on the hearing nerve
« on: April 01, 2010, 10:15:38 am »
I spoke with Dr. Fayad and he said 99% of the tumors grow on the balance nerve, and 1% grow on the hearing nerve.  I am part of that one percent, and I am curious if anyone else has theirs growing on the hearing nerve?
3.2mm x 3.8mm
Diagnosed 3/24/10
Blog: www.jennsanjourney.blogspot.com

jazzfunkanne

  • Sr. Member
  • ****
  • Posts: 457
Re: Tumor growing on the hearing nerve
« Reply #1 on: April 01, 2010, 01:42:05 pm »
is it not the other way about? am sure mine was on the hearing nerve
over 4.5cm AN removed dec 06

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: Tumor growing on the hearing nerve
« Reply #2 on: April 02, 2010, 07:48:09 am »
Jenn -

my AN was on the 7th and 8th cranial nerves.

During my surgery the docs found it was wrapped around the hearing nerve, which is why I "lost" it and ended up SSD.

In order to remove the entire tumor, they had to sacrifice the hearing nerve.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Jenn15b

  • New Member
  • *
  • Posts: 17
Re: Tumor growing on the hearing nerve
« Reply #3 on: April 02, 2010, 01:38:12 pm »
Jan, That is what they are telling me, that since it is growing on the nerve I will be SSD.
3.2mm x 3.8mm
Diagnosed 3/24/10
Blog: www.jennsanjourney.blogspot.com

leapyrtwins

  • Hero Member
  • *****
  • Posts: 10826
  • I am a success story!
Re: Tumor growing on the hearing nerve
« Reply #4 on: April 02, 2010, 08:52:43 pm »
Jenn -

I don't want this to sound harsh, but there are worse things in life than being SSD.

Many of our fellow Forumites have adapted to being SSD and don't use any kind of "assistance"; others (me included) have a BAHA implant; still others have a TransEar.

Jan

Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Syl

  • Hero Member
  • *****
  • Posts: 765
  • Forgive me. I'm having an AN moment.
Re: Tumor growing on the hearing nerve
« Reply #5 on: April 03, 2010, 01:15:33 pm »
Jenn:

My tumor was on the balance side of the nerve. During surgery the balance nerve was removed, stretching the hearing nerve. That left me with 20% word recognition.

Syl
1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

tenai98

  • Hero Member
  • *****
  • Posts: 916
Re: Tumor growing on the hearing nerve
« Reply #6 on: April 03, 2010, 01:34:14 pm »
gee, now i'm wondering what nerver my AN was on..I'm guessing the balance one as my balance nerve was dead before surgery and given that i had the translab method, that the hearing nerve was cut making me SSD. I now that the tumor in somewhat entwined with my facial nerve as well...as the doc couldnt remove all the tumor for fear of damaging the facial nerve.
JO
14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

Tumbleweed

  • Hero Member
  • *****
  • Posts: 1052
Re: Tumor growing on the hearing nerve
« Reply #7 on: April 04, 2010, 02:23:08 pm »
Jan, That is what they are telling me, that since it is growing on the nerve I will be SSD.

I don't see why this has to be, Jenn. If you get radiation (CK or GK), the docs should be able to kill the tumor while still preserving the lion's share of your hearing (assuming your hearing is still in decent shape now).

Best,
TW
L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

Kaybo

  • Hero Member
  • *****
  • Posts: 4232
Re: Tumor growing on the hearing nerve
« Reply #8 on: April 04, 2010, 04:13:18 pm »
I guess I have just been the "ignorant" blond all these years...I thought that the 8th nerve was the hearing AND balance nerve and the 7th was the face...   ??? ???


K ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

mimoore

  • Hero Member
  • *****
  • Posts: 736
  • Believe!
Re: Tumor growing on the hearing nerve
« Reply #9 on: April 04, 2010, 05:08:30 pm »
You are not alone Kaybo, I did too!
Michelle  :o
Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

tenai98

  • Hero Member
  • *****
  • Posts: 916
Re: Tumor growing on the hearing nerve
« Reply #10 on: April 04, 2010, 05:24:16 pm »
ok  some please clarify!!!
5th nerve facial nerve
8th nerve hearing
what is the 7th??
Offf to look for my ANA books
JO
14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

sgerrard

  • Hero Member
  • *****
  • Posts: 3475
Re: Tumor growing on the hearing nerve
« Reply #11 on: April 04, 2010, 05:24:56 pm »
I guess I have just been the "ignorant" blond all these years...I thought that the 8th nerve was the hearing AND balance nerve and the 7th was the face...   ??? ???

No, you have been the knowledgeable blond. The 8th nerve (acoustic) branches into the cochlear nerve (hearing) and the vestibular nerve (balance). The balance nerve then branches into the superior and inferior vestibular nerves. And they all live snuggled together with the 7th nerve (facial), inside that tiny little canal.

Jenn15b therefore has an acoustic neuroma (a tumor on the 8th nerve), but it is not a vestibular schwannoma, it is a cochlear schwannoma.

And that's enough neuro anatomy for the day. :)

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

nancyann

  • Hero Member
  • *****
  • Posts: 2251
  • carpe diem
Re: Tumor growing on the hearing nerve
« Reply #12 on: April 04, 2010, 05:47:01 pm »
Kay, Michelle & Steve are right !
                                                                                                                                                                                           
 
      There are 12 pairs of cranial nerves.
  Olfactory I
  Optic II
  Oculomotor III
  Trochlear IV
  Trigeminal V
  Abducens VI
  Facial VII
  Auditory (vestibulocochlear) VIII
  Glossopharyngeal IX
  Vagus X
  Spinal Accessory XI
  Hypoglossal XII
« Last Edit: April 04, 2010, 07:14:22 pm by nancyann »
2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Kaybo

  • Hero Member
  • *****
  • Posts: 4232
Re: Tumor growing on the hearing nerve
« Reply #13 on: April 04, 2010, 06:26:28 pm »
I feel so much better - I thought that I'd been telling people wrong for all these years!!  ;)

K   ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Cheryl R

  • Hero Member
  • *****
  • Posts: 1824
Re: Tumor growing on the hearing nerve
« Reply #14 on: April 05, 2010, 07:19:27 am »
Years ago in nursing school we were given a way to remember the cranial nerves.     I can not think of what this is called as there is a name for this.     
  Think of "On Old Olympus Towering Top A Finn A German Viewed A Hop".             Think some surgeon also told us a "naughty" version but can't remember that one.                       Anyway is a help in remembering the nerves.
                                                       Cheryl R
                                                       
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care