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Author Topic: NY/NJ Area ANers - May Date For Brunch Changed!  (Read 12327 times)

wendysig

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Re: NY/NJ Area ANers - May Date For Brunch Changed!
« Reply #15 on: May 08, 2010, 06:11:14 pm »
Catherine,

I'm sorry we won't see you on the 16th and hope your mom will be okay.  I look forward to seeing you again at our next get together.

Wendy
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1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

wcrimi

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Re: NY/NJ Area ANers - May Date For Brunch Changed!
« Reply #16 on: May 10, 2010, 03:42:55 pm »
I assume we are still on!  ;)
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1 cm, 6mm, 4mm on Left side. Surgery performed 11/6/2008 by Dr. Kalmon Post and Eric Smouha at Mt. Sinai Hospital in NYC.
Normal hearing before, 85%-90% now, dizziness when walking or turning head, annoying hissing and high pitched tinnitus on and off, eyes have trouble adjusting to rapid head move

Debbi

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Re: NY/NJ Area ANers - May Date For Brunch Changed!
« Reply #17 on: May 11, 2010, 06:53:19 am »
Okay, we are on the countdown to brunch!  12 Noon on Sunday, May 16 at Brendan's Pub in NYC.  Reservation is under my name - Debbi.  Website, for those who need additional info is:  
http://www.brendansbar.com/

Here's who I've got on the list of attendees - if you are on this list and can't make it, let me know - if I've missed anyone, let me know...  I have already sent everyone my cell phone, but if you lost it or didn't get it, please PM me and I'll get it to you.

Debbi and Willie
Wendy and Rob
Nteeman (Neal) (Tentative)
Kevin and Carol
Ken and Miranda
JerseyGirl (Eve) - hopeful
JeffB
Mickey (Mike) and Pat
Lauren and Alan
Wayne (wcrimi) and Patty
Stefani
Marybeth
AnotherNYPostie (Cheryl)

And, Catherine, so sorry you can't make it - hope your mom is okay.
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

wcrimi

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Re: NY/NJ Area ANers - May Date For Brunch Changed!
« Reply #18 on: May 14, 2010, 08:36:27 am »
Can't wait to meet everyone.  ;)
Logged
1 cm, 6mm, 4mm on Left side. Surgery performed 11/6/2008 by Dr. Kalmon Post and Eric Smouha at Mt. Sinai Hospital in NYC.
Normal hearing before, 85%-90% now, dizziness when walking or turning head, annoying hissing and high pitched tinnitus on and off, eyes have trouble adjusting to rapid head move

Debbi

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Re: NY/NJ Area ANers - May Date For Brunch Changed!
« Reply #19 on: May 16, 2010, 02:04:26 pm »
Well, another fun brunch with a great group of people!!  I know that Wendy got some pictures too, so hopefully she'll add them.  To get us started, though, here are some shots

Wendy, Wayne and Patty


The whole group


Debbi and Mickey


JerseyGirl, AnotherNYPostie and Gman


Whatever it was, must've been funny!


I already can't wait for the next one...
Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

G_Man

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Re: NY/NJ Area ANers - May Date For Brunch Changed!
« Reply #20 on: May 16, 2010, 03:04:21 pm »
No fair Debbie!  You beat me!  I thought I was going to be the first one posting.  I wanted to say how great it was to meet everyone and how much I appreciated you for doing this before anyone could get to the forum. 
Meeting everyone made me feel so much better.
I can't wait until the next one either, if you'll put up with me again, that is...
Glen :o
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Diag: 08/11/2009 Left side
AN: 0.6cm.  65% Hearing loss, tinnitus, fullness, minor motion issues.
hearing loss over 25+ years.  MRI in 2000 showed nothing.
Optical Atrophy from infantcy
Watch and Wait.
As of 2017 I am on a 2 year MRI frequency.

leapyrtwins

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Re: NY/NJ Area ANers - May Date For Brunch Changed!
« Reply #21 on: May 16, 2010, 03:21:27 pm »
Wonderful pictures - lots of happy faces ;D

Looks like you guys had a great time.  Hopefully one day I'll be able to join you.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

CHD63

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Re: NY/NJ Area ANers - May Date For Brunch Changed!
« Reply #22 on: May 16, 2010, 03:50:46 pm »
Wonderful pictures, Debbi .....

It is so neat to see more pictures of Forumites, other than the profile pictures.  Looks like you all had a good time.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

jerseygirl

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Re: NY/NJ Area ANers - May Date For Brunch Changed!
« Reply #23 on: May 16, 2010, 04:08:29 pm »
I am very glad I could make it! It was great to see familiar faces and absentees were sorely missed! Both Ken and Debbi made a huge improvement - whatever you guys are doing is working. Great lunch!

              Eve
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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

another NY postie

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Re: NY/NJ Area ANers - May Date For Brunch Changed!
« Reply #24 on: May 16, 2010, 05:17:54 pm »
I had a wonderful time!  It is so great to catch up with everyone and meet new members.  THanks for organizing Debbi and Wendy!
Logged
5 mm lateral IAC (impacted?) diagnosed 6-09-09
middle fosa 9/23 HEI - Brackmann/Schwartz
all tumor gone, facial perfect, no ringing
SSD on right side - Rockin' and Rollin'

wcrimi

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Re: NY/NJ Area ANers - May Date For Brunch Changed!
« Reply #25 on: May 16, 2010, 05:43:31 pm »
We had a GREAT time.  It was so nice to meet everyone. Love the pictures.  ;)
Logged
1 cm, 6mm, 4mm on Left side. Surgery performed 11/6/2008 by Dr. Kalmon Post and Eric Smouha at Mt. Sinai Hospital in NYC.
Normal hearing before, 85%-90% now, dizziness when walking or turning head, annoying hissing and high pitched tinnitus on and off, eyes have trouble adjusting to rapid head move

wendysig

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Re: NY/NJ Area ANers - May Date For Brunch Changed!
« Reply #26 on: May 17, 2010, 12:05:01 am »
The brunch was great and it was good to meet Kevin, Glen and finally Wayne and his girlfriend Patty.  Debbi did all the organizing this time, so many thanks to you Debbi, and the name tags were a great idea!  I sent you some pictures that Rob took since I am not adept at posting them.  To those of you who were not able to attend the brunch today, I hope we see you next time -- you were missed!

Wendy
Logged
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Debbi

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Re: NY/NJ Area ANers - May Date For Brunch Changed!
« Reply #27 on: May 17, 2010, 08:37:44 am »
Okay, here are the pictures from Wendy (thanks, Wendy!!)

Wendy and Debbi


Debbi and Wayne


Wendy, Jeff (Jerseyboy) and Mike (Mickey)
Logged
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

jerseyboy

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Re: NY/NJ Area ANers - May Date For Brunch Changed!
« Reply #28 on: May 17, 2010, 11:10:06 am »
Hey, guys, that was great!  Debbie and Wendy, thank you for organizing, again.  But, Mike, 17 pills a day???!!!
jerseyboy
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Watch and wait since May 2009.

jtd71465

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Re: NY/NJ Area ANers - May Date For Brunch Changed!
« Reply #29 on: May 17, 2010, 11:34:33 am »
These pictures are missing something.....ME!!!
Logged
Right side AN removed 1/10/07 @ NYU Medical Center
Dr's Roland and Golfinos
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