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Author Topic: help!  (Read 5149 times)

Velamipi86

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help!
« on: May 10, 2010, 01:50:53 am »
Hello!
My name is Kinga Symela. I'm from Poland and I'm  a student V year of physiotheraphy in a University Humanistyczno-przyrodniczym im Jana Kochanowskiego in Kielce.
Now I'm writting my master's thesis title: "Quality Of Life patients after surgical acoustic neuroma". I do my resarche and I need some of the patiens (about 50) to make this reaserche reliable.
I send you 2 questionnaire about your quality of life. One is relate to you life before operation  and second is after operation. Please fill boath and send me back to my address email: ( *** Moderator: Email removed , please use a private PM for email ***)
If yuo do that you help me  to writt my master's thesis.
this questionnaire is anonymous.
 
Thanks!
« Last Edit: May 10, 2010, 12:49:23 pm by Joef »
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leapyrtwins

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Re: help!
« Reply #1 on: May 10, 2010, 06:33:16 am »
Kinga -

I would be happy to complete your questionnaires.  Can you email them to me?  You'll find my email address on my profile.

Thank you,

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kaybo

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Re: help!
« Reply #2 on: May 10, 2010, 06:54:49 am »
I would be happy to do your survey, but I am 14 years out...is that too long??  IF you will PM me (on left), I would be happy to give you my info...


K  ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

kenneth_k

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Re: help!
« Reply #3 on: May 10, 2010, 07:55:13 am »
Hi Kinga.

Please forward your questionnaire and I'll be happy to reply.

Kenneth
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pjb

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Re: help!
« Reply #4 on: May 10, 2010, 08:35:30 am »
I too would be happy to fill out your questionnaire.

Pat
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Diagnosed with a 1 cm. AN had Retrosigmoid
Approach surgery July of 2009, several problems after surgery.

moe

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Re: help!
« Reply #5 on: May 10, 2010, 09:38:54 am »
I will be happy to fill one out,but I have to do it today or tomorrow, otherwise, it will wait until after my surgery this week. Is there a rush?
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

cindyj

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Re: help!
« Reply #6 on: May 10, 2010, 10:29:04 am »
I'd also be glad to fill one out if I can help...if you can't send to email addresses, let us know. 

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

Nickittynic

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Re: help!
« Reply #7 on: May 10, 2010, 10:34:43 am »
I would also be happy to fill out your questionnaire.
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25 year old OBGYN nurse, wife, mother of two
5.5cm x 3.1cm left side AN removed via retrosigmoid 9/09 @ Hopkins
SSD, Tinnitus, Chronic Migraines, Facial paralysis (improving!)
Resolved - Left sided weakness, Cognitive issues
Gold weight, upper and lower punctal plugs, tarsorrhaphy

jazzfunkanne

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Re: help!
« Reply #8 on: May 10, 2010, 11:16:50 am »
i would be happy to help my (*** Moderator: Email removed , please use a PM for personal emails ***)
you can send too this address
« Last Edit: May 10, 2010, 12:47:53 pm by Joef »
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over 4.5cm AN removed dec 06

CHD63

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Re: help!
« Reply #9 on: May 10, 2010, 03:00:25 pm »
Kinga .....

I will be glad to complete one of your questionnaires.  Just send me a PM (private message).

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

yardtick

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Re: help!
« Reply #10 on: May 10, 2010, 05:36:28 pm »
I too would be happy to fill out your questionnaires.

Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Syl

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Re: help!
« Reply #11 on: May 10, 2010, 07:07:54 pm »
Count me in.

Syl
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1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

Lizard

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Re: help!
« Reply #12 on: May 11, 2010, 11:51:55 am »
I'll fill it out for you as well.  Please email
Thanks,
Liz
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

pattycake

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Re: help!
« Reply #13 on: May 11, 2010, 12:59:49 pm »
Add me to your list.  I would be happy to do your survey - please email.

You know that most people on here will have poorer quality of life afterwards.  The people who are very healthy do not come back to this site, so your data will be skewed.  But it will honest data that is for sure.
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1.7cm x 1.4 - Surgery 3/14/08 - Meningioma
Mass General Hosp - McKenna & Barker - no facial problems
Persistent Headache pain remains

cindyj

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Re: help!
« Reply #14 on: May 14, 2010, 10:53:25 am »
Quote from: pattycake on May 11, 2010, 12:59:49 pm
You know that most people on here will have poorer quality of life afterwards.  The people who are very healthy do not come back to this site, so your data will be skewed.  But it will honest data that is for sure.

True, for the most part, but there are definitely those of us here who stick around even though we consider ourselves "healthy" again!   Changed, yes, but I don't consider it poorer  ;)  But, you do make a good point for the survey purpose, though...

Cindy  :)
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings
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