Hello, all-
Nan here. I'm in shock. I just got the reports from my brilliant doc in Chicago and his first theory is that my dizziness was actually caused, not by the AN, but by a rare condition called Mal de Debarquement. It's motion sickness that occurs when you get off a cruise ship (most often) or plane and the body keeps thinking it's still on the boat. I had just finished my honeymoon cruise and a horrendous rocky-boat dive. It's basically sea legs, but lasts months to years.
He has never had anyone with both conditions and says I am one/million. The surgery could actually have made me worse, because I now have one less side to compensate. But then one could ask, would I ever have improved with the presence of the tumor, was the tumor the reason I got the syndrome in the first place, etc. etc.
But MdD (abbreviated) is really frightening. There is no cure, and the average recovery time is 3.5 YEARS. Also hits women in their 40s.
We're working on two other theories, also, but this one feels the most likely. Goes to show when docs see an AN, that's all they see.....
Sigh. I'm rather numb. Kind of relieved, but overwhelmed, wondering where I go from here....
Thanks for listening.
