Author Topic: Donnalynn's Husband - Please Pray  (Read 78846 times)

Jill Marie

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Re: Donnalynn's Husband - Please Pray
« Reply #180 on: October 03, 2010, 09:28:06 pm »
Hi Donnalynn,

Just stopped by to say I was thinking about you and hoping that Jim is doing ok.  Sure is nice to read so much helpful information for you, got my fingers crossed that it will help with Jim's recovery.  Jill
Facial Nerve Neuroma removed 6/15/92 by Dr. Charles Mangham, Seattle Ear Clinic. Deaf/left ear, left eye doesn't water.

moe

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Re: Donnalynn's Husband - Please Pray
« Reply #181 on: October 04, 2010, 09:01:54 am »
Good morning, Donnalynn
I've been out of town, just checking in to see how you two are doing.
Amazing that you DO have connections, and still can't get what you need in the way of PET scan.
You are an amazingly strong, persistent, intelligent woman & you  keep going  and going..(what choice do you have), kind of like the Energizer Bunny commercial :)
By the time people offer advice,it's like you've already tried that!
So hugs to you and Jim, and keep the faith, keep persisting. It will all come together :-*
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Soundy

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Re: Donnalynn's Husband - Please Pray
« Reply #182 on: October 04, 2010, 09:57:41 pm »
I will add a prayer that you have sweet dreams and good nights of rest ... and as always praying for Jim
3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

Jim Scott

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Re: Donnalynn's Husband - Please Pray
« Reply #183 on: October 07, 2010, 02:50:07 pm »
Donnalynn ~

Thank you for that encouraging update!   Suffice it to say that I'm thrilled to learn that prayers are being answered and your Jim seems to be improving.  May the good news continue!

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Kaybo

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Re: Donnalynn's Husband - Please Pray
« Reply #184 on: October 07, 2010, 03:15:47 pm »
Donnalynn~
This is such good news!  I thought you sounded fairly chipper for the sec I got to talk to you this morning!  Was the Dr. call a good discussion?  I'll try to call you tomorrow, but I am subbing in the afternoon (at the school where I taught right our of college!) - I certainly won't call early since I now know that you are sleeping in!!  Glad you can get some much needed rest!!

Love to all,
K   ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

CHD63

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Re: Donnalynn's Husband - Please Pray
« Reply #185 on: October 07, 2010, 04:09:54 pm »
So grateful for the good news of going in the right direction, while awaiting the PET scan.

Prayers continue.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

saralynn143

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Re: Donnalynn's Husband - Please Pray
« Reply #186 on: October 07, 2010, 07:18:37 pm »
I was just thinking that we must have passed through the three week critical period by now. I am so pleased that Jim is feeling better and pray that he continues to heal. The 15th will be here in a flash - I am taking my MIL for a biopsy of a spot on her bladder that same day. There will be lots of prayers on the 15th.

Sending my love,
Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

ppearl214

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Re: Donnalynn's Husband - Please Pray
« Reply #187 on: October 08, 2010, 04:13:47 am »
DL,

You KNOW I'm following along... and sending Jim MAJOR healing hugglez... and helpful hugglez to you and my very dear V.  It's about time some good news comes along..........

xoxooxoxox and all that mushy stuff.
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

yardtick

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Re: Donnalynn's Husband - Please Pray
« Reply #188 on: October 08, 2010, 10:28:30 am »
Happy Thanksgiving Donnalynn and family.  I will include your family in my blessing on Monday  :-* :-* :-* :-*

I will also include all my AN friends in my blessing. 


Anne Marie


Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

ombrerose4

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Re: Donnalynn's Husband - Please Pray
« Reply #189 on: October 09, 2010, 09:12:17 am »
Donnalynn,

I am so happy that Jim is improving and that both of you are getting some well needed rest. I will continue to send healing thoughts your way :)
Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

free2be

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Re: Donnalynn's Husband - Please Pray
« Reply #190 on: October 09, 2010, 06:53:54 pm »
Donnalynn,

What a blessing that Jim is doing better. I am so happy. Tell him not to over do. I hope things go well the 15th, which is just around the bend.

God Bless,
Connie
Diagnosed Nov. 2008 Right AN 7 mm x 9 mm
Incremental MRIs enhancing mass
June 2010 1.4 cm x 0.9 cm extension into the CP angle
Pre-CK Stanford measurements 1.6 X 1.1 cm
9/29/10 - 10/1/10 CK completed with Dr Steven Chang and Soltys, Stanford.
6-month thru three year (8/13) follow ups MRI: stable

questions?586

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Re: Donnalynn's Husband - Please Pray
« Reply #191 on: October 09, 2010, 08:39:37 pm »
Hi:

I'm new around here but want to share my prayers and concern.  I had a pulmonary embolism last year and know how scary it can be.  About the never ending blood thinners and food; eat what you think is most healthy but eat it regularly.  The more evenly you eat and exercise the easier it is to regulate.

Starr
AN 1.4 cm x 1.7 cm x 1.0 cm
fair amount of hearing loss right ear
diagnosed 7/29/10

I'm a fun and reasonable RN, now living far from appropriate medical care. Feeling overwhelmed!

lori67

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Re: Donnalynn's Husband - Please Pray
« Reply #192 on: October 10, 2010, 06:42:29 am »
Donnalynn,

Make sure you check with your doctor before trying the natural route for this.  I understand your concern, but I think the benefits of the coumadin outweigh the risks.  I was on it for year for a blood clot and had no adverse effects and it took care of the problem.  With the severity of Jim's case, the doctor may want his INR even higher than 2-3, and that might be hard to achieve and regulate through diet alone.

Once I got my dose to where it needed to be, I just had to have it checked once a month and make sure I practiced some moderation in my diet.  So, not eating 20 pounds of spinach at one sitting was out, but fortunately, that wasn't really a problem. 

Hope things are going well!!
Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Cheryl R

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Re: Donnalynn's Husband - Please Pray
« Reply #193 on: October 10, 2010, 07:54:15 am »
I agree with Lori about staying on the Coumadin.      I have a friend who is on it long term and she told recently how her INR really jumped higher than you think it would when she was eating more of a couple foods  than she usually did.          I haven't talked to her since to see how it is now as that was maybe 3 weeks ago.            Jim isn't the usual type of pt using it so has to be careful!
                                                           Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

CHD63

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Re: Donnalynn's Husband - Please Pray
« Reply #194 on: October 10, 2010, 08:19:43 am »
Donnalynn .....

Adding my agreement about the Coumadin.  Keeping the INR between 2 & 3 is a real balancing act.  Truman was told that it takes three days before changes in Coumadin dosage or extra Vitamin K rich food intake for it to show up in the INR.  I would be very careful about this without very frequent INR checks.  Truman's INR went from 4.2 to 1.9 in a week during his early months on Coumadin.  This is one of those instances where you really need to be cautious.

Many thoughts and prayers continue.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011