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Author Topic: Donnalynn's Husband - Please Pray  (Read 78837 times)

iluuvpups

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Re: Donnalynn's Husband - Please Pray
« Reply #30 on: September 01, 2010, 05:59:21 pm »
We are here for you - praying and supporting you, Donnalynn!  Hang in there.
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Original 1.75cm left-side AN diagnosed Feb 2010
Translab surgery May 27, 2010 with Drs. Kartush and Pieper of MEI
SSD on left side, some facial weakness, tear duct doesn't work
Found I actually had a facial neuroma during translab
Remaining 6mm facial neuroma - watch and wait

free2be

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Re: Donnalynn's Husband - Please Pray
« Reply #31 on: September 01, 2010, 06:26:30 pm »
Donnalynn,

I'm so sorry you are both going through all this. Do you have any friends or family that could help out, especially one that's a nurse? How terrible a situation to be put in. I have you on our church prayer list and we'll all be praying for Jim.

Hang in there.
Connie
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Diagnosed Nov. 2008 Right AN 7 mm x 9 mm
Incremental MRIs enhancing mass
June 2010 1.4 cm x 0.9 cm extension into the CP angle
Pre-CK Stanford measurements 1.6 X 1.1 cm
9/29/10 - 10/1/10 CK completed with Dr Steven Chang and Soltys, Stanford.
6-month thru three year (8/13) follow ups MRI: stable

msmaggie

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Re: Donnalynn's Husband - Please Pray
« Reply #32 on: September 01, 2010, 06:30:31 pm »
Donnalynn,
 You can cry all you need to, and we will pray all the prayers needed to give you the strength and peace that are necessary.  Know that we are with you during the small hours.

Priscilla
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Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

JerseyGirl2

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Re: Donnalynn's Husband - Please Pray
« Reply #33 on: September 01, 2010, 06:35:03 pm »
Donnalynn,

Thoughts and prayers are with you and your family.

Catherine (JerseyGirl 2)
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Translab surgery and BAHA implant: House Ear Institute, Los Angeles, 1/2008
Drs. J. House, Schwartz, Wilkinson, and Stefan
BAHA Intenso, 6/2008
no facial, balance, or vision problems either before or after surgery ... just hearing loss
Monmouth County, NJ

Rich56

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Re: Donnalynn's Husband - Please Pray
« Reply #34 on: September 01, 2010, 07:12:22 pm »
Donnalynn we are so sorry that this is happening to the two of you, what a terrible situation.  Our thoughts and prayers remain with you and Jim, that the meds and Jim’s body each do their part, and restore his health.

Rich & Scarlett
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SML (Scarlett's) other half, she had - 1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid on 3/18/09 at MGH in Boston, MA. Dr. Barker & Dr. Lee of MGH/MEEI
no facial issues, SSD right side, balance issues to work on.
The AN Calendar is here: http://www.my.calendars.net/AN_Treatments

moe

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Re: Donnalynn's Husband - Please Pray
« Reply #35 on: September 01, 2010, 07:21:34 pm »
Praying for strength for you Donnalynn, and for the clot to dissolve peacefully.
Do you have home health nurses who can come and check on him, draw blood? He needs that, especially since he can't be walking on the leg.
I'd be there in a heartbeat. How scary for you-  Hang in there, I'm so sorry you have to be going through yet another ordeal.
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Kaybo

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Re: Donnalynn's Husband - Please Pray
« Reply #36 on: September 01, 2010, 08:26:35 pm »
Just got home and reading this (these super long days are killing my ability to stay "up" with things on the Forum!)...You know that you are in my prayers...wish I could do more!

Peace and Love,
K 
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

ombrerose4

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Re: Donnalynn's Husband - Please Pray
« Reply #37 on: September 02, 2010, 07:28:41 am »
Just want to add more prayers for both Jim and you to give you the strength to get through this horrible ordeal. We are all there for you.
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Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

Lizard

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Re: Donnalynn's Husband - Please Pray
« Reply #38 on: September 02, 2010, 09:21:26 am »
Donnalynn,
Thank you for posting the update, I too wish i live just around the corner so I could come and give you a big hug.  Lots of love and cyber hugs your way.
hang in there, and try to have faith that Jim will not have anymore clots.
Liz
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

Pooter

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Re: Donnalynn's Husband - Please Pray
« Reply #39 on: September 02, 2010, 02:32:18 pm »
Donnalynn,

Please know that you and Jim have been in my thoughts and prayers.  I've been following along with the conversation behind the scenes up until now.  Please keep us updated.

Regards,
Brian
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Diagnosed 4/10/08 - 3cm Right AN
12hr retrosig 5/8/08 w/Drs Vrabec and Trask in Houston, Tx
Some facial paralysis post-op but most movement is back, some tinitus.  SSD on right.
Story documented here:  http://briansbrainbooger.blogspot.com/

"I must be having fun all wrong!"  - Roger Creager

saralynn143

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Re: Donnalynn's Husband - Please Pray
« Reply #40 on: September 02, 2010, 07:56:38 pm »
Still praying, Donnalynn, how are the two of you holding up?

Sara
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Soundy

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Re: Donnalynn's Husband - Please Pray
« Reply #41 on: September 02, 2010, 08:07:36 pm »
I have been MIA and I am saddened to hear this ... will keep my rock in hand and pray for Jim ... and for the strength you will need to be there for him
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3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

saralynn143

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Re: Donnalynn's Husband - Please Pray
« Reply #42 on: September 03, 2010, 05:58:10 am »
Is that next Friday as in the 10th? You can check with the office and check wthether they keep a cancellation list, and ask that Jim be put on it to possibly get in sooner.

In the meantime, I pray that Jim gets relief from the pain and that both of you are given peace to wait during this difficult time.

Love from Missouri.

Sara
Logged
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

moe

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Re: Donnalynn's Husband - Please Pray
« Reply #43 on: September 03, 2010, 10:08:09 am »
Wishing and praying for a GOOD day for BOTH of you, and some answers to easy your anxiety.
Blood clot be gone, plz.
Maureen
Logged
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

iluuvpups

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Re: Donnalynn's Husband - Please Pray
« Reply #44 on: September 03, 2010, 02:34:28 pm »
How did Jim's appointment go today, Donnalynn?
Logged
Original 1.75cm left-side AN diagnosed Feb 2010
Translab surgery May 27, 2010 with Drs. Kartush and Pieper of MEI
SSD on left side, some facial weakness, tear duct doesn't work
Found I actually had a facial neuroma during translab
Remaining 6mm facial neuroma - watch and wait
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