Author Topic: Donnalynn's Husband - Please Pray  (Read 78848 times)

msmaggie

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Re: Donnalynn's Husband - Please Pray
« Reply #90 on: September 08, 2010, 04:20:07 pm »
You all (as in y'all ) deserve a super duper chill day!  We are so pleased that things are going well and that there is a plan in place.  The other bonus is that you like the dr.  Give your Jim and Vanessa hugs from us and keep those arms open wide!!

Priscilla
Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

yardtick

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Re: Donnalynn's Husband - Please Pray
« Reply #91 on: September 08, 2010, 05:50:05 pm »
"Chill Day", love it!!  Enjoy  :-* :-* :-* :-* :-* :-* :-*

Anne Marie


PS When you have unwound from your "Chill Day" let us know how you and Jim are.
Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

ombrerose4

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Re: Donnalynn's Husband - Please Pray
« Reply #92 on: September 08, 2010, 05:56:02 pm »
As I celebrate Rosh Hashana, the Jewish new year, I keep you, Jim and Vanessa in my thoughts. I pray that tonight (jewish holidays begin at sundown the evening before) will be the start of a new, healthy year for all of you. Stay strong!
Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

moe

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Re: Donnalynn's Husband - Please Pray
« Reply #93 on: September 08, 2010, 06:22:41 pm »
Donnalynn,
I'm so glad that a plan is in place, thank you for sharing all the details. I know you must be exhausted! But you sound more optimistic-that is refreshing. Hope you were able to enjoy some cool weather and chill.
Continued prayers going out everyday. Let's pray for a restful night sleep for all of you  :)
Maureen
And he got is o2, hopefully he can have it on when he sleeps...ZZZZzzzzzzz.
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

lori67

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Re: Donnalynn's Husband - Please Pray
« Reply #94 on: September 08, 2010, 07:56:21 pm »
Donnalynn,

Sorry to chime in so late here - I've been out of town.  However, a little birdie told me you were in need of some extra prayers a few days before I left town, so although I didn't know why you needed extra prayers, you got 'em anyway!   ;)

First of all, I hope the doctor can get to the bottom of this and get things back in proper working order for poor Jim. I'm sure he's sick of being sick!   And second of all, I'm just so amazed at how any hospital can turn away a patient in his condition!  That is unbelievable that they can do that!  I get the full bed thing, but I think I would have people start sleeping on the desk in the nurses station before I'd send them home with a blood clot!  I'd say to come here, but we don't have any decent hospitals in Virginia Beach either.  You need to go to the big cities - all the ones mentioned earlier are good ones.

As far as the filter Moe mentioned, the docs used them all the time when I worked in the hospital - they used Greenfield filters, which may be different than what Moe was talking about, but I doubt it.  They always seemed to have good luck with them.  It did require lifelong anticoagulants, but at a much lower dose than you'd get for the acute stages.

Keep taking those nice firemen up on their offers of help and stay well rested.  Keep us posted and give me a call anytime.

Hugs to the family!
Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Jackie

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Re: Donnalynn's Husband - Please Pray
« Reply #95 on: September 08, 2010, 08:18:51 pm »
Dear Donnalynn,

Glad to know you are getting some action in regards to Jim's care. I feel you have been given HOPE. Just remember Hope sees the invisible, feels the intangible
and achieves the impossible. Continued prayers coming your way, for your renewed spirit. Love to Jim, Van and you dear one,
Jackie
9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

dalern

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Re: Donnalynn's Husband - Please Pray
« Reply #96 on: September 08, 2010, 08:47:32 pm »
Dear Donnalynn,
It's so much more helpful when a plan of care is underway.  I am so glad to hear that and will continue to send prayers and good thoughts your way.  I know this has been a most stressful and scary time for all of you.
Wishing you all the best,
Dale
Dale Barnes, RN, MSN, CLNC
Tarzana, CA
1998 Sudden Onset Idiopathic Sensorineural  hearing loss diagnosed at House Ear Institute, Los Angeles
BAHA June 30, 2010 Dr. Jeffrey Harris UCSD San Diego

suboo73

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Re: Donnalynn's Husband - Please Pray
« Reply #97 on: September 09, 2010, 04:22:04 am »
Hi Donnalynn,

Am coming to this thread very very late...
SO SORRY to hear that Jim has been so sick.

I am sending more prayers to you and your family.
Stay strong and let us know how you are doing.

Sincerely,
Sue
suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

Tisha

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Re: Donnalynn's Husband - Please Pray
« Reply #98 on: September 09, 2010, 06:46:47 am »
I'm so sorry to hear this DonnaLynn.  You have been there thru thick and thin for so many of us that past few years.  Hope our prayers help Jim.  Big hugs...Tisha
1.7 x 1.0 x .9 cm (diagnosed Oct 2008)
1.8 x 1.2 x 1.1 cm  (July 2010-swelling)
1.5 x .9 x .9 cm  (Mar 2013 - 5 yr MRI)
Cyberknife at Stanford, week of 1/12/09 -  Drs. Chang and Soltys

saralynn143

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Re: Donnalynn's Husband - Please Pray
« Reply #99 on: September 09, 2010, 08:04:05 pm »
Hi Donnalynn, looking forward to hearing about today's ultrasound and tomorrow's hematology appointment.

My God continue to hold Jim in his healing hand and give you all strength and peace.

Love you,
Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Kaybo

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Re: Donnalynn's Husband - Please Pray
« Reply #100 on: September 10, 2010, 06:21:59 am »
In Amarillo packing up but still praying & following updates. Can't wait to talk to you soon...oh, & small good news for the day...I made sure my new phone service had FREE LD to CANADA! Yipee!

Love to all,
K
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

pjb

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Re: Donnalynn's Husband - Please Pray
« Reply #101 on: September 10, 2010, 11:50:05 am »
My prayers are with you and your husband and hoping this doctor will do everything possible....

Best Wishes,

Pat
Diagnosed with a 1 cm. AN had Retrosigmoid
Approach surgery July of 2009, several problems after surgery.

wendysig

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Re: Donnalynn's Husband - Please Pray
« Reply #102 on: September 11, 2010, 01:02:07 pm »
Donnalynn,

I haven't been around for a while and I'm sorry I am coming to this thread so late and am sending my best wishes and prayers that Jim will be alright.  Please keep us posted.

Best wishes,
Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

saralynn143

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Re: Donnalynn's Husband - Please Pray
« Reply #103 on: September 11, 2010, 01:04:17 pm »
Hi Donnalynn, my prayer for this weekend is that those pesky clots are quietly dissolving as you and Jim relax and enjoy each other's company.

Sending love from Missouri,
Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

ksiwek

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Re: Donnalynn's Husband - Please Pray
« Reply #104 on: September 11, 2010, 10:41:50 pm »
Still praying for you, Jim and Vanessa constantly...I believe in miracles!  XOXO  Kris
Translab 6/4/10 for 4+ cm left AN.  Drs Friedman and Schwartz at HEI saved my life!
BAHA surgery on 10/7/10 with Dr Battista of Chicago Ear Institute (Oticon Ponto Pro)