Author Topic: Capt Deb cancer update  (Read 43947 times)

saralynn143

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Re: Capt Deb cancer update
« Reply #75 on: September 15, 2010, 04:53:29 am »
Remember when blingy shoe clips were in? Hint: big sparkly clip on earrings work great for that purpose. You can usually find interesting ones at thrift stores.

Sara
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Captain Deb

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Re: Capt Deb cancer update
« Reply #76 on: September 15, 2010, 08:54:49 pm »
I have a surgical date--Thursday, October 7th at 10:30 at Charlotte Presbyterian Hospital.  They gave me the option to boot me out later that day, but I have insisted they keep me overnight.  I am the Complications Queen!  Both of my major surgeries I was rushed back in the day after I was released. 

Working right now on a pair of ugly beige Merrill sport shoes that are becoming sparkly turquoise, pink, lime green and purple.  WAY less boring and quite a conversation piece.  Took a before picture and will post it with an after picture soon.

My vampire I deleted off facebook wrote me a huge apology letter and "wants to put the past behind us."  I'll have to think about that one.  Maybe the prayers I have been saying for her are working?

Soundy, you are so funny--Cancer, Vampires, Pirates and Sparkly Shoes are hard to put together.  Only us wonkyheads, right???

Capt Deb
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

ppearl214

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Re: Capt Deb cancer update
« Reply #77 on: September 16, 2010, 04:05:24 am »
um, Capt... with all due respect... you are having the procedure done on da bloke's and my wedding anniversary......  :o  :o  :o

will phone later! ;)

xoxooxoxoxoxoxoxo
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

msuscottie

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Re: Capt Deb cancer update
« Reply #78 on: September 16, 2010, 09:34:27 am »
October 7th is also the 6-year anniversary of my first AN surgery. I guess that's a good day to have surgery?

Good luck!

Soundy

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Re: Capt Deb cancer update
« Reply #79 on: September 16, 2010, 11:03:26 am »


Soundy, you are so funny--Cancer, Vampires, Pirates and Sparkly Shoes are hard to put together.  Only us wonkyheads, right???

Capt Deb


I was kind of reading in my sleep when I was here and totally got confused and had to re-read several pages until I caught up and caught on ...some days I wonder how I make it to the end and not get lost ...

hope surgery goes well for you and I would insist on over night too ... both day surgeries I had (carpel tunnel and hysterectomy ) I ended up back at hospital with issues ... they are in such a hurry to get people in and out that care issues sometimes is not taken care of before release

I only have one pair of gray New Balance walking shoes (boring) and one pair of black Nike sandals suitable for walking  in water ... you make me want to go out and buy shoes so I can decorate them ...

been working on tattie bogle design ....last year they were old ladies ... didn't participate ... this year as pirates I figure it will be easy ... I think I will make mine female and name her Captain Deb ... a good luck charm for you ... they are suppose to keep away the baddies .... we have prayer rocks ... a tattie bogle seems to be perfectly logical to me
3mm AN discovered Aug 2004
Translab July 2 ,2007
3.2cm x 2.75cm x 3.3cm @ time of surgery

Captain Deb

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Re: Capt Deb cancer update
« Reply #80 on: September 16, 2010, 11:13:52 am »
OOOOOOOOOOOOOOOOOOOOOOOOO!!!!

A Tattie Bogle named after meeeeeeeeeeee!!!!

Now THAT'S a first!  Be sure to give her the proper scars--big one on left head, right elbow, 1 on bellybutton, 4 others on tummy, and now 2 on the neck!

Capt Deb
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Debbi

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Re: Capt Deb cancer update
« Reply #81 on: September 17, 2010, 08:13:34 am »
Deb, you know I am thinking of you and sending you all kinds of good luck pirat-itude.  And hugs ... lots and lots of hugs.

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Captain Deb

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Re: Capt Deb cancer update
« Reply #82 on: September 17, 2010, 09:03:02 pm »
Thanks, Debbi-wench!!  hugs is always appreciated!!!! AArrrr!!!!!
(Gettin' a start on ITLAPD!!!)

Capt Deb
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Patti UT

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Re: Capt Deb cancer update
« Reply #83 on: September 23, 2010, 03:16:45 pm »
Deb,
    Have the calander marked and will wash the pirate socks and have them ready for Oct 7.  Will someone be updating this thread for you so we know your OK?

In my thoughts & Prayers

BIG HUGS

patti yootee
2cm Rt side  middle fossa  at University of Utah 9/29/04.
rt side deafness, dry eye, no taste, balance & congintive issues, headaches galore
7/9/09 diganosed with recurrent AN. Translab Jan 13 2010  Happy New Year

Larry

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Re: Capt Deb cancer update
« Reply #84 on: September 23, 2010, 07:34:31 pm »
Hugs and stuff from down under Deb


Laz
2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
Chronologer of the PBW
http://www.frappr.com/laz

ppearl214

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Re: Capt Deb cancer update
« Reply #85 on: September 24, 2010, 04:17:35 am »
Will someone be updating this thread for you so we know your OK?

YOUTEEEEEEEEEEEEEE!!!!!!!!!!!!!!!!!!!!!!!!!!!  :-*  :-*  :-*

You know you can count on me for the updates! :)

xoxoxoxoox
Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Lizard

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Re: Capt Deb cancer update
« Reply #86 on: September 24, 2010, 11:15:08 am »
Thanks Phyl, and good luck to you our fearless captain!
Liz
Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

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SML

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Re: Capt Deb cancer update
« Reply #87 on: September 24, 2010, 02:00:53 pm »
We'll be saying our prayers for you! :-*

I'm on my way to Walmart to get me some of them pirate socks!

Scarlett
SML(Scarlett)-Massachusetts
1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid 3/18/09 at MGH in Boston,MA.
Dr. Barker - Neurosurgeon, MGH - Dr. Lee - Neuro-Otology, MEEI
no facial issues, SSD right side, balance issues to work on.
Outstanding Surgeons, I'm very happy with the results.

Captain Deb

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Re: Capt Deb cancer update
« Reply #88 on: September 25, 2010, 06:58:48 pm »
Good to see ya here Miss Yooooteeee-wench! I'm just counting down the days till this is over with and trying not to fret, but it's hard.  My puter surge protector died so I can't post pics of my bee-yoo-tee--ful new painted footwear but will try to get one this week so I can plug things back in to unload me camera.  Now have metallic leopard ballet flats and purple, lime green, pink, and turquoise tennies!

Hugs to you all,

Capt Deb
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

leapyrtwins

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Re: Capt Deb cancer update
« Reply #89 on: September 25, 2010, 07:03:33 pm »
OOOHHHH!!!  Can't wait to see the tennies!!  ;D
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways