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Author Topic: Steroid injections?  (Read 14653 times)

cin605

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Re: Steroid injections?
« Reply #15 on: September 30, 2010, 12:34:21 pm »
Zip,Zap,Zilch,Nada is what i got out of these shots to the spine....grrr.....told them the pain was in the right side of head and neck...they give me shots right smack in the middle....Whats next?Perhaps Botox in Dec.,when my insurence switches over.
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Steroid injections?
« Reply #16 on: September 30, 2010, 03:10:54 pm »
My doc on Tuesday told me Botox wouldn't help my cluster headaches.   I would really like to try them, but he wasn't encouraging for me since the steroid shots didn't help.

Sorry your shots didn't help!
Hugs,
Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Lizard

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Re: Steroid injections?
« Reply #17 on: October 01, 2010, 10:24:34 am »
Bummer, it sounds like they tried cervical fascet blocks, what about trying occipital nerve blocks?  There are so many types, but that's the one that worked for me...the neck pain is pretty much gone and I don't have a headache in the front that radiates to the back in the morning.  Huge relief..don't give up yet!
Liz
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

Mei Mei

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Re: Steroid injections?
« Reply #18 on: October 01, 2010, 01:27:33 pm »
Thanks Liz,   I did have several Occipital Nerve Blocks at two different doctors and none of them worked.   I'd really like to try the Botox because so many of you said it worked.   I don't know why he thinks it won't work for me.
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Steroid injections?
« Reply #19 on: October 05, 2010, 09:51:50 am »
Went back for consult today.....next try is a Medial Branch Block...anyone???? ???
« Last Edit: October 05, 2010, 09:54:08 am by cin605 »
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

cin605

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Re: Steroid injections?
« Reply #20 on: October 05, 2010, 10:28:57 am »
Also so looking for imput on facet denervation???
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Lizard

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Re: Steroid injections?
« Reply #21 on: October 05, 2010, 10:34:43 am »
Medial branch block, that sounds interesting...I'm googling now.  looks like its for lower back pain?  See this link, which also talks about radio frequency lesioning.  Seems to be similar to denervation?

http://www.permanente.net/homepage/kaiser/pdf/6755.pdf

Please keep me posted on what you discover.
Liz


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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

cin605

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Re: Steroid injections?
« Reply #22 on: October 05, 2010, 10:53:25 am »
Sorry...cervical facet denervation..
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Lizard

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Re: Steroid injections?
« Reply #23 on: October 05, 2010, 10:57:41 am »
My guess is its the same type of procedure, where the "warm" up the nerves to cause them to shutdown for a time.  This is not permanent, but would work for an extended period of time, like the blocks.
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

cin605

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Re: Steroid injections?
« Reply #24 on: October 05, 2010, 10:59:26 am »
Thanks Liz......Radio frequency lesioning...kind of scarey but..  i am really at my wits end w/ this head and neck pain.I just can not live w/ it.....as in not function.....it is so limiting every thing from grocery shopping to driving more then a half hour at a time...grrr..grrr..grrr
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Steroid injections?
« Reply #25 on: October 05, 2010, 11:25:46 am »
I hear you, Cindy.  I was pretty deptressed yesterday about it.   I felt like I was crawling out of my skin.   Just can't escape...our lives are so changed now.
Hugs,
Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Lizard

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Re: Steroid injections?
« Reply #26 on: October 05, 2010, 11:32:13 am »
No problem, its been a really bad week for headaches and its making me pretty nutty too...I just wish I would wake up one day and feel no pain!
I'm currently waiting on a pain management group to review my file right now and hoping they will have some more "block" related options for me....
Keeping them crossed, because even though I'm trying to stay positive the pain is beginning to take over my life again! 
Liz
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

Mei Mei

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Re: Steroid injections?
« Reply #27 on: October 05, 2010, 02:35:58 pm »
The same here, Liz.   Getting very desperate and sad.   Hope you get some relief.
Hugs,
Mei Mei
Logged
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Lizard

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Re: Steroid injections?
« Reply #28 on: October 06, 2010, 09:28:57 am »
You too Mei Mei, its a tough journey for us and its just that much harder when the weather changes and the cold starts creeping in.  I hate those winter blues...
 :-* :-* :-*
Liz
Logged
Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

cin605

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Re: Steroid injections?
« Reply #29 on: October 08, 2010, 07:01:35 pm »
I went for the first shot to see if cervcal medail nerve block will help.......i coughed w/o pain...got really nauseous....stiff neck for awhile then no pain....now its worn off and all has kicked in....going to bed hoping for a better day tomorow.
Going back next Fri. for another....i'll take the nausea over the pain...they say if these test shots work for 4 hours then hey will do the complete nerve block.
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2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old
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