Author Topic: Differences in radiation treatment  (Read 2424 times)

Sonia

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Differences in radiation treatment
« on: October 19, 2010, 08:40:51 pm »
Hello,

     Is there a difference in radiation machines? In Orlando,FL it called gamma knife and in Gainseville, FL it's called radio surgery? In another post I read proton radiation therapy? I am thinking of getting radio surgery because the machine looks newer and the doctors are more experienced in AN tumors.
     Has anyone had Radio Surgery in Gainseville, FL? What should I expect? Same as all radiation treatment? All the doctors say it's easy and I can go back to work the next day? But I am a little nervous about the hallo and just the fact it's large amount of radiation at one time. I going to give myself a couple of days to just relax and get back into the grove of things. My biggest concern is more mental than physical. With my other surgeries it took awhile for me to get over the feelings and memories.

Thank you,
S :)nia

Funnydream

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  • Texas in my room crying. Guys can't cry. DARN IT.
Re: Differences in radiation treatment
« Reply #1 on: October 20, 2010, 12:52:53 am »
Yes the machines are differnet. Yes the way in which the doctor approaches with the machines is differnet too. Such as with a cyberknife machine some doctors use less radiation near vital tissue.

I think. Notice I said I think. That Cyberknife is the most recent tech.

I really recommend using internet search and look up the machines and how they may be used.

If I understand it right there are really only 2 major types of radiation. Gama-knife and Cyberknife. And things have changed over the years for both. Better software, better historic analysis, etc. Also it seams names have changed. Like Radio Refractive Surgery and names like that.

Here is a cyberknife forum. www.cyberknife.com

Remember I'm not a Doctor. Just someone trying help. But I may be flawed in what I know.

Here is a link to a members blog. Don't remember his name. But he took the radiation. http://www.myacoustic.org/home.html
Age 42, AN left, 2.8cm
left hearing gone, balance getting better.
16 hour Surgery 9-27-10 CSF leak fix 10-4-10 3 hours
Miracle I feel my left face and tongue again.
If we evolved from monkeys into humans? When do we stop being human and become something else? What would that something else be?

free2be

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Re: Differences in radiation treatment
« Reply #2 on: October 29, 2010, 08:02:00 pm »
Sonia,

It is a complicated decision, but I recommend you do your research, a lot of which can be done with searches here on this forum and with the information from the ANA association...sign up and request info. Trish had Novalis in Gainseville, FL and so she might chime in here.

Connie
Diagnosed Nov. 2008 Right AN 7 mm x 9 mm
Incremental MRIs enhancing mass
June 2010 1.4 cm x 0.9 cm extension into the CP angle
Pre-CK Stanford measurements 1.6 X 1.1 cm
9/29/10 - 10/1/10 CK completed with Dr Steven Chang and Soltys, Stanford.
6-month thru three year (8/13) follow ups MRI: stable

Tumbleweed

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Re: Differences in radiation treatment
« Reply #3 on: October 29, 2010, 11:21:30 pm »
Hi, Sonia:

"Radiosurgery" is a general term to describe radiation treatment applied in one dose (such as with the GammaKnife procedure). "Radiotherapy" refers to fractionated radiation treatments; that is, radiation treatments that are split up into multiple, smaller doses (so that the body doesn't get too harsh of a dose all at once). Radiotherapy typically refers to "fractionated stereotactic radiation," or FSR. In plain English, this means the head is held in position so that it can receive radiation (divided into small doses spread 24 hours or more apart) accurately targeted at the tumor. CyberKnife is a form of FSR that is pretty broadly regarded as the most accurate; accuracy is important, as it minimizes collateral damage to healthy tissues. GammaKnife offers roughly the same degree of accuracy as CK.

I posted a comparison of the different types of radiation treatments here: http://anausa.org/forum/index.php?topic=6670.0
Following (in quotes) is an excerpt from my post, in case you don't want to read the entire thread:
"As for radiosurgery, GammaKnife (GK) and CyberKnife (CK) are both more accurate than standard FSR (fractionated stereotactic radiation) such as Novalis. CK is also a form of fractionated radiotherapy, but its accuracy gives it a leg up on standard FSR.

CK delivers a more homogeneous dose to the tumor compared with GK. CK delivers only 15% higher dose to the center of the tumor than at the periphery, whereas GK delivers fully double (100% greater) dose at the center compared to at the periphery. CK advocates believe that GK's higher dose at the center of the tumor increases the chance of damage to nearby healthy tissue. Also, GK delivers one large dose to the tumor because one treatment is all you can do with GK (this is because a ring is fitted to your head for the treatment and, once it's removed, there's no way to get it exactly in the same place for a second treatment). With CK, on the other hand, a thermoplastic mask is custom-fitted to your head and the tumor's location (in relation to the mask and your bony structures) is plotted into the computer; on followup visits for treatment, they put the mask on your head again and you're ready for the next dose. This flexibility allows CK to apply smaller doses to the tumor than GK with each treatment; together, the smaller doses add up to the same total biologically equivalent dose as you would get with GK's one and only treatment, but (theoretically, at least) the hearing nerve and other healthy tissue has time to recover in between treatments (whereas the tumor supposedly doesn't recover as quickly). Presumably due to the fractionating of dosage, studies show CK yields slightly better results at preserving hearing compared with results for GK. Furthermore, GK's ring is screwed into the head (the screws stop at the skull) to keep it stationary (so that the radiation stays focused on the tumor), a mildly invasive procedure. CK is totally non-invasive: a series of overhead X-rays tracks the patient's head movements and tells the computer-controlled CyberKnife machine which way to move to track any small movements the patient may make so that the radiation stays centered on the tumor. GK advocates say that's all well and good, but GK has about 40 years of track record, whereas CK has been around a lot less time and is not as proven of a treatment as GK. (CK was approved by the FDA in 1999, although Stanford University Medical Center has been using it since 1994 in clinical trials because their Dr. Adler invented CK.)

The best advice I can give you is shop around for the right treatment/doctor/facility for you and get at least 2 or 3 opinions (I got 6!). Develop a list of questions you want to ask each doctor you see, and interview the heck out of them. After awhile, you will know in your heart what is the best path for you personally to take."

Best wishes,
TW
L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08