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Author Topic: W&W for another year  (Read 7178 times)

LisaP

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W&W for another year
« on: October 25, 2010, 05:04:54 pm »
Hi,

I received great news today.  Had my MRI today, then saw Dr. McKenna at the Mass Eye and Ear and he stated that I had not growth, was stable so I can continue to W&W for another year.  Thanks everyone for all of your well wishes.


LisaP ;D
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LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

Lizard

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Re: W&W for another year
« Reply #1 on: October 25, 2010, 06:48:30 pm »
Lisa,
That's great news!   ;D ;D
Liz
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

Jackie

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Re: W&W for another year
« Reply #2 on: October 25, 2010, 06:59:35 pm »
Oh Lisa P.

That is wonderful news about your no-growth MRI!! We love that kind of news, don't we???? Congratulations, and may you have continued success
with your future MRI's! Blessings to you and everyone,
Jackie
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

Kaybo

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Re: W&W for another year
« Reply #3 on: October 25, 2010, 08:31:48 pm »
Great news!!

K   ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Jim Scott

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Re: W&W for another year
« Reply #4 on: October 26, 2010, 01:48:22 pm »
Hi, Lisa ~

Congratulations on the great MRI report!  Thanks for sharing it.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

LisaP

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Re: W&W for another year
« Reply #5 on: October 26, 2010, 06:24:32 pm »
Hi,

thanks for all of the well wishes and hopefully a good year ahead.

LisaP ;D
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LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

Mickey

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Re: W&W for another year
« Reply #6 on: October 26, 2010, 06:56:03 pm »
Hi Lisa, Thats great news! You know I`m right there with you. Lets keep on goin, Mickey
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Keeping Up

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Re: W&W for another year
« Reply #7 on: October 27, 2010, 06:59:55 pm »
Congratulations Lisa - awesome news.

I am 6 months and several mm's behind you - and hope t track you as a W&W for many years.

Ann
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dx Dec/08 - 5mm x 8mm AN
'watch and wait'

Derek

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Re: W&W for another year
« Reply #8 on: October 28, 2010, 04:35:49 am »
Well done 'princess' Lisa...looking forward to the same good news from you after your next scan!

Derek
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Residing UK. In 'watch & wait' since diagnosis in March 2002 with right side AN. Initially sized at 2.5cm and now self reduced to 1.3cm.
All symptoms have abated except impaired hearing on affected side which is not a problem for me.

LisaP

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Re: W&W for another year
« Reply #9 on: October 29, 2010, 04:39:34 pm »
Hi all,

Princess??? too old for that maybe a "queen", just kidding, thanks for all of the well wishes, can't believe that I am 2 and a half years into this journey.  I hope that 2011 is a better year for me then 2010.  I need some "quiet time" in my life.

Thanks again everyone.

LisaP ;D
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LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

SML

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Re: W&W for another year
« Reply #10 on: November 08, 2010, 07:29:36 am »
Hey Lisa… just saw your post! Congratulations!!!

Scarlett & Rich
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SML(Scarlett)-Massachusetts
1.5 cm x 2.5 cm Cystic AN - Right side
Retrosigmoid 3/18/09 at MGH in Boston,MA.
Dr. Barker - Neurosurgeon, MGH - Dr. Lee - Neuro-Otology, MEEI
no facial issues, SSD right side, balance issues to work on.
Outstanding Surgeons, I'm very happy with the results.

suboo73

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Re: W&W for another year
« Reply #11 on: November 26, 2010, 08:23:58 am »
Hi Lisa!

I haven't been around much on the Forum these days, but pop in occasionally.
(Sorry i am late to this party....)

CONGRATS on your continued W & W status! 
This is great news!

I hope that 2011 brings you better times and the quiet time you desire and deserve.

Sincerely,

Sue
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

Tumbleweed

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Re: W&W for another year
« Reply #12 on: November 26, 2010, 12:16:18 pm »
Terrific news! Congrats, Lisa!

Best wishes,
TW
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

Rivergirl

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Re: W&W for another year
« Reply #13 on: December 21, 2010, 07:38:08 pm »
Lisa, that is good news hope it never grows again and just maybe you can forget about someday....wouldn't that be nice.
Have a peaceful holiday.
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Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

Mark241

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Re: W&W for another year
« Reply #14 on: December 23, 2010, 09:52:51 am »
I'm sure that was a welcome Holiday gift! Great!!
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4cm C1  16hrs                 Barrows, Jan 06      NF2
3.5 cm  Right AN retro       Barrows, Oct 06   
Cranial Plate removal           UNM Nov 07
LP                                   Barrows  Jan,2011
Wound revision                 Barrows Feb, 2011
5mm left middle Fossa,  (2) 2mm spine w&w
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