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Author Topic: Dr Friedman and I on the news tonight...  (Read 10114 times)

ksiwek

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Dr Friedman and I on the news tonight...
« on: November 03, 2010, 09:11:47 pm »
Hi ANA friends...

So the ABC affiliate in Los Angeles aired my story tonight.  My surgery was back on 6/4, but apprently they wanted to run it for sweeps this week.  Thought you all might find it interesting.  They show my MRI briefly, so you can see what a monster it was...Watching the interview made me realize how far I have come in the recovery process!  Things do get better with time.

http://abclocal.go.com/kabc/video?id=7763711


Ironically, I had my first post op MRI this week.  The good news is that my brain is back to where its supposed to be and there is no sign of regrowth!  Feeling both lucky and blessed.  Next MRI in 6 months!

House Calls magazine also featured a story this month about my family in their fall edition.  When they publish the issue online I will be sure to share it!

Best,
Kris



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Translab 6/4/10 for 4+ cm left AN.  Drs Friedman and Schwartz at HEI saved my life!
BAHA surgery on 10/7/10 with Dr Battista of Chicago Ear Institute (Oticon Ponto Pro)

jerseygirl

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Re: Dr Friedman and I on the news tonight...
« Reply #1 on: November 03, 2010, 10:05:11 pm »
Amazing story and what a great outcome! You are truly an inspiration.

               Eve
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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

sterry

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Re: Dr Friedman and I on the news tonight...
« Reply #2 on: November 03, 2010, 10:32:14 pm »
Awesome work by all.  Parker is a lucky baby.  You'll both be chasing each other in a year.  I'm amazed at how much different I feel a year later, and have more energy than I have had in a long time.  Those HEI docs are talented and we are lucky to have found their talents.
Susie
« Last Edit: November 03, 2010, 10:34:28 pm by sterry »
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Left AN 3.7 cm. 10-23-09 
HEI Dr. Friedman, Dr. Schwartz
Translab
Doing well

Funnydream

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Re: Dr Friedman and I on the news tonight...
« Reply #3 on: November 04, 2010, 12:50:14 am »
I thought your supposed to get 15 minutes of fame. Not just 3 minutes.

Anyway, I take it you signed off on them using your MRI and home video. I guess I would too. To help others.

That reminds me I need to get my will fixed to allow my body parts to be donated to others in need and science.

Amazing real life story. If that was put in a TV show. It would rate very high on the drama scale.

Logged
Age 42, AN left, 2.8cm
left hearing gone, balance getting better.
16 hour Surgery 9-27-10 CSF leak fix 10-4-10 3 hours
Miracle I feel my left face and tongue again.
If we evolved from monkeys into humans? When do we stop being human and become something else? What would that something else be?

jaylogs

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Re: Dr Friedman and I on the news tonight...
« Reply #4 on: November 04, 2010, 04:07:17 am »
That was a cool story!!! I recognize those halls very well, having done many laps in them myself! Dr. Schwartz was one of my docs as well...My AN wasn't nearly as big as yours, but I am glad your outcome was terrific!  This story should help open up our world to the general public a little bit more, and hopefully if someone was watching that and has been suffering from similar symptoms they can go seek help.  Take care and thank you for sharing this with us!
Jay
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8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

Joef

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Re: Dr Friedman and I on the news tonight...
« Reply #5 on: November 04, 2010, 05:40:37 am »
Very Cool !!!
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4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

Kaybo

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Re: Dr Friedman and I on the news tonight...
« Reply #6 on: November 04, 2010, 07:19:55 am »
GREAT story!  SO glad everything is working out well!

K   ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Cheryl R

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Re: Dr Friedman and I on the news tonight...
« Reply #7 on: November 04, 2010, 07:33:25 am »
Very good video and really shows there can be good results under worse than usual ANs.         I have a friend who says I should try to write an article for a magazine about ANs and having the surgery.       That was after just the first AN.        Not that good of a writer,so will pass on that one.                  Next Kris go for Oprah.       You are close in location to her!       
                                                  Cheryl R
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Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

krbonner

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Re: Dr Friedman and I on the news tonight...
« Reply #8 on: November 04, 2010, 07:57:38 am »
Thank you for sharing the video.  Brought back so many memories for me - while my AN was  much smaller, my diagnosis was almost exactly the same (halfway through pregnancy).

So glad to know things continue to improve for you!  What a blessed family.

Katie
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diagnosed June 2005
2.3cmx1.6cmx1.4cm left AN
translab Sept 13, 2006; Drs. McKenna and Barker in MA (MEEI/MGH)

CHD63

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Re: Dr Friedman and I on the news tonight...
« Reply #9 on: November 04, 2010, 08:05:19 am »
Kris .....

Thanks for sharing this link.  What an inspiring video and with you and Parker as the fabulous stars!!!

Thoughts and prayers for this wonderful miracle.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Syl

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Re: Dr Friedman and I on the news tonight...
« Reply #10 on: November 04, 2010, 10:11:42 am »
Kris:

I got teary-eyed. Your situation was definitely one of the scarier ones I've seen. Your outcome was nothing short of a miracle with the nerves being tangled up on the tumor. Not to mention the pregnancy.

Can you clarify something for me? Was your surgery done before the baby was born?

Syl
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1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

ksiwek

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Re: Dr Friedman and I on the news tonight...
« Reply #11 on: November 04, 2010, 10:13:12 am »
Quote from: donnalynn on November 03, 2010, 10:25:11 pm
Hi Kris,
 I really just sat down and cried at this video!!! To think I had a part in getting you in touch with Dr. Friedman, and being really bossy about you going there  ;) makes me really smile tonight from ear to ear.
 It really feels good to help others!
I really feel so much apart of your miracle!
 Thanks for sharing this!!!!
 Bless you and Mike and wee Parker too !
 Donnalynn

Donnalynn...

Have your received your copy of House Calls magazine?  You are mentioned in the story as my friend from Canada!  Yes, your phone call and support were defining moments of my AN journey!!!  I am forever grateful for your selflessness and support.  You are one amazing lady!  Blessings to you :)
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Translab 6/4/10 for 4+ cm left AN.  Drs Friedman and Schwartz at HEI saved my life!
BAHA surgery on 10/7/10 with Dr Battista of Chicago Ear Institute (Oticon Ponto Pro)

ksiwek

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Re: Dr Friedman and I on the news tonight...
« Reply #12 on: November 04, 2010, 10:17:15 am »
Syl,

I ended up having to deliver my baby 5 weeks early.  I was in a fast moving downward spiral from the tumor.  So I had a c-section under general anesthesia and then they gave me 2 weeks to recover before the AN surgery.  After having the baby, some of the edema or swelling from pregnancy reduced the pressure on my brain a bit....
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Translab 6/4/10 for 4+ cm left AN.  Drs Friedman and Schwartz at HEI saved my life!
BAHA surgery on 10/7/10 with Dr Battista of Chicago Ear Institute (Oticon Ponto Pro)

Tod

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Re: Dr Friedman and I on the news tonight...
« Reply #13 on: November 04, 2010, 10:56:07 am »
Great story Kris! Thanks for sharing it.

-Tod
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Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

Syl

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Re: Dr Friedman and I on the news tonight...
« Reply #14 on: November 04, 2010, 11:20:49 am »
Kris:

I'm teary-eyed again. That's so much to go through.

Your baby is beutiful.

Syl
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1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.
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