Hi all
Ok, this is NOT to bring praise and stuff..... but only as an FYI in case any of you see this and say "HEY! I KNOW her!" while watching your tv news.........
I've been tapped to do a human-interest health update story re: my AN and CK journey. This is being taped tomorrow at Beth Israel in Boston where I had my CK treatment for my AN almost 5 years ago. My radiation-onc, Dr Anand Mahadevan and I will be interviewed for this story, which will then be fed out to *gulp* over 200 stations nationwide for potential pick up of the story (they can capture the story if they want to air it), including the networks here (ie: ABC, NBC, CBS, etc). The ANA is already aware of this and a part of my interview will cover my pre-treatment research, which includes how I came to these forums seeking out treatment options..... so, the forums are going to be publicized as well.
So, this is to give you a heads-up, in case you are drinking your morning coffee and see my big nose flash across your tv screens (I feel bad for those that have big manly-man big screen tv's with my nose taking up most of the space). Yes, it will be me. Unsure of airing date but once they edit the piece and feed it out, don't know where it may air. It could possibly be picked up in areas that offer CK (ie: N. CA, OKC, Boston, Atlanta, etc) so just letting you know.
The goal of me doing this is the hope that it brings info to those possibly seeking out options for treatment of AN's and nothing more. Seems I'm being tapped for these things (ie: see my thread about guest-speaker spot in Feb in San Fran) and as I told the ANA, if this helps to bring a face to AN's, then I'm all for it. AN's need to be brought to the forefront and public awareness to help our cause works for me, thus, my reason for doing this.
... and yes, I even "grew new blonde hair" for the occassion, granted, it cost me $155 to grow the blonde hairs.
I do this for you all.... and for those down the road that also have this diagnosis....... so, hoping this helps the cause.
Phyl
