Author Topic: Cindys Nerve Ablaision Experience....11/2010  (Read 58680 times)

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #75 on: December 21, 2010, 12:38:49 pm »
Love it when i get to the end of my post and it magially disapears.....
Anyway.....Still feeling very little pain...not to many head spasms....taking fishoil and calcium and vitamin D
Thinking of weaning off the gabepenton.....but baby steps ...not to fall back.
Feels good to be able to move about the country w/o people asking me if my neck is stiff.
feels good to be off the tramadol...muscle relaxers...all the crap they can feed you to make you feel better...only masks the pain and the thought of the pain your in...and then kicks your bum and you get more pain.
I should of and could of nipped this in the bud 2 years ago....who knew?
I had to state plain and clear...i want to go this spine Dr.
Now i kno...learned alot along the way......carry on and hold you head high....(and try to keep it still)
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #76 on: December 23, 2010, 08:27:24 am »
Woke up today w/ no balance,clogged ear...wonky head.....three steps back as we say here.
I am going to blame it on stress and the weather...Its been snowing on and off for about 3 days.
The wierd part is i had a nightmare that i was at an indoor pool and lost my balance and slipped backwards. ::) ???
Life is funny... :o
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #77 on: December 23, 2010, 02:08:10 pm »
Really funny.   We have to learn to laugh to help ease the pain in this slow recovery.   I'm down in Charlottesville without the Voltaren RX and might have to go to an Urgent Care Center.   Doing MRIs of head and neck and X Ray of Neck on Monday back in DC.   The neurosurgeon wants me to meet Dr. Ducic so I have an appointment on Jan 18.   Will call them for cancellations.   My primary care and my neurosurgeon in DC both think the Occipital is entrapped by the Titanium mesh.   Can't wait to look at the MRIs next week.

Have a Merry Christmas and a Happy New year every one!

Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #78 on: December 23, 2010, 02:54:09 pm »
I think i may have over did yesterday...washed the floors by foot and hand.Should have just used the damn mop....Son came home and cooked and broke a glass.....Used the mop today.
Merry Christmas and Happy Healthy New Year.
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #79 on: December 23, 2010, 05:18:16 pm »
Take it easy, Cindy.   Try to remember Baby Steps after this Ablation.   You have treat yourself well.   Remember that so you really can have a Merry Christmas!
Hugs,
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #80 on: January 06, 2011, 06:31:03 pm »
Almost 2 months out and feelin alot better...went for follow up monday and the gave me 3 shots of lidocain/depo medrol....feeling god pain level at about a 2 ;D ;D ;D
Taking gabepenton,lorazepam,amnitrypline ibruprophen 800
Let the good times roll....i still tire easy and wake up w/o my balance some days but the mirical of pain diminishing and being able to move my neck back n forth w/out pulling and head tremor is great,
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #81 on: January 06, 2011, 09:13:17 pm »
I'm thrilled for you.   I've got a headache brewing right now and know that light is burning at the end of the tunnel when I read these wonderful posts of improvement on your status.  Yay, Cindy!   ;D
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #82 on: January 09, 2011, 09:12:26 am »
Today no balance....nausea....feel like i am underwater.....when somebody speaks it sounds like i am in the bathtub w/ my head underwater...Grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr ::)
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #83 on: January 09, 2011, 02:46:36 pm »
This doesn't sound good.   I think you should be seen.   This is definitely something new for you.   Go get seen.
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

richiea

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #84 on: January 09, 2011, 06:13:44 pm »
i just read your replies back and forth to each other...............is this ever going to end?????  all your feelings, i have and i just think to myself when will all this go away.  i guess it doesn't.  i'm going to find out about the ablation when i visit with my doc. on the 18th.  thanks for the info. 

Captain Deb

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #85 on: January 09, 2011, 08:19:19 pm »
Richlea,
Do a little googling of Prolotherapy and migraines.  Something I have been looking into.  There's a link to a site in the "Chicago area clinic" thread in this topic.

Capt Deb
"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #86 on: January 10, 2011, 04:26:52 pm »
Thanks for info Deb...MeiMei...i do not think the dr is going to say much...same old,same old.I have my yearly mri in june along w/ audio work up..ENT visit and neurosurgeon visit...what ever is going on it will stop or be there in June.Feeling better today....but ended up taking 1/2 tramadol yesterday and 1/2 today.....balance is back ear some what clear...di d not have to take the amnitryptline last night....if i take a 1/2 of tramadol...i will sleep w/o it ithe amnitryp .Itis making me exausted....sooo the battle marches forward.
I am not seeing anymore docs,chiro,dentist,pain specialist for the rest of the month...i am going to try and let everything just calm down...its the 10th of the month and i had appointments everyday last week...today it was the dentist,well my teeth are clean....my necks in line,meds are filled,grocery shopping done,laundry done,vacumed the dishes again.. ;D
Blizzard warnings for tomorow night..Bring it!
I dunno Richlea....All we can do is rsearch and try anything we can to feel better then yesterday.
Some times i think...hey this is all the crap i had before they cut my head open....then i think hey it could be alot worst if i was to wait and have surgery after the AN had wrapped around some more nerves.
Thanks for listening and being there.Big Hugs to all!
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #87 on: January 10, 2011, 05:00:20 pm »
Hi Cindy,
Sounds like you need a vacation from the medical community.   I'm sure the rest of us do, too.
It's very time consuming and gets you so disorganized.  I have a pile of mail here piling up.   Just keeping up with the bills every month overwhelms me right now and here we are at tax season.   My headaches and neckaches are keeping me from keeping up.    I'll work on things this weekend.

Glad you are getting some sleep and have things under control.
Hugs,
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

cin605

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #88 on: January 11, 2011, 05:29:29 pm »
Yes i do need a vaca......Today was a good day...no issues....I have taken my gabepenton and a couple tylenol.....makes me wonder why it just comes and goes.....What along strange trip its been,
2cm removed retrosig 6/26/08
DartmouthHitchcock medical center lebanon,N.H.
43yrs old

Mei Mei

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Re: Cindys Nerve Ablaision Experience....11/2010
« Reply #89 on: January 11, 2011, 06:45:35 pm »
It has been.   I'm worried about you.   These are different symptoms.  You should be seen by the doctor that best knows you before the weekend.   I know there is a blizzard on the way, but I would feel better if you were seen.
Hugs,
Mei Mei   ;)
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh