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Author Topic: Last official day in the WandW  (Read 4406 times)

petgroomer

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  • Love to live... Live to love...
    • Vagal Schwannoma
Last official day in the WandW
« on: November 30, 2010, 12:18:55 pm »
No more in this club come tomorrow at 1 pm. 
W and W has been a great option until C.K. came to Ontario! (for me anyway)
I feel honoured to get in so soon for this treatment as there are only 3 machines in all of Canada.  Mine being only installed two months ago.
Anyway, next time I write it'll be on the Postie side of town.
xo
Logged
JULY 2009 found 5.6 cm X 4 cm vagal schwan on the 10th cranial nerve and by MAY 2010 it grew to 7.1 cm X 4 cm X 4.1 cm  Nov 2010 it has grown another 10%... time for C.K.! :)
I love life but I'm finding it harder to do .. one millimetre at a time.
www.vagalschwannoma.com 
www.allinonepetcare.co

yardtick

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Re: Last official day in the WandW
« Reply #1 on: November 30, 2010, 01:06:06 pm »
Thinking of you and wishing you the very best my friend.  You have had a very tough battle with Wanda.  Please let us know how you are feeling.

Anne Marie XOXO  :-* :-* :-* :-*
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Lizard

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Re: Last official day in the WandW
« Reply #2 on: November 30, 2010, 01:06:53 pm »
Good luck to you, please let us know how everything goes.
Take care,
Liz
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Left AN 2.5CM,retrosigmoid 11/2008, second surgery to repair CSF leak. 
Headaches began immediately.  Dr. Ducic occipital nerve resection, December 2011!!!!!

"When you come to the end of your rope, tie a knot and hang on"
-Franklin D. Roosevelt

novagirl

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Re: Last official day in the WandW
« Reply #3 on: November 30, 2010, 01:55:05 pm »
Rhonda - just wanted to wish you all the best with the treatments. I will be cheering you on! Stay positive
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Right AN 10 x 10 x 7 mm - dx 7/28/09; w&w for three years
CK at Stanford October 2012 - Dr. Chang and Dr. Soltys
Oct'12: 15 x 14 x 10 mm
Oct'14: 12 x 6 x 5 mm

opp2

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Re: Last official day in the WandW
« Reply #4 on: November 30, 2010, 06:02:17 pm »
Holy Cow!! I'm so pleased for you!! I have been missing a lot since I went back to work. Gotta get online more. Yay!!!
Logged
Diagn Apr 14 2009 with 2.5 cm lt AN. - numbness in the face and sudden onset headaches accompanied by balance issues. Consults with Drs in S Ontario, California (House) and Vancouver. Picked Dr. Akagami in BC.
Retrosigmoid July 6, 2010, 3.0cm by then. SSD left, no other significant side effects.

moe

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Re: Last official day in the WandW
« Reply #5 on: November 30, 2010, 07:20:10 pm »
so glad you are getting treatment, FINALLY!
Prayers for a successful treatment.
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

TOM101

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Re: Last official day in the WandW
« Reply #6 on: December 01, 2010, 05:06:38 pm »
WHAT?

7.7 CM? AND CK?

HELP I DON'T UNDERSTAND.
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Vivian B.

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Re: Last official day in the WandW
« Reply #7 on: December 01, 2010, 07:14:36 pm »
Wishing you all the best on your treatment and recovery.

Vivian
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CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.

mk

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Re: Last official day in the WandW
« Reply #8 on: December 02, 2010, 11:20:43 am »
Hi Rhonda,

wishing you all the best with your treatment. It is great to see that this new machine has brought so much hope.

Best wishes for a successful outcome

Marianna
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GK on April 23rd 2008 for 2.9 cm AN at Toronto Western Hospital. Subsequent MRIs showed darkening initially, then growth. Retrosigmoid surgery on April 26th, 2011 with Drs. Akagami and Westerberg at Vancouver General Hospital. Graduallly lost hearing after GK and now SSD but no other issues.

Anomar11

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Re: Last official day in the WandW
« Reply #9 on: December 02, 2010, 07:01:54 pm »
Petgroomer,

I've followed your story and am glad you're finally having CK.  You're in my thoughts and prayers for successful treatment.

Mona
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L An diagnosed 5/08 2.0 x 1.1 x 1.3 cm.  Cyberknife Stanford Drs Chang and Gibbs Nov '08.  One yr: 2.1 x 1.4 x 1.6, Two yr: 2.2 x 1.5 x 1.8, Three yr: 1.9 x 1.5 x 1.5, Four year 1.6 x 1.1 x 1.1, Six yr: 1.4 x .7 x .9

Tumbleweed

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Re: Last official day in the WandW
« Reply #10 on: December 02, 2010, 10:40:06 pm »
Rhonda, I just saw this thread, too late to wish you good luck. I hope all went comfortably well for you.

I remember when you first came to the forum, it seemed there was no hope, no possible treatment. You did your research, you persevered, you never gave up... and today you are a toastie postie on your way to becoming well! We were all rooting for you right from the beginning and we're all rooting for you now.

Very best wishes,
TW
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08
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