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Author Topic: And we are back.  (Read 9789 times)

Jim Scott

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Re: And we are back.
« Reply #15 on: December 07, 2010, 12:54:41 pm »
I think our recent unplanned hiatus proved beyond a doubt that the ANA discussion forums are a valuable asset for many AN patients, including this one.  I missed you guys and, like all of you, I'm glad we're back!  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Syl

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Re: And we are back.
« Reply #16 on: December 07, 2010, 12:54:52 pm »
 ;D ;D ;D ;D ;D ;D ;D

Syl
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1.5cm AN rt side; Retrosig June 16, 2008; preserved facial and hearing nerves;
FINALLY FREE OF CHRONIC HEADACHES 4.5 years post-op!!!!!!!
Drs. Kato, Blumenfeld, and Cheung.

ombrerose4

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Re: And we are back.
« Reply #17 on: December 07, 2010, 01:39:44 pm »
Thank goodness we are back online! I was feeling lonely :( but now I am :) :) :) :)
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Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

jerseygirl

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Re: And we are back.
« Reply #18 on: December 07, 2010, 03:49:09 pm »
Whew... I am so happy we are back!  ;D ;D ;D

     Eve
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Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

msmaggie

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Re: And we are back.
« Reply #19 on: December 07, 2010, 04:07:08 pm »
We are back and we heard from Steve!  Double dose of happy :).

Priscilla
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Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

ppearl214

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Re: And we are back.
« Reply #20 on: December 07, 2010, 04:40:32 pm »
AYE-MEN! :)

Quote from: Jim Scott on December 07, 2010, 12:54:41 pm
I think our recent unplanned hiatus proved beyond a doubt that the ANA discussion forums are a valuable asset for many AN patients, including this one. 
Jim
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Captain Deb

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Re: And we are back.
« Reply #21 on: December 07, 2010, 06:17:38 pm »
Did I miss something?  I was out snorkeling.

Capt Deb
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

moe

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Re: And we are back.
« Reply #22 on: December 08, 2010, 12:37:24 am »
I just kept checking and checking and checking....What a relief when it POPPED open!
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

sgerrard

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Re: And we are back.
« Reply #23 on: December 08, 2010, 12:43:46 am »
Should we pester them about getting the system clock set right? It is running about 15 minutes fast. Maybe safer to leave well enough alone...
Logged
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

ppearl214

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Re: And we are back.
« Reply #24 on: December 08, 2010, 05:23:25 am »
Quote from: Captain Deb on December 07, 2010, 06:17:38 pm
Did I miss something?  I was out snorkeling.

Capt Deb

PBW ran a-ground (ie: system crash) over the weekend, Captn.  Scurvy scallywags were able to steer it back out to sea.  Although the waters are still choppy, Capt, we have set course for open waters.

Signed,
Your cursed-cruise director... what the heck is her name? :)
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

jaylogs

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Re: And we are back.
« Reply #25 on: December 08, 2010, 08:43:21 am »
I'm with everyone else....It was weird, I kept getting the page not available thing, so I went to the main ANA website and it looked totally different...there were no links to anything, anywhere...I was panicking! Glad to see ya all!! :D
Jay
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8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

Captain Deb

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Re: And we are back.
« Reply #26 on: December 08, 2010, 09:55:52 pm »
Well, it's a fact now--we are all ANA Forum addicts.  Sound like a mess of withdrawals out there for a few days!!

Capt Deb
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW

Sue

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Re: And we are back.
« Reply #27 on: December 11, 2010, 08:32:24 pm »
So THAT is what that was.  I thought I hit a wrong button or something.  Whew!  Cyberspace is very lonely without the ANA.

Sue in Vancouver USA
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Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Keri

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Re: And we are back.
« Reply #28 on: December 13, 2010, 09:42:17 pm »
I hadn't been on the forum in a while... when I finally got time to catch up and check in, well, that's when it crashed! So glad it's back. I hope it doesn't happen again with the new server or whatever.

OK and I see some of my walk / run/ jog/ workout people on here!! Check in on that thread too.. I need some inspiration!

Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

Captain Deb

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Re: And we are back.
« Reply #29 on: December 14, 2010, 08:56:04 am »
This forum oughtta be renamed "Facebook for Wonkyheads!"

Capt Deb
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"You only have two choices, having fun or freaking out"-Jimmy Buffett
50-ish with a 1x.7x.8cm.AN
Mid-fossa HEI, Jan 03 Friedman & Hitselberger
Chronic post-op headaches
Captain & Designated Driver of the PBW
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