Proton Beam Down!

[inmaine724]

The Proton Beam has been down at Mass General since last Thursday!  So I haven't had treatment for then.  Very discouraging, since my end date was Dec 30th, but now is January 11th.  I just called to see if it came back up yet, and she said no, and that someone would call about Monday, but that I shouldn't expect it up then either.  The people there are wonderful, and this is way beyond there control, but it's such a bummer.  

Has anyone else had this problem with the beam (or actually the cyclotron) going down?

Thanks...Danielle

19 down, 11 to go...eventually

[Jim Scott]

Danielle ~

Wow, this has to be frustrating but as you stated, it's out of anyone's control so you just have to go with it.  I underwent 26 FSR treatments and know that I would have been disconcerted had they been abruptly halted before I had finished.  This probably won't have any effect on the ultimate success of the treatment but I sympathize with your frustration.  I hope you can get back on schedule, soon.

Jim

[inmaine724]

Wow.  Just got a call saying it has been called for all of next week as well!  I should not expect to be back to Boston until the 3rd of January, and she said they would be calling to let me know if it's even up by then.  She said the engineers have been working on it constantly, and that they just can't get it working. 

blah!  I have to say, however, that I feel for those people who absolutely need this treatment on schedule. They said that some are apparently having photon therapy in place of the proton beam.  Fortunately, it shouldn't affect my outcome at all, so I won't complain.  but blah!  Would love for it to just be done.