Have a very small AN found out xmas!

[Melinda_australia]

Hi Beautiful People..

My apologies for the long delay in response to you (Been working all week!).
Thankyou Vikki, Maureen, Suu, Annx, TJ, Clarice and Hendi51.
With all the fantastic Advise which you all have kindly given

Current Update!!
ENT has sent me his report from last Friday and he have grave concerns about the cause of my symptoms..
He fears that I might be worse off to have Radiation or Surgery.
As one other lady who had identical symptoms to me had surgery and was worse off.
He is referring me to another neurologist and would like me to trial medications to see if the symptoms of imbalance, dizziness and headache might give some relief to me. ENT would prefer to have a more leisurely approach to the management of the AN.

I think I shall go with ENT'S Advise for the time and see if they can help my symptoms with medications.
As I have expressed my thoughts to you before on how I feel,
I'm happy If the symptoms go away.. Just would like the symptoms to be gone! with meds to have a better quality of life!
Fingers crossed!!!

I Have another MRI on my head in two weeks to see how much the AN has grown.. then back to the neurosurgeon.

If I have to have surgery ever.. then I'm going to Melbourne!! as the ENT down there has done over 1000 operations on the head and is clocking around one a week...
So that's makes me feel like he's my man!! 
I want to play with my brain!!
If anyone is going to.
I spoke to his PA the other day, and she gave me his email address so I can tell him my story and ask more questions on the surgery as I'm more than 2000km away he is more than happy to correspond with me in this manner.

How Fantastic!!

I will continue to read everyone posts, learn, and keep you all updated with whats happening to me.

In the hope that maybe I can help and give other people like ourselves the ability to learn from my experiences and yours!
Keep you posted..
Chat soon!!
All the best.
Melinda 

[Melinda_australia]

Hey everyone !!

Did a few typo's errors!

Pressed post instead of preview!!
oops..
Made me laugh!

Cheers
Melinda

[Kaybo]

Hi Melinda and Welcome - I am W-A-Y late to this party but wanted to say hey!  Glad you feel good about the surgeon in Melbourne - that should help relieve some tension!

K   

[PaulW]

Hi Melinda.
I am from Australia too. Adelaide.
While the symptoms can be very annoying, you will probably find that they will come and go periodically.
With any form of treatment there is a risk of permanant damage so watching and waiting needs to be considered.

I am not the earthy type that takes herbal medicines, in fact I am probably the opposite.

Because of dizziness and nausea I tried some motion sickness tablets, which did help.
I was concerned by the amount of motion sickness tablets I was required to take to make me feel better so I switched to the natural altenative which is a type of Ginger Extract

There are Ginger tablets available in all Chemist shops (or the Buderim Ginger factory if you want to go to the source just north of Brisbane. I told them I had a Brain Tumour and got a discount )
The Ginger Tablets certainly helped me, well worth trying.



 
 
 

[Melinda_australia]

Hey Paul,

Thankyou for your advise..
Shall give it a try,
I too am taking motion sickness tablets from the doctor, but they don't seem to do anything really and as I do live on the sunny coast I will go to the ginger factory and check it out.

I know Adelaide quite well and I have noticed that there are awesome specialists there.
Just wondering.. which specialists helped you in Adelaide??
Are you happy with them and results thus far??

Cheers
Melinda 

[Angie UK]

Hi there Melinda. 

You certainly arent the only one with a dinky AN that is most troublesome... mine also (1cm x 1cm) is flaming annoying!  Today, I am having a bad day, & my body feels like lead.  My ear is burning, & stabbing pains keep happening.  I go through phases like this so I guess its my turn again.

Do let us know if you find any meds help.  Here in the UK I have previously been prescribed Stemetil, (I dont know if its name is universal, so might be a different name in Australia) to try to curb the balance issues, but frankly they were as much use as a chocolate teapot!  If I can find a medication that would help (tried all the herbal stuff too - no use) I might consider delaying the op, (not that its rushing towards me at any great speed ATM - cheers NHS!)

Anyway keep in touch, sending you hugs x

[cherrypiper]

>It's causing problems with my balance, dizziness, tinnitus and hearing loss. I suppose size does not matter hey!!>

absolutely correct. mine was about the size and shape of a large almond.Ihad dizziness, ran into walls at nite although i could see me veering that way i couldnt stop, and tinnitis as well.

I had it removed on Dec 3rd 2007. and it hasn't returned.

the best advice i can give you is to listen to surgeons and ear folks, then try and find local folks to talk with. and this forum isn't too bad either.

a lot of good folks here. Let us know how we can help ya too........