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Author Topic: Just when I was relaxing .....  (Read 60713 times)

Anomar11

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Re: Just when I was relaxing .....
« Reply #90 on: May 09, 2011, 06:58:34 pm »
Clarice,

I'm just now catching up with your story.  All the best to you.  You'll be in my prayers.

Mona
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L An diagnosed 5/08 2.0 x 1.1 x 1.3 cm.  Cyberknife Stanford Drs Chang and Gibbs Nov '08.  One yr: 2.1 x 1.4 x 1.6, Two yr: 2.2 x 1.5 x 1.8, Three yr: 1.9 x 1.5 x 1.5, Four year 1.6 x 1.1 x 1.1, Six yr: 1.4 x .7 x .9

leapyrtwins

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Re: Just when I was relaxing .....
« Reply #91 on: May 09, 2011, 07:33:38 pm »
Good luck, Clarice.

Godspeed  :-*

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

yardtick

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Re: Just when I was relaxing .....
« Reply #92 on: May 09, 2011, 08:33:09 pm »
You are in my thoughts Clarice.  I can't wait for you to start posting your own updates.

Anne Marie
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Sept 8/06 Translab
Post surgical headaches, hemifacial spasms and a scar neuroma. 
Our we having fun YET!!! 
Watch & Wait for more fun & games

Mei Mei

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Re: Just when I was relaxing .....
« Reply #93 on: May 09, 2011, 10:05:19 pm »
You're going to be OK, you're in good hands.
I'm praying hard for you.
Hugs,
Mei Mei
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1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Denise S

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Re: Just when I was relaxing .....
« Reply #94 on: May 10, 2011, 07:12:38 pm »
Clarice,

I am sending BEST WISHES for your surgery tomorrow!!   I will keep you, your medical staff, and your family in my prayers!   

Denise (MI)
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W&W 2 yrs. (due to watching other brain tumor: it's stable)
Left AN:  1.2 cm (kept growing during 2 yr.)MIDDLE FOSSA  11/9/09;  Michigan Ear Institute Dr. Zappia & Pieper
SSD, mild tinnitus, delayed onset of facial paralysis lasting 3-4 weeks, no tears AN side
BAHA surgery 10/2/12 Dr Daniels G.R.,MI

ombrerose4

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Re: Just when I was relaxing .....
« Reply #95 on: May 10, 2011, 08:18:26 pm »
Clarice,

Keeping you in my thoughts :)
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Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

Keri

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Re: Just when I was relaxing .....
« Reply #96 on: May 10, 2011, 09:18:45 pm »
Clarice,
I'll be praying for you tomorrow.

Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

Kaybo

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Re: Just when I was relaxing .....
« Reply #97 on: May 10, 2011, 09:44:12 pm »
You know you have my prayers tomorrow...& tonight...for a good nights sleep. PEACE to Truman tomorrow as he waits!

K  ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

CHD63

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Re: Just when I was relaxing .....
« Reply #98 on: May 10, 2011, 10:49:09 pm »
It was a grueling day of tests and interviews ..... so glad that part of over.  See Dr. Friedman at 8:30 in the morning, surgery is scheduled for 11:00.  Hopefully Truman will update this thread after surgery tomorrow.  On my way to bed and hopefully a good night's rest.

Thank you all for your prayers and well wishes.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Derek

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Re: Just when I was relaxing .....
« Reply #99 on: May 11, 2011, 03:22:06 am »
All our thoughts and prayers are with you for a successful outcome Clarice.

Best Wishes

Derek
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Residing UK. In 'watch & wait' since diagnosis in March 2002 with right side AN. Initially sized at 2.5cm and now self reduced to 1.3cm.
All symptoms have abated except impaired hearing on affected side which is not a problem for me.

ppearl214

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Re: Just when I was relaxing .....
« Reply #100 on: May 11, 2011, 04:19:58 am »
Clarice,

Not sure if you will see this but..... sending best of wishes to you!  Prayers and wishes to you!

xoxooxox
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

saralynn143

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Re: Just when I was relaxing .....
« Reply #101 on: May 11, 2011, 01:18:32 pm »
I've been praying for you and your surgeons all morning, Clarice and will continue.
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Kaybo

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Re: Just when I was relaxing .....
« Reply #102 on: May 11, 2011, 06:08:58 pm »
OK...I know this is Truman's job & I'm sure he'll be along later with a better update, but I also know how we all worry!!  Clarice is out of surgery and the doctors said it went well!

YEA!!

K   ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

lori67

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Re: Just when I was relaxing .....
« Reply #103 on: May 11, 2011, 06:57:21 pm »
Yea is right!

Thanks, Kay!!  If you talk to Truman, let him know we're thinking of both of them!

Lori
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Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Keri

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Re: Just when I was relaxing .....
« Reply #104 on: May 11, 2011, 09:10:42 pm »
Ditto!  Praying for Clarice and Truman and have been thinking of them all day.

I hope Clarice is still resting well.

Keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!
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