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Author Topic: Debbi B. in March edition of 'Notes'  (Read 3667 times)

Jim Scott

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Debbi B. in March edition of 'Notes'
« on: March 02, 2011, 05:28:53 pm »
Hi, all ~

Just a reminder that our own Debbi (Bifulco) has an informative and optimistic letter published in the March edition of the ANA newsletter 'Notes' that describes her successful experience with regaining facial mobility following AN surgery.  It's on page 6.  I urge everyone to read the 'official' ANA publication - available online to ANA members - and enjoy Debbi's letter and all the other informative articles within.  It's worth your time. 

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Kaybo

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Re: Debbi B. in March edition of 'Notes'
« Reply #1 on: March 02, 2011, 05:31:04 pm »
"Moe" (Maureen) has a piece in there too...

K   ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Debbi

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Re: Debbi B. in March edition of 'Notes'
« Reply #2 on: March 02, 2011, 07:36:48 pm »
Shucks.  Thank, Jim!  And definitely read Moe's letter which is very inspirational and optimistic. 

I was sitting at dinner with the hubs tonight and we were reflecting on how much has changed in the 3 years (almost to the day, actually) since my diagnosis.  I certainly never imagined all that would happen.  Picc lines and facial paralysis aside, a lot of really amazing things have come from this.  Not the least of which is all of the wonderful friends I've made along the way.  I can honestly say that if the price of meting so many great people was a brain tumor...well, it was worth it!

Debbi, feeling pretty darned blessed!
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

moe

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Re: Debbi B. in March edition of 'Notes'
« Reply #3 on: March 03, 2011, 11:10:48 am »
Debbi's piece was great! Mine is on page 5 ;)
We both ended kind of the same in our piece. Great minds think alike, eh?
Mine was about my recent gracilis flap surgery following two unsuccessful tries to get the facial nerve "rebooted."
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

Debbi

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Re: Debbi B. in March edition of 'Notes'
« Reply #4 on: March 03, 2011, 11:13:27 am »
Maureen and I willl be announcing our book tour dates soon!   :D :D :D
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

moe

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Re: Debbi B. in March edition of 'Notes'
« Reply #5 on: March 03, 2011, 11:34:08 am »
yea right. Maybe you, you're the writer, :D I'm not. I'm just the nurse!
Actually, my sister, the writer, who is longing to get her first book published, is working on a book which incorporates a character who has an AN and how it affects her dancing career and other good stuff.
So I am vicariously reliving the AN experience as she is writing it......(giving me a headache :o ).
Maureen
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06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

leapyrtwins

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Re: Debbi B. in March edition of 'Notes'
« Reply #6 on: March 04, 2011, 08:36:15 pm »
Noticed Debbi's letter, but somehow missed Maureen's.

Will have to go back and look for it.

Enjoyed the article by Larry Laske.  Wondered who his docs were since he's from my neck of the woods.

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

cherrypiper

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Re: Debbi B. in March edition of 'Notes'
« Reply #7 on: March 04, 2011, 08:42:54 pm »
nice to see some folks from here in there.

well done ladies and a big YEEEEEEEEEEEE HAWWWWWWWWWWW

From Houston Tx
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10 mm x 2.4mm surgery date 12/03/07

glad to be here

ppearl214

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Re: Debbi B. in March edition of 'Notes'
« Reply #8 on: March 05, 2011, 05:40:23 am »
Quote from: Debbi on March 03, 2011, 11:13:27 am
Maureen and I willl be announcing our book tour dates soon!   :D :D :D

At the symposium and can't wait to be the first in line to obtain that autograph! :)  Well done, m'dear... and to moe as well! Great to see you all contributing in such a terrific manner, esp. since many that read "Notes" may not be on the forums, thus, sharing what you have beyond the walls of our discussions here.  Well done! :)

xo
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"
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