Yeah, mine is growing back as well. It took a while though. It was not fully removed. They could only debulk the thing by about half, it was so huge—the size of an egg. The surgery was in '05. So it's been 13 years. Last year's MRI showed that it had regrown 2 millimeters. And to think I thought I was getting away with it (no regrowth).
Just had this year's MRI last week (my 14th MRI) and will be getting the results this afternoon at my G.P. follow-up.
To complicate matters, I also have what is referred to as "overshunting", where too much CSF is being drained from my head.
This results in expanding brain tissue, billowing out against the skull. How far this is going to go or what complications may arise I have no idea; all I know is that there is nothing that can be done about it. I am now afflicted with weird headaches that are especially bad in low barometric pressure. They tend to go away when I lay down.
So far, I have adjusted to a new normal: constant double vision, slight facial numbness, quivering facial tissue, high-pitched, shrill tinnitus, total left-side deafness, impaired handwriting, impaired equilibrium and frayed nerves.
This thing really screwed my life up, not that it was anything to brag about in the first place. So maybe it's a blessing in disguise? Who knows? And I am/was a musician. The Lord moves in mysterious ways.
13 years ago my doctor told me that stereotactic radiosurgery would be the next step in the event of regrowth.
Somehow the notion of frying what's left of my brain tissue with radiation scares the hell out of me, especially what the long term side-effects may bring.
I'll update you on the MRI results.
