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Author Topic: MRI result time again  (Read 11506 times)

Jackie

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MRI result time again
« on: March 23, 2011, 01:24:05 pm »
To my AN family, and fellow W and W buddies,

Just received an amazing letter from Dr. Brackmann at House, saying that my AN remains stable, and small, and advises to continue to W and W,
for at least another year!!!! So I continue into year 5. Hooray!!! This was contrary to the info from my Doc. locally! I'll go with the expert everytime!!!
Jackie
Sending Blessings to all of you in your journeys
« Last Edit: March 25, 2011, 10:25:38 am by Jackie »
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

Jim Scott

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Re: MRI result time again
« Reply #1 on: March 23, 2011, 02:36:00 pm »
Jackie ~

Please accept my heartfelt congratulations on this splendid news!  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Mickey

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Re: MRI result time again
« Reply #2 on: March 23, 2011, 03:54:30 pm »
Way to go Jackie! Lets keep on going with a positive outlook. I`m goiing into Manhattan on Sat. to an AN meeting and will ask about the latest on Pill technology such as (Nilotinib). Whatever we choose to do lets stay on top of things. Best wishes fellow W+W'er, Mickey
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Derek

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Re: MRI result time again
« Reply #3 on: March 24, 2011, 10:19:43 am »
Hi Jackie....

Congrats on your great news...and long may it continue!

Best Regards

Derek
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Residing UK. In 'watch & wait' since diagnosis in March 2002 with right side AN. Initially sized at 2.5cm and now self reduced to 1.3cm.
All symptoms have abated except impaired hearing on affected side which is not a problem for me.

tenai98

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Re: MRI result time again
« Reply #4 on: March 24, 2011, 11:16:07 am »
Yay....mine too came back stable...to recieve such news is great...
JO
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

CHD63

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  • Life is good again!!
Re: MRI result time again
« Reply #5 on: March 24, 2011, 11:38:53 am »
Wonderful news, Jackie .....

Keep it up.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Kaybo

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Re: MRI result time again
« Reply #6 on: March 24, 2011, 11:52:45 am »
Great news, Jackie!  So happy for you!

K   ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

Jackie

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Re: MRI result time again
« Reply #7 on: March 24, 2011, 11:56:59 am »
AN Family,

I truly thank all of you for your responses. This journey, of W and W can be quite daunting at times, however, in my case after losing 60% hearing almost overnight,
and mild tinnitus, and a few other things, everything else has remained stable, as confirmed by MRI, so, life will continue down this path. Blessings to those in the same boat as me, to remain there!
To all the rest of you wonderful people may your healing continue, and your lives restored!
Jackie
« Last Edit: March 25, 2011, 10:26:25 am by Jackie »
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9mm x 11mm Right Side AN mild Tinnitis, and 60% hearing loss
Diagnosed 02/04/2007
Nov.13th, diagnosed with 5mm Meningioma
9/24/08 diagnosed with Aneurysm
Wait and watch per ENT's advice and researching my options!!! What's next???

Mark241

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Re: MRI result time again
« Reply #8 on: March 24, 2011, 12:12:40 pm »
Great news!! ;D
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4cm C1  16hrs                 Barrows, Jan 06      NF2
3.5 cm  Right AN retro       Barrows, Oct 06   
Cranial Plate removal           UNM Nov 07
LP                                   Barrows  Jan,2011
Wound revision                 Barrows Feb, 2011
5mm left middle Fossa,  (2) 2mm spine w&w

cnrnocn

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Re: MRI result time again
« Reply #9 on: April 01, 2011, 09:50:17 pm »
 ::) Good news !!!
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2 mm on left at the cerebellar-pontine angle
watch and wait

The woods are lovely, dark and deep
But I have promises to keep
And miles to go before I sleep
And miles to go before I sleep
  Robert Frost

Rivergirl

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  • Rivergirl
Re: MRI result time again
« Reply #10 on: April 03, 2011, 09:52:24 am »
Great news!
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Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

LisaP

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Re: MRI result time again
« Reply #11 on: April 03, 2011, 11:32:29 am »
Congrats Jackie  from a fellow W&W

LisaP ;D
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LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

Sheryl

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Re: MRI result time again
« Reply #12 on: April 03, 2011, 06:33:10 pm »
Yippee!!  I know the feeling well.  Pretty soon you'll be up there with Derek and myself (at 9-1/2 years W&W).
Sheryl
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9th cranial nerve schwannoma - like an acoustic neuroma on another nerve. Have recently been told it could be acoustic neuroma. Only 7 mm of growth in 18 years. With no symptoms. Continuing W&W

Keeping Up

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Re: MRI result time again
« Reply #13 on: April 04, 2011, 09:28:05 pm »
Alright this is my third W&W post of the night ...

Great news for you and great news for the W&W team.  It is alway reassuring to see successes with the W&W group.  You do never know but seeing the longevity of some of the 'oldies' brings a smile to my face.

Ann
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dx Dec/08 - 5mm x 8mm AN
'watch and wait'

Sheryl

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Re: MRI result time again
« Reply #14 on: April 10, 2011, 12:26:53 am »
Ann - this is the one time I will be called an "oldie" and enjoy it  ;)
Sheryl
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9th cranial nerve schwannoma - like an acoustic neuroma on another nerve. Have recently been told it could be acoustic neuroma. Only 7 mm of growth in 18 years. With no symptoms. Continuing W&W
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