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Author Topic: Good news!!!!!!!  (Read 6735 times)

Cheryl R

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Good news!!!!!!!
« on: April 06, 2011, 08:21:44 pm »
MRI time today and clean MRI with NO new tumor!      Best thing that can happen for a NF2er!          Asked what my chances  are of maybe getting one and dr can not say.       I did ask about how many mid fossa he does and is over 30 a year and said it is more than Mayo does.        Now up to 70 ANs a year.       I will repeat this tomorrow when get home and my computer and not hotels.             Any way a very happy night for me!
                                                                 Cheryl R
Logged
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

Kaybo

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Re: Good news!!!!!!!
« Reply #1 on: April 06, 2011, 08:24:15 pm »
oh, SO happy for you, Cheryl!!

K   ;D
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Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

jaylogs

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Re: Good news!!!!!!!
« Reply #2 on: April 06, 2011, 08:27:13 pm »
Yayyyyyyyyyyy Cheryl!!!! :)
Logged
8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

Brewers7

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Re: Good news!!!!!!!
« Reply #3 on: April 06, 2011, 08:29:33 pm »
Sp happy for you Cheyl!
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Translab surgery 12/15/2008 followed by CSF leakage repair and 3 additional surgeries for MRSA of the brain (NOT typical) SSD,  facial and vocal cord paralysis, numerous reconstructive surgeries, Transear 12/2010

LMd511

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Re: Good news!!!!!!!
« Reply #4 on: April 06, 2011, 08:40:37 pm »
 ;D  Congrats Cheryl!!!!  So Very HAPPY for you!!! 
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ppearl214

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Re: Good news!!!!!!!
« Reply #5 on: April 07, 2011, 03:40:31 am »
Cheryl

If you could only see the smile on my face... what WONDERFUL news for you!!!!!!!!!!!!!!!!!!  Congrats!!!!!  :-*  :-*  :-*

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Suu

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Re: Good news!!!!!!!
« Reply #6 on: April 07, 2011, 04:22:40 am »
WTG! Cheryl!  What are you going to do to celebrate?

Big hugs,
Suu xxoo
Logged
4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12

tenai98

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Re: Good news!!!!!!!
« Reply #7 on: April 07, 2011, 07:04:02 am »
Hooray...congrats...well done!!
JO
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

cindyj

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Re: Good news!!!!!!!
« Reply #8 on: April 07, 2011, 07:32:02 am »
That's news we love to hear!  Whew - know you are relieved!

Cindy
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rt side 1.5 cm - Translab on 11/07/08 Dr. Friedman & Dr. Schwartz of House Ear Institute,
feeling great!

"Life consists not in holding good cards, but in playing well those you do hold."  Josh Billings

Lynn Mc

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Re: Good news!!!!!!!
« Reply #9 on: April 07, 2011, 09:16:20 am »
wahoooo.... Congrats Cheryl
Logged
Translab 01/22/10.  12 x 11.7 x 8.2 mm.
Dr's McKenna/McCall at Mass Eye & Ear,
Dr. Barker at MGH. 
SSD - No other significant problems post surgery, just some minor inconveniences!  Yipee!!
BAHA implant 04/08/11 Dr. Merchant
BAHA Gotcha 07/25/11
"Life is Good"

Jim Scott

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Re: Good news!!!!!!!
« Reply #10 on: April 07, 2011, 03:34:02 pm »
Cheryl ~

Late to the celebration but none the less pleased to offer my congratulations! 

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

BostonBill

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Re: Good news!!!!!!!
« Reply #11 on: April 07, 2011, 05:58:13 pm »
Good for you!!
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Diagnosed Dec 21, 2010, 1.75 x 1.75cm plan is for retrosigmoid removal scheduled for June 15th at MGH by Dr Barker & Dr Lee. Putting off so I may enjoy my sons senior year varsity hockey, lacrosse seasons and graduation. That and our annual trip to Cancun in May.

ombrerose4

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Re: Good news!!!!!!!
« Reply #12 on: April 07, 2011, 06:09:44 pm »
I'm so happy for you Cheryl! Yay!!
Logged
Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

Keri

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Re: Good news!!!!!!!
« Reply #13 on: April 07, 2011, 10:22:03 pm »
i'm happy for you too! what a relief!

keri
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1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

Larry

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Re: Good news!!!!!!!
« Reply #14 on: April 08, 2011, 01:16:27 am »
WOO HOO

Blank MRI's are the best!


Laz
Logged
2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
Chronologer of the PBW
http://www.frappr.com/laz
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