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Author Topic: No more tumor!  (Read 5320 times)

MNTim

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No more tumor!
« on: May 12, 2011, 09:27:50 pm »
I went for my 3 month post op (translab) today.  The pre-op MRI showed a golf ball sized tumor and the MRI from today showed no tumor.  The radiologists comment was "exquisite extraction".  After 1 and a half years and three surgeries I can finally say "I don't have a tumor".  As Jerry Garcia would say, "What a long, strange trip it has been".

Yes, I still have significant facial weakness, deafness in my left ear and balance issues but No more tumor.  For anyone starting this journey remember that eliminating the tumor is the ultimate goal.

Tim
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8/31/09 hydrocephulus-emergent drain
9/2/09 5 cm AN debulked, Retro Sig Abbott NW
5/18/10 Second debulk, Retro Sig Abbott NW
1/31/11 Translab, 7/12 Graft Mayo Rochester, MN
2/12/11 Lumbar drain
3/14/11 Eustacian tube packing procedure for CSF leak
2/28/13 Platinum weight & Tarsorrhaphy

ombrerose4

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Re: No more tumor!
« Reply #1 on: May 12, 2011, 09:30:55 pm »
Hi Tim,

I am happy to hear your great news! No more tumor is the best thing we ANer's want to hear after our MRI's. Yay for you :)
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Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

leapyrtwins

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Re: No more tumor!
« Reply #2 on: May 13, 2011, 04:46:02 am »
Tim -

thanks for sharing this excellent news with us.

Congratulations!!!

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Tod

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Re: No more tumor!
« Reply #3 on: May 13, 2011, 06:15:01 am »
Great news Tim! I hope to be able to tell a similar tale some day.

-Tod
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Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

mk

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Re: No more tumor!
« Reply #4 on: May 13, 2011, 08:01:57 am »
What a relief! You have been through a lot so this news is great. As you know the rest of the issues do get better with time.

Marianna
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GK on April 23rd 2008 for 2.9 cm AN at Toronto Western Hospital. Subsequent MRIs showed darkening initially, then growth. Retrosigmoid surgery on April 26th, 2011 with Drs. Akagami and Westerberg at Vancouver General Hospital. Graduallly lost hearing after GK and now SSD but no other issues.

kenneth_k

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Re: No more tumor!
« Reply #5 on: May 13, 2011, 09:12:36 am »
Hi Tim.

Terrific. I'm very glad to hear this.

Kenneth
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Jim Scott

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Re: No more tumor!
« Reply #6 on: May 13, 2011, 01:04:13 pm »
Tim ~

Allright!!!  ;D  We celebrate you now being tumor-free!  Thanks for sharing the great news.

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

opp2

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Re: No more tumor!
« Reply #7 on: May 13, 2011, 07:35:31 pm »
Congratulations Tim, blessings on you as you recover from these surgeries and make your way forward.
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Diagn Apr 14 2009 with 2.5 cm lt AN. - numbness in the face and sudden onset headaches accompanied by balance issues. Consults with Drs in S Ontario, California (House) and Vancouver. Picked Dr. Akagami in BC.
Retrosigmoid July 6, 2010, 3.0cm by then. SSD left, no other significant side effects.

proudmomof3

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Re: No more tumor!
« Reply #8 on: May 14, 2011, 05:22:35 pm »
Congratulations! That is great news! Thanks for sharing the good news :)

Cheryl
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Right AN - 1.5cm
Diagnosed 3/2011
GK  4/2011
Last MRI 5/13 - 1.5cm
SSD Right Side, Constant Tinnitus, Vertigo, Headaches

jaylogs

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Re: No more tumor!
« Reply #9 on: May 14, 2011, 06:33:20 pm »
Hey Tim, Arnold Schwarzeneggar would be proud of you (The "No more tumor" line there...if no one knows what I mean, watch Kindergarten Cop!).  But seriously, it does feel good, puts things in perspective! I hope your lagging symptoms will disappear in time, then you'll be good as gold! Take care and keep us updated!
Jay
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8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

Rivergirl

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Re: No more tumor!
« Reply #10 on: May 14, 2011, 06:45:55 pm »
Excellent news, so glad it is behind you, you sound so happy and deserve it after all you have been through, enjoy, relax, live!
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Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

G_Man

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Re: No more tumor!
« Reply #11 on: May 14, 2011, 08:05:08 pm »
Congratulations Tim. 
As I search to find my way to deal with this AN in my head, I applaud anyone who has come through it.  Maybe I'll be one of the lucky ones who stays W+W for life but, if past experiences is any indication of future performance, I need all the Tim's I can find for inspiration.
Thank you for your strength in dealing with this so bravely and sharing it with us.
Glen
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Diag: 08/11/2009 Left side
AN: 0.6cm.  65% Hearing loss, tinnitus, fullness, minor motion issues.
hearing loss over 25+ years.  MRI in 2000 showed nothing.
Optical Atrophy from infantcy
Watch and Wait.
As of 2017 I am on a 2 year MRI frequency.

MNTim

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Re: No more tumor!
« Reply #12 on: May 15, 2011, 08:10:19 pm »
Thank you all for your kind comments.  I only wish I had explored the site 18 months ago.  The forum has not only provided me with valuable information but also courage and self confidence.  There are many side effects that are not revealed to patients by the providers but are covered in the forum.

Keep up the great work everyone!

Tim
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8/31/09 hydrocephulus-emergent drain
9/2/09 5 cm AN debulked, Retro Sig Abbott NW
5/18/10 Second debulk, Retro Sig Abbott NW
1/31/11 Translab, 7/12 Graft Mayo Rochester, MN
2/12/11 Lumbar drain
3/14/11 Eustacian tube packing procedure for CSF leak
2/28/13 Platinum weight & Tarsorrhaphy

chrisransom

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Re: No more tumor!
« Reply #13 on: May 15, 2011, 09:19:30 pm »
Great news, Tim!  I agree with Jay - now you can say "It's not a toomah!"

Chris
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Diagnosed with 21x16x16 mm AN in December 2010.  No change in June 2011 nor in January 2012.  No major symptoms - tinnitus, some fullness in left ear but no hearing loss or other symptoms.
Firmly in the W&W camp for now.

kraynok2

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Re: No more tumor!
« Reply #14 on: May 16, 2011, 03:30:29 pm »
Congratulations!!! 
It's so good when we hear these kinds of reports.  Sandy
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