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Author Topic: June 2nd....  (Read 6607 times)

Jwh

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June 2nd....
« on: May 23, 2011, 08:11:46 am »
Just scheduled my MRI for June 2nd at NYU. Dr. Roland will see me right after to give me the results.  BREATH...INHALE....EXHALE....Relax.....  Ugh I hate, hate this!  Did I mention that I hated this  :'(
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5/01  1.3 AN removed at NYU using Retrosig. Approach
2/07  Rediagnosed with Regrowth 8 mm (wait & watch mode)
1/09  1.4 AN removed at NYU using Translab (total tumor removal)

mandy721

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Re: June 2nd....
« Reply #1 on: May 23, 2011, 08:48:06 am »
Keep breathing!  Ken had a follow-up MRI ( about 21 months post - surgery) in April and we were nervous too. We saw Dr. Sisti the same day and he had good news - not only was there no signs of re-growth, but some of the remaining tumor surrounding the facial nerve had disappeared. Here's hoping you have good news on the 2nd.
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Husband diagnosed 5/30/09 with 3.2cm right AN
Surgery at  Columbia Presbyterian 8/4/09
Platinum eye weight implant - 8/17/09
17 days in hospital and rehab
SSD, facial weakness, some tinnitus, headaches , balance and eye problems

Mickey

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Re: June 2nd....
« Reply #2 on: May 23, 2011, 10:12:40 am »
Wishing you the best! Mickey
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kraynok2

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Re: June 2nd....
« Reply #3 on: May 23, 2011, 06:26:50 pm »
I know it's nerve-racking, but try to not worry.  I hope all turns out good for you.  I wish you luck on June 2.  Sandy
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leapyrtwins

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Re: June 2nd....
« Reply #4 on: May 23, 2011, 10:03:10 pm »
Good luck; hoping for clean results.

Please keep us posted,

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

tweety

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Re: June 2nd....
« Reply #5 on: May 24, 2011, 04:18:08 am »
Good luck.  It is nerve wracking.  Keep the faith.  Tweety
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Rivergirl

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Re: June 2nd....
« Reply #6 on: May 24, 2011, 06:02:31 am »
I hate the couple of months before a MRI.....it really gets to my insides worrying and it is something no one else knows but us what that feels like....wishing you good news on June 2nd.
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Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

Debbi

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Re: June 2nd....
« Reply #7 on: May 24, 2011, 11:34:36 am »
I just had my 3-year a couple of months ago (also with the wonderful Dr. Roland) and I was like a long-tailed cat in a room full of rocking chairs for about a month leading up to it.  I think it just comes with the territory.  I would think that the jitters would be worse for you since you've already gone through a regrowth and second surgery.  If it is any help, I find that chocolate works wonders ...

Best of luck.

Debbi
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Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

Suu

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Re: June 2nd....
« Reply #8 on: May 24, 2011, 10:21:02 pm »
BREATH...INHALE....EXHALE....Relax.....   I hope to see the word aaaaaaaaaaaaaaaaaaaaaaaaaaaaaaaah when you've had it.
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4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12

Mark241

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Re: June 2nd....
« Reply #9 on: May 24, 2011, 10:22:47 pm »
Best of luck!
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4cm C1  16hrs                 Barrows, Jan 06      NF2
3.5 cm  Right AN retro       Barrows, Oct 06   
Cranial Plate removal           UNM Nov 07
LP                                   Barrows  Jan,2011
Wound revision                 Barrows Feb, 2011
5mm left middle Fossa,  (2) 2mm spine w&w

JAndrews

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Re: June 2nd....
« Reply #10 on: May 25, 2011, 06:00:20 pm »
I just scheduled mine for June 6th. I am a wreck:( Should have had it done a year ago. I have been putting it off. Good luck to you!
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2.5cm x2.0cm cerebellapontine angle meningioma. 100% removal 2/2009. House Ear Institute. Dr Brackmann and Dr. Schwartz. SSD right ear. No balance problems except when really tired, no headaches. Transear hearing aide made no difference, tried it for 4 months.

proudmomof3

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Re: June 2nd....
« Reply #11 on: May 30, 2011, 01:33:03 pm »
I hope you have good news. It is such a long wait. I am in the "waiting period" now so I do understand. I do not get an mri until October.

Good Luck and let us know how it goes!

Cheryl :)
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Right AN - 1.5cm
Diagnosed 3/2011
GK  4/2011
Last MRI 5/13 - 1.5cm
SSD Right Side, Constant Tinnitus, Vertigo, Headaches

LisaP

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Re: June 2nd....
« Reply #12 on: May 30, 2011, 02:11:57 pm »
Hi,

W&W can be hard, my next MRI is also this October.  It has been a little over 3 years now since my dx, so I guess I count my blessings that I can still live with this AN and have not yet had to seek treatment.

hang in there

LisaP
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LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

rayden1

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Re: June 2nd....
« Reply #13 on: May 30, 2011, 02:34:34 pm »
Hi

Best of luck to you. Am sure you will have good news.

Ann xx
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Lorbis

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Re: June 2nd....
« Reply #14 on: May 30, 2011, 06:49:45 pm »
I have a 4:30 appt w Dr. Roland on June 2! My first visit with a specialist since being diagnosed by my ENT a few weeks ago!  Good luck to you!
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