Hi Nicole;
I'm 61 with 10 small either ependyomas or schwannomas at the base of the spine ( cauda equina ). They are 1 - 2 mm. in diameter and have done nothing in the 10 years Dr's have known about them. They look like BBs on MRI. A spinal series MRI is performed annually as well as the head. Seldom will a facility do both MRI series at one time because of the duration of time and also the body must be repositioned between the two series.
Of course, you are quite a bit younger when tumors tend to be more active, so, it is well to keep close eye on these as the potential for some pretty serious effects exist if they should grow.
Like you, one AN has been removed Translab and the other remains. I'm deaf left and have about 15% hearing left right side.
Re, "passed on from parents", as two mutations of the NF-2 gene are required to develop the full blown disease, in some, the second and spontaneous mutation often occurs at conception or very young age. In this situation, one of the parents has an NF-2 gene which has only mutated once. That will not give the disease, NF-2.
Re, "passed on from parents", if a parent has full blown NF-2, the chances of having it as an embryo are high. This is an ethical issue ( for some ) following amniocentesis revealing the disease presence.
Direct inheritance or spontaneous new mutation are about an equal 50/50 chance.
