Author Topic: Headcount of Forumites attending Cinci Symposium  (Read 51629 times)

sgerrard

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #135 on: June 27, 2011, 08:18:37 pm »

Phyl.


Kentucky, from a hotel window.
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

leapyrtwins

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #136 on: June 27, 2011, 08:21:57 pm »
Thanks, Steve.

Love the picture of Kentucky - nice view.

Jan

Oh yeah, I love the other pictures too.  Saw them previously.
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

sgerrard

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #137 on: June 27, 2011, 08:22:11 pm »

Cheryl R, Clarice (chd63), Tim (Migoi).


Dave (deheisel11), Barb909, Chery R, Sandy (kraynok2), Clarice (chd63).

8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Denise S

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #138 on: June 27, 2011, 09:05:06 pm »
Steve, I got the same pics, but wasn't 100% sure how to put them on like you did.   Want to say thanks for tagging the names/screen names of them all because there were 3 I didn't recognize  :)

As for Mei Mei, I got an email from her today that had a link to pictures, but it was some 3rd party site asking for my cell phone number.  So I didn't do that and sent her another email to let her know.  Poor girl is trying to get us those pics, but something isn't panning out too easy  :(

Thanks, Denise
W&W 2 yrs. (due to watching other brain tumor: it's stable)
Left AN:  1.2 cm (kept growing during 2 yr.)MIDDLE FOSSA  11/9/09;  Michigan Ear Institute Dr. Zappia & Pieper
SSD, mild tinnitus, delayed onset of facial paralysis lasting 3-4 weeks, no tears AN side
BAHA surgery 10/2/12 Dr Daniels G.R.,MI

jaylogs

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #139 on: June 27, 2011, 09:35:42 pm »
Hello all, I just now finally for the first time read this thread...it sounds like you all had fun.  LA in 2013 sounds definitely doable for me (I live next state over!) so hopefully I'll get to go and meet you all there! Would love to put a face to the names.  I also did a self imposed sabbatical from this forum like Jan did, mainly because I just came back from a week in Hawaii! (too bad it's so expensive, definitely a good place to hold a symposium! :)  Mei Mei, glad to finally see what you look like! lol  Hope you all are having a wonderful summer, take care!
Jay
8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

ppearl214

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #140 on: June 28, 2011, 04:37:22 am »
Have had family emergent situation here over the weekend (we're ok) and apologies for the delay in uploading my pics.  Will do later... promise.

BTW, thanks for posting the crappy pic of me! oy!  *groans*

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Cheryl R

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #141 on: June 28, 2011, 06:52:35 am »
Phyl.    Your pic isn't crappy!    Shows you in the middle of a conversation!   Remember, you weren't helpful in letting me get a good one at the banquet.    There's a couple that could be good blackmail material!     LOL!                        Cheryl R
Right mid fossa 11-01-01
  left tumor found 5-03,so have NF2
  trans lab for right facial nerve tumor
  with nerve graft 3-23-06
   CSF leak revision surgery 4-07-06
   left mid fossa 4-17-08
   near deaf on left before surgery
   with hearing much improved .
    Univ of Iowa for all care

Jim Scott

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #142 on: June 28, 2011, 12:42:58 pm »
Steve ~

Thanks for posting the symposium photos.  I wasn't able to attend so I appreciate seeing the pictures of some of my forum friends and be able to put a face to a name.

Jim   
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Keri

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #143 on: June 28, 2011, 09:42:24 pm »
we actually allowed jan to take a sabbatical??

i enjoyed the pics too. thanks for putting names up and the forum names.

keri
1.5 left side; hearing loss; translab scheduled for 1/29/09 at Univ of MD at Baltimore
My head feels weird!!

kraynok2

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #144 on: June 28, 2011, 09:46:47 pm »
Thanks to everyone for posting the pictures.  But you all can notice that I am still dealing with some facial paralysis from the parotid gland tumor surgery.  With the AN, I had a little and it was back to normal in a month and a half.  I am now at 8 weeks with this one and it is slow going. (The AN surgery was easier!)  I have to remind myself that I had 2 major surgeries 5 months apart (both from schwannoma cells) and that my face went through a lot with this latest one.  The tumor was beneath the facial nerve and sticky, making it a difficult surgery.  The facial nerve was left intact, so it should heal. At my check-up last week, the doctor thought I might be a little further along, but it does take some of us longer.  So, I'm trying to be patient and giving it to God.  Seeing as I did not get to Jackie Diels session at the symposium, I'm going to send for the cd of the session.  Thanks for listening to my rattling along.  Sometimes we need people who have been through similar things to listen to us vent some.
Sandy

sgerrard

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #145 on: June 29, 2011, 12:09:50 am »
Here are three more, and they are from Mei Mei! One is from what seems to have been a popular photo opportunity, but the shot is slightly different.


Phyl and Dave (I think it is Dave).


Kathy M, Cheryl R., Mei Mei, Barb909.


Someone?, Mei Mei, Cheryl R.
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

saralynn143

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #146 on: June 29, 2011, 07:19:38 am »
Mei Mei, I really like your haircut.
MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

Mei Mei

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #147 on: June 29, 2011, 09:48:43 am »
Thank you Sara Lynn,
I love the guy that cuts my hair.   If you're ever in Washington, I will take you to him.   He is an artist.
Where do you live?
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

leapyrtwins

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #148 on: June 30, 2011, 06:15:06 am »
I could be wrong, but I think the "someone" is Lauren (ombrerose).

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Mei Mei

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Re: Headcount of Forumites attending Cinci Symposium
« Reply #149 on: June 30, 2011, 06:32:08 am »
No that's not Lauren.  That's  the woman that lives in N. Andover, Mass.   She wrote to me.   I am going to see her and Phyll next Sunday, hopefully.   Lauren lives in NYC.   I'll see them on the 16th in the NY meeting.
Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh