Author Topic: AN Awareness on local TV??  (Read 10749 times)

Obita

  • Hero Member
  • *****
  • Posts: 985
AN Awareness on local TV??
« on: July 09, 2006, 09:23:15 am »
Ok.  I did it.  We will see what happens.

This am after reading the most recent posts on here I wrote to a Health Issues Reporter at one of the local TV stations re: AN Awareness/Early Detection. 

A few years ago she did a report on the BAHA with the surgeon Denise and I had.  I decided that if I could get anyone to listen to me maybe she would be the one.

I explained to her in a short email why early diagnosis means everything when an AN is concerned.  I asked Her to consider doing a story on AN's for not only people with symptoms but for physicans as they tend to mis-diagnose and send people on their way with "fluid in the ear" etc.....

Will let you all know if/when I get a response. 

Kathy
« Last Edit: July 09, 2006, 07:07:15 pm by Obita »
Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

Sue

  • Hero Member
  • *****
  • Posts: 1934
  • Que sera, sera
    • My Blog
Re: AN Awareness on local TV??
« Reply #1 on: July 09, 2006, 12:07:01 pm »
GOOD FOR YOU!! ;D   Maybe we should ALL e-mail our local TV stations. And I have a question..is this "sloshing" I feel in my ear an AN symptom?  I didn't know that.  I also have that in my right ear, but I don't have an AN on that side.  Allergies?  That's what I was treated for in the first place. 
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

ppearl214

  • Administrator
  • Hero Member
  • *****
  • Posts: 7451
  • ANA Forum Policewoman - PBW Cursed Cruise Director
Re: AN Awareness on local TV??
« Reply #2 on: July 09, 2006, 03:32:44 pm »
sounds like a fab idea!  I know the local station did a recent piece on CK at Beth Israel... may be able to tie it in to AN.... hmmmmmmmm....

*wheels start to churn ... everyone runs for cover!*

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Larry

  • Hero Member
  • *****
  • Posts: 1464
  • Scallywags Rule
    • Chronologer of the PBW
Re: AN Awareness on local TV??
« Reply #3 on: July 09, 2006, 05:43:55 pm »
Go getum Kathy
2.0cm AN removed Nov 2002.
Dr Chang St Vincents, Sydney
Australia. Regrowth discovered
Nov 2005. Watch and wait until 2010 when I had radiotherapy. 20% shrinkage and no change since - You beauty
Chronologer of the PBW
http://www.frappr.com/laz

Static

  • Sr. Member
  • ****
  • Posts: 499
Re: AN Awareness on local TV??
« Reply #4 on: July 09, 2006, 07:03:53 pm »
Sounds like a plan, gonna write to a local station.
3.5cm AN removed 1-21-04
CSF leak repaired 5/04
SSD Right

Obita

  • Hero Member
  • *****
  • Posts: 985
Re: AN Awareness on local TV??
« Reply #5 on: July 10, 2006, 09:37:03 am »
Sue:

I had the sloshing sound (along with many more sounds) until I had surgery but I have no idea if it is a common symptom or not.

I was treated for fluid in the middle ear for a few months, allergy meds, nasal steroid etc...then finally I was
taken seriously and referred to a ENT.  I just KNEW something was in there that should not be.


Kathy
« Last Edit: November 23, 2006, 04:40:54 pm by Obita »
Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

DeniseSmith

  • Guest
Re: AN Awareness on local TV??
« Reply #6 on: July 10, 2006, 01:06:26 pm »
KO

I hope you get a good positive response!

DS

nannettesea

  • Sr. Member
  • ****
  • Posts: 292
Re: AN Awareness on local TV??
« Reply #7 on: July 10, 2006, 09:06:14 pm »
I wrote to Oprah last week....!
Nan
1.7cm x 1.4cm x .8cm, right ear
Trans-lab approach
Dr. Jay Rubinstein, U of WA
8/29/05

Obita

  • Hero Member
  • *****
  • Posts: 985
Re: AN Awareness on local TV??
« Reply #8 on: August 14, 2006, 12:56:50 pm »
Hi -

I recieved a email from the reporter I wrote to re:  AN awareness.  She is interested and will present the story to her co-workers in the newsroom to see if they want her to persue it.  Cross your fingers everyone.  Its a start.  Between Denise and I we can give her a earfull -  ::)  

She did say she might not get back to me for a few weeks.

Kathy
Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

matti

  • Hero Member
  • *****
  • Posts: 1234
Re: AN Awareness on local TV??
« Reply #9 on: August 14, 2006, 02:40:19 pm »
Kathy - I'll keep my fingers crossed!  Because of your thread, I wrote to Woman's World Magazine (a favorite of Battyp and I). It is a weekly publication and they always feature a story bringing awareness to a particular medical issue/disease. Hopefully they will contact me.

Thanks again Kathy! 

Cheryl
« Last Edit: August 14, 2006, 02:41:59 pm by matti »
3.5 cm  - left side  Single sided deafness 
Middle Fossa Approach - California Ear Institute at Stanford - July 1998
Dr. Joseph Roberson and Dr. Gary Steinberg
Life is great at 50

Obita

  • Hero Member
  • *****
  • Posts: 985
Re: AN Awareness on local TV??
« Reply #10 on: November 23, 2006, 10:03:20 am »
I did not hear from the reporter in the previous posts on this thread again, so I just wrote to another one that works for a different channel.  I met him at work the other day and decided it was worth a shot.  If this one has no interest, we still have two more channels in the Mpls. St. Paul area. 

I shall not give up! ;D

Happy Thanksgiving everyone,  Kathy
Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

rezski

  • Jr. Member
  • **
  • Posts: 57
Re: AN Awareness on local TV??
« Reply #11 on: November 23, 2006, 02:09:08 pm »
In retrospect I had been having occasional symptoms for years which were dismissed as an ear infection or cold in the ear??
The nurse at work even said  my eardrum looked red like there was an infection.  It wasn't till the symptoms came and stayed that I got diagnosed.
1.2 x .6 cm rt side AN diagnosed July 2005
Watching and waiting - not growing for now...Patient of Dr. Backous @ Virginia Mason
2012 8 x 5 mm @ Group Health - still WW

Obita

  • Hero Member
  • *****
  • Posts: 985
Re: AN Awareness on local TV??
« Reply #12 on: November 27, 2006, 08:07:43 am »
I got a reply from the reporter I wrote to.  He thought it was a very interesting subject and sent it to their
medical reporter......cross your fingers!!

Kathy
Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

Dani

  • New Member
  • *
  • Posts: 25
Re: AN Awareness on local TV??
« Reply #13 on: November 27, 2006, 09:44:10 am »
Kathy,

What a great idea!  I had the same thing happen with my ear.......my doctor told me I had fluid in my ear....nose spray and antibiotics...said it would take a long time for it to go away.  Sooooooooooooo I waited and waited and still nothing....finally went back and she said there isn't any fluid in your ear.....and I said that's funny because my ear is the same if not worse.  Finally she sent me to an ear specialist....hence an AN.

Also, writing to Oprah was a Great Idea Nan, anyway I was thinking if we could get a hold of Dr. Oz somehow.......I'm sure you've all seen him on Oprah.  It seems like so many people listen to what he has to say....and he talks about all of the body not just the heart.  Oprah has him on quite often.

I know that the AN's use to be pretty rare........but it seems like people are getting them more now.........so public awareness is great........not to mention doctor's need to be more careful in diagnosing ear problems.

Dani
Oakridge, Oregon
65 year old female
1.27cm, Diagnosed September 2006
Deaf in right ear, some tinnitus, numbness on my face close to my ear Currently "Wait & Watch", per doctors advise
If & When I need to have something done I've pretty much decided on GK.

Laura

  • Full Member
  • ***
  • Posts: 199
Re: AN Awareness on local TV??
« Reply #14 on: November 27, 2006, 03:22:23 pm »
The more news the better! I just hope Jerry Springer doesn't get wind of the story or NO ONE will take us seriously! LOL
Diagnosed August 17, 2006
AN on right side 1cm x 7mm x 7mm
30% hearing loss with no other symptoms
Watching and Waiting
http://www.patient-network.com/lparr
It's mind over "matter"... even if the "matter" is in my mind