Author Topic: GOTCHA! wooohooo!!  (Read 5761 times)

jaylogs

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GOTCHA! wooohooo!!
« on: August 02, 2011, 09:44:50 pm »
Greetings one and all...so to recap my story I had a BAHA surgery done in Feb, and it wouldn't heal so I had to undergo another surgical procedure to cover up the site and get it all healed up. A week ago last Friday I underwent another procedure to uncover the post and put the abutment back in.   Today I had my followup and it is healing very nicely. I also got to put on the processor! :) Yay! So now I have to get used to it.  It's hard to tell if it's really working yet, I haven't been in any real good areas where I can put it to good use.  But anyways, that's where I am at so far...thanks to all for your well wishes during this whole ordeal! To all those looking to get one, my situation is not the norm.  Thanks again guys!
Jay
8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

CHD63

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Re: GOTCHA! wooohooo!!
« Reply #1 on: August 03, 2011, 03:18:17 am »
Yaaaaaaay, Jay .....

Hopefully all will work well for you from here on out!  I am supposed to be able to attach my processor tomorrow.  Can hardly wait!

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Tod

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Re: GOTCHA! wooohooo!!
« Reply #2 on: August 03, 2011, 05:27:59 am »
Congrats Jay! I hope it all works well for you.

-Tod
Bob the tumor: 4.4cm x 3.9cm x 4.1 cm.
Trans-Lab and Retro-sigmoid at MCV on 2/12/2010.

Removed 90-95% in a 32 hour surgery. Two weeks in ICU.  SSD Left.

http://randomdatablog.com

BAHA implant 1/25/11.

28 Sessions of FSR @ MCV ended 2/9/12.

leapyrtwins

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Re: GOTCHA! wooohooo!!
« Reply #3 on: August 03, 2011, 06:46:15 am »
Well, now there's some fantastic news!

Hope everything goes smoothly from here on out.

Congrats!

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

tenai98

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Re: GOTCHA! wooohooo!!
« Reply #4 on: August 03, 2011, 09:45:39 am »
Congrats Jay
JO
14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

moe

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Re: GOTCHA! wooohooo!!
« Reply #5 on: August 03, 2011, 10:19:26 am »
Good luck this time around, Jay, and good luck to you Clarice~!
Maureen
06/06-Translab 3x2.5 vascular L AN- MAMC,Tacoma WA
Facial nerve cut,reanastomosed.Tarsorrhaphy
11/06. Gold weight,tarsorrhaphy reversed
01/08- nerve transposition-(12/7) UW Hospital, Seattle
5/13/10 Gracilis flap surgery UW for smile restoration :)
11/10/10 BAHA 2/23/11 brow lift/canthoplasty

ombrerose4

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Re: GOTCHA! wooohooo!!
« Reply #6 on: August 03, 2011, 11:15:35 am »
Jay,

Congratulations on your Gotcha Day!  It's a better world out there:)
Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010

Jim Scott

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Re: GOTCHA! wooohooo!!
« Reply #7 on: August 03, 2011, 01:24:43 pm »
Jay ~

Because your 'Gotcha! Day was delayed, I'm sure it is that much more exciting.  Congratulations!  Enjoy!

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

dalern

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Re: GOTCHA! wooohooo!!
« Reply #8 on: August 03, 2011, 11:35:07 pm »
Congrats, and it HAS TO go better this time around!
Dale
Dale Barnes, RN, MSN, CLNC
Tarzana, CA
1998 Sudden Onset Idiopathic Sensorineural  hearing loss diagnosed at House Ear Institute, Los Angeles
BAHA June 30, 2010 Dr. Jeffrey Harris UCSD San Diego

Rivergirl

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Re: GOTCHA! wooohooo!!
« Reply #9 on: August 04, 2011, 06:32:55 pm »
It better work.....you worked hard to get there.
Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

JAndrews

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Re: GOTCHA! wooohooo!!
« Reply #10 on: August 05, 2011, 05:32:10 pm »
I agree..it better work!!! Keep us posted. I refuse to have a screw in my head...but I am curious:)
2.5cm x2.0cm cerebellapontine angle meningioma. 100% removal 2/2009. House Ear Institute. Dr Brackmann and Dr. Schwartz. SSD right ear. No balance problems except when really tired, no headaches. Transear hearing aide made no difference, tried it for 4 months.

leapyrtwins

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Re: GOTCHA! wooohooo!!
« Reply #11 on: August 05, 2011, 09:28:10 pm »
I refuse to have a screw in my head...but I am curious:)

It's not a screw - more like a rod.  Anyway, it's not as bad as you'd think.  Don't knock it 'til you've tried it  ;)

Despite Jay's problems  :'(  the surgery and recovery are typically swift and without complications.  Guess Jay's just more special than most of us  :-*

Three years post implant, I honestly don't even notice the rod anymore.  It becomes second nature to you - I'd liken it to someone who starts wearing contact lens; over time they just become a "part" of you.

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Kaybo

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Re: GOTCHA! wooohooo!!
« Reply #12 on: August 06, 2011, 08:41:08 am »
Awesome, Jay!! So excited for you!

;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

jaylogs

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Re: GOTCHA! wooohooo!!
« Reply #13 on: August 06, 2011, 06:53:13 pm »
Thank you all for the well wishes.  Well, I've been wearing this for a few days now...hard to explain how it is...since I already had some hearing in that ear it hasn't really been like wow, what a difference kind of feeling.  It definitely helps though, as if someone is on that side talking where before I would really have to concentrate on what they are saying, now not so much which is really nice!  Clarice, I hope you are getting good feelings with yours! And yes Jan, I've been called special a number of times...and not all usually in a good way! :)  So anyways, again, thank you all for the support...greatly appreciated! :)
Jay
8.1mm x 7.8mm x 8.2mm AN, Left Ear, Middle Fossa surgery performed on 12/9/09 at House by Drs. Brackmann/Schwartz. Some hearing left, but got BAHA 2/25/11 (Ponto Pro) To see how I did through my Middle Fossa surgery, click here: http://www.caringbridge.org/visit/jaylogston

CHD63

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Re: GOTCHA! wooohooo!!
« Reply #14 on: August 07, 2011, 05:24:00 am »
Jay .....

Don't you just love not having to twist your back to hear someone and not having to position yourself carefully when choosing a seat somewhere?

Even though I am totally deaf in my non-hearing ear, I still did not have that "wow" feeling either when it was attached.  However, as the audiologist explained, when sitting in her small office, with her on my "good" side, I would not have had trouble hearing her without the hearing assist.  But ....... when my husband talked on the other side, I suddenly realized I could hear him without turning around.  Just to test it, I covered my "good" ear and then I had the "wow" factor kick in when I could hear him clearly and normally.  It does sound a bit like it is coming through a speaker system, but very natural sounding overall.

If you, or anyone else is interested, my audiologist gave me some exercises to assist the brain to retrain dealing with incoming sounds from the device.  Just PM me and I will be glad to send them on to you.

As the audiologist explained, I do not really want to know the device is working, just that it is!  In other words, the Ponto/BAHA should not overpower the natural hearing from the other side.

Jay, I would continue to test yourself in different situations (that's what I am doing) and then have the audiologist tweak the settings until you arrive at the best combination for you.

Best thoughts.  Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011