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Author Topic: Good news to report  (Read 3080 times)

valerie_g

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Good news to report
« on: September 12, 2011, 01:16:56 pm »
Hello to all,

I have great news to report. I just had my 6 months MRI checkup for my Cyberknife radiosurgery done beginning of March. The neurosurgeon, radiologist and radio oncologist inform me that the tumour is significantly smaller and is barley apparent on the MRI. Only a small hallow have been notice. The middle is now dark. He said I was lucky that my 6 months result showed some very good outcome; sometimes they don't notice any difference after 6 months. Maybe the fact that my tumour was very small help…maybe not and that is the hard thing with radiation, it is a waiting process and we don't know the outcome soon enough. I was in chock but this time in GOOD chock! I didn't expect something like that after 6 months! I will have another MRI in 6 months to look at the outcome after 1 year. On another subject, I just got my BAHA BP100 and I love it. It is helping me a lot and I feel more secure when I'm having a conversation with background noise and a lot of other situations. So beside a box on my head (colour champagne witch is very cool), a big small on my face and no other symptom to report I am feeling myself for the first time in almost 3 years! This challenge change me for ever but I am happy to report to all newbies that there is light after the tunnel! ;D

Valerie on a cloud with a champagne box and a screw on my head! 
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March 2009 5 mm X 4 mm
July 2010 6 mm X 5 mm
March 2011 7mm X 6mm Cyberknife radiosurgery Ottawa General Hospital
June 2011 BAHA surgery Ottawa Civic Hospital

mk

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Re: Good news to report
« Reply #1 on: September 12, 2011, 02:12:28 pm »
Wow Valerie, this is terrific. I am so happy for you. This is the best outcome that one can expect from radiosurgery and in your case the results are obvious very soon. Way to go.
Well, I guess this calls for real champagne (to match with your champagne baha box).

Marianna
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GK on April 23rd 2008 for 2.9 cm AN at Toronto Western Hospital. Subsequent MRIs showed darkening initially, then growth. Retrosigmoid surgery on April 26th, 2011 with Drs. Akagami and Westerberg at Vancouver General Hospital. Graduallly lost hearing after GK and now SSD but no other issues.

Jim Scott

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Re: Good news to report
« Reply #2 on: September 12, 2011, 03:43:18 pm »
Valerie ~

Thanks for sharing your very good news with us!  Enjoy the champagne, both the real thing and the BAHA version.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

leapyrtwins

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Re: Good news to report
« Reply #3 on: September 13, 2011, 05:50:56 am »
Valerie -

excellent news!!!  ;D

I'm a BAHA enthusiast myself so I was especially glad to read you like your BP100.

Congrats!

Jan
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Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

tenai98

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Re: Good news to report
« Reply #4 on: September 13, 2011, 06:51:50 am »
Awesomew Valerie
I'm seeing Shelly tomorrow to get and demo the new BP110 and the Ponto pro power....She is an awesome audio..
Jo
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14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

Mickey

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Re: Good news to report
« Reply #5 on: September 13, 2011, 05:39:23 pm »
Great News! Best wishes, Mickey
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ombrerose4

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Re: Good news to report
« Reply #6 on: September 13, 2011, 06:16:48 pm »
Congratulations! Happy to hear things are going so well:)
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Retrosigmoid 9/24/09
AN 2.4+ cm left side
Mount Sinai Hospital, NYC (Dr. Bederson and Dr. Choe)
BAHA surgery 1/4/2010
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